This is an update on my nephew for those of you who have been following. He had a doctor appointment yesterday and his bilirubin levels went up, meaning that the procedure they did to fix his liver did not work. The doctors decide that he will now need a liver transplant. The transplant won't likely happen for a year or two. He needs to be bigger and sicker in order to do it. Right now, it is our understanding that he can't even be put on the transplant list because he isn't sick enough. What scares me the most is that over 1,000 people a year die waiting for a liver. The good news though, is that a live liver transplant can be done where they take it from a living person of the same blood type. My sister and I both have the same type, but I can't donate mine right now since I am pregnant. We also don't know how insurance would work, but his would more than likely have to agree to cover it. If it came down to it, I think we would obviously be willing to donate our liver no matter the cost in order to save his life. My brother and SIL meet with the doctors next week to put together a plan going forward so hopefully a lot of questions will get answered then. Here is a link to their CaringBridge site: http://www.caringbridge.org/visit/grant_thompsonView Thread
All of Macie's gifts for her birthday and Christmas have been bought for a couple of months. Target had a big 75% off toy clearance at the end of June and I bought 2(!!!) carts of stuff. Baby doll stuff for her birthday and kitchen stuff for Christmas. Unfortunately, she has already seen the kitchen set box and asked to play with it. At least I know she will like it! My nephews are also bought for, as are my neices. so no, you aren't the only one!View Thread
I am trying to decide if I want both a double jogging stroller and a double regular stroller. I have heard of the downfalls of using a double jogger out in public and don't want to go through a lot of hassle. Macie will be 27 months when the next baby is born, so I think she will need to ride in a stroller still. What would you suggest based on experience?View Thread
Happy Birthday Lilly! I can't believe our "babies" are getting so old! I look at how big Macie is some days and am just amazed. What happened to that little, helpless baby? I guess that is why we are having another.
I think that anything I would suggest to get her you would already have! I already bought Macie's presents (and her birthday isn't until November!). She is going to get a Baby Alive and a bunch of other doll stuff. I found it all 75% off a month or so ago. Good luck deciding what to get her!View Thread
Macie has had one since she was probably 6 months old. She got a cold with a stuffy nose so we gave it to her to help her breathe and never took it away. She does like it though. Anytime she plays "nigh-night" or gets comfy on our bed, she makes sure she has a pillow.View Thread
I thought I would give you all a couple of updates on my nephew (since some of you have asked) and myself (because I haven't announced it on FB yet and need to "talk" about it!).
My nephew had surgery last Monday to fix a rare problem with his liver call Biliary Atresia. With this, his liver did not properly form and he had no bile ducts so his bile was not draining. His bilirubin levels were up to 10.(XX) and he was very yellow. At this point, the surgery appears to be working. He was released from the hospital on Saturday. Today his bilirubin levels are down to 6.1. They were 8 just on Saturday. There is some concern because not all of his poop is green, some is still without a lot of color. The green shows that the surgery worked and the bile is draining. The fact that his bilirubin levels are down is a good indicator that it is working though. If it proves not to work, he will need a liver transplant. If it is successful, he will probably still need a transplant at somepoint, but not until he is hopefully 18 or older. He identical twin brother could provide the liver at that point.
Now on to me (if you are still reading!). I had an u/s last Friday to determine the gestation of my baby. I was 10 weeks 0 days and my due date is March 11. The baby had a heartrate of 176 and all looked good. A few hours later, I went to the bathroom and noticed some spotting. I went to urgent care where they ran some tests, but couldn't tell anything except that I didn't have any infections. The doctor said he didn't think I was having a miscarriage, but to follow up on Monday. I didn't have any more bleeding over the weekend. I had an 8 am appointment today where the NP said it was probably from DTD last week, but she couldn't find the heartbeat so she scheduled me for another u/s at 10. By 10:05, I saw my baby still very much alive with a heartrate at 170. What a relief! It was a very stressful weekend. For all of you who have experienced a miscarriage, I only had a taste of how bad it would feel, but, wow, does my heart go out to all of you!View Thread