Chronic Fatigue Syndrome Community
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A new discovery in genetics, called epi-genetics, now gives hope by helping to restore healthy gene function. I am one of the lucky ones to be the first on this therapy and have my health restored after 20 years of suffering. Want to know more email me at janine.j@xtra.co.nz I am happy to helpView Thread
I had suffered for years before a doctor would believe me and then told me I had M.E/CFS.
There is a light at the end the tunnel for CFS. Its called EPIGENETICS. AT LAST!!! an answer to our illness.
Epigenetics is a discovery by scientists of how our environment, stress, toxins etc have the power to switch off gene function in our body. The good news is there is now a product that switches back on the genes that control our energy battery in the cell.
I suffered for nearly 20 years and recently was asked to lead a pilot group on the first ever epi-genetic therapy program. Within a few months we all began to experience a turn in our health and 1 year on we continue to enjoy a level of health we never thought possible. If you want to know more about this you can email me at janine.j@xtra.co.nz and I can share whats available for you.View Thread
Epigenetics is a discovery by scientists of how our environment, stress, toxins etc have the power to switch off gene function in our body. The good news is there is now a product that switches back on the genes that control our energy battery in the cell.
I suffered for nearly 20 years and recently was asked to lead a pilot group on the first ever epi-genetic therapy program. Within a few months we all began to experience a turn in our health and 1 year on we continue to enjoy a level of health we never thought possible. If you want to know more about these you can email me at janine.j@xtra.co.nz and I can share whats available for you. Your dream can come true....ours did.View Thread
I just wanted to let you know you are not alone! I am 29 and
after a lot of tests and going to different specialists I was diagnosed at 15 with Chronic Fatigue Syndrome and yes I had mono and the Epstein Barr Virus before that. They labeled me as having Chronic Mono for awhile and was on homesechool for a lot of my highschool years. I now at 29 still have a hard time some days better then others but the muscle pain and being sore to the touch on my skin hasn't gone away. I am not sure if you have an actual Chronic Fatigue Specialist in your area, but if you do I would recommend seeing one or an Infectious Disease specialist which is who I had to go to and am still on a waiting list for our only CFS specialist in Utah. They ended putting me on Cymbalta and Clonzapem at night to get sleep and I have headaches as well. If you do have any other questions or just need someone to talk to about CFS you can reply to me. It is great to know after all this time I can find others with this disease and not feel as crazy or alone. Hope this helped you a little bit. Good luck and try to stay positive!View Thread

Welcome to the community!
The symptoms are definitely there, however I suggest that you try and get it diagnosed by a doctor.
No pains for me at the moment (touch wood) although I too get palpitations and sometimes my heart even skips a beat. What I have learned to do is probably one of the few or the only thing I can do and that is to try and stay calm. It usually goes away after a few seconds.
Please find below some information that knyb007 posted that might be of use to you.
knyb007 responded:
I've been there. I was sick about 6 years ago and had all the troubles you explained and more. Doctors couldn't find anything wrong with me. They weren't doing the right tests. I'll spare the details and just get to the solution. If you are on the east coast, contact Dr. Ritchie Shoemaker in Pocomoke City, MD. If you are in the Southwest, contact Dr. Michael Gray in Benson, AZ (outside Tucson, AZ) These are two of the most highly qualified doctors who know what to look for, how to diagnose and treat people with chronic fatigue. I have seen both of these doctors and am happy to say that I am on my way to full recovery.
If you are unable to see either of these doctors, ask your own doctors about levels of VEGF, TGF beta 1, MSH, C4A.
I hope that I have been helpful and that you feel better very soon.
Take care and keep in touch.
Warm regards,
Sergio
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I hope that when you read this reply you are doing well.
I personally do not have any experience on this particular matter, so I suggest that you ask an obstetrician specific questions regarding CFS and pregnancy. Also maybe get in touch with doctors specialized in CFS such as: If you are on the east coast, contact Dr. Ritchie Shoemaker in Pocomoke City, MD. If you are in the Southwest, contact Dr. Michael Gray in Benson, AZ (outside Tucson, AZ)
These are two of the most highly qualified doctors who know what to look for andhow to diagnose and treat people with chronic fatigue syndrome.
Even if it is just giving them a call or dropping them an email, they might be able to offer some advice.
If you are unable to see either of these doctors, ask your own doctors about levels of VEGF, TGF beta 1, MSH, C4A.
[br> I hope this information is of use to you.
Take care and keep in touch.
Warm regards,
Sergio

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I hope your day is going well.
Please find below a post that might be of use to you.
knyb007 responded:
I've been there. I was sick about 6 years ago and had all the troubles you explained and more. Doctors couldn't find anything wrong with me. They weren't doing the right tests. I'll spare the details and just get to the solution. If you are on the east coast, contact Dr. Ritchie Shoemaker in Pocomoke City, MD. If you are in the Southwest, contact Dr. Michael Gray in Benson, AZ (outside Tucson, AZ) These are two of the most highly qualified doctors who know what to look for, how to diagnose and treat people with chronic fatigue. I have seen both of these doctors and am happy to say that I am on my way to full recovery.
If you are unable to see either of these doctors, ask your own doctors about levels of VEGF, TGF beta 1, MSH, C4A.
[br> I hope it is of use to you and that you too get on the road to full recovery.
Take care and keep in touch.
Warm regards,
Sergio
View Thread

I hope you are doing well.
Thank you very much for taking the time in trying to help Sadiejoe.
As you can see she needs all the support she can get.
See Sadiejoe, you are not alone.

Thank you very much once again.
Take care and keep in touch.
Kindest regards,
Sergio
View Thread
I feel so bad for all of you that are suffering with chronic pain and fibromilgia! I have been diagnosed with fibro for about 2 years now but didn't really believe it! I kept getting tests and coming up with nothing and I'm even on the Cpap machine for sleep but doesn't seem to help anymore. I am so fatiqued and in so much pain! I will keep tryng to figure out what to do about it but my other problem is just as painful.....my husband doesn't believe in fibro and sometimes I don't think he believes that I'm in that much pain or not sleeping. He says that I was sleeping when he woke up but doesn't understand that I have been up and down. I don't know if the no sleep is causing the pain or the pain is causing the no sleep. He can see in my face something is wrong but when he asks and I tell him, he just brushes it off. i don't know if it's because his ex-wife was always sick and he can't handle it or he doesn't believe me. I can't talk to him about it. I know he love me to death but i don't know how long that will last with what I'm going through.......does anyone else have this problem adding to the suffering they are already feeling. I truly need help with this. I don't have him to talk to. I did not have this problem when we got married. I was energetic, happy, own two businesses and always willing to start something new! We both have our own bikes and really enjoyed life! I don't know if I can continue on this life style and don't think that he will put up with it forever. Can anyone give me any advice? I don't know what to do! Anything will be helpful! Thanks for hearing my story! SadiejoeView Thread
Spent a few hours at my Aunts house making maternity pants for my daughter and then began the packing process of her room. Donated 8 bags of clothing (large trash bags) and got one closet cleaned out. Didn't get home until 9:30 last night.
Today I will be taking her to a Dr.'s appointment and then I have to go to a wake. Of course the two are at opposite spectrums of the World, or so it seems. In between that time, I'm hoping to work a bit more on her room but it doesn't look promising.
Anyway, it's 2 a.m. and I'm exhausted but can't sleep. I have to take Hubby to work so I can have the car. I selfishly miss having two cars.
Ok, I'm done blabbering.
If anyone's out there, wishes for a peaceful day are sent to you.
KatView Thread
) I Just would like to bring this more to attention.HELLO FELLOW COMMUNITY READERS AND MEMBERS, MAY I PLEASE KINDLY ASK YOU ALL TO HELP KEEP THIS COMMUNITY ALIVE AS THIS WILL HELP FIND SOLUTIONS FOR OUR HEALTH.
JUST BY REPLYING OR POSTING. EVEN IF IT IS JUST BY PRESSING THE KEY ON YOUR KEYBOARD THAT HAS THE COLON ( : ) CHARACTER AND SUBMITING THE COLON CHARACTER ( : ) AS A REPLY OR AS A POST, THIS WILL TELL US THAT AT LEAST PEOPLE ARE READING THE REPLIES AND THE POSTS AND WILL ENCOURAGE THE CONTINUITY FOR FUTURE POSTS AND REPLIES, AS TWO LITTLE EYES ( : ) WILL CONFIRM THAT THEY ARE BEING READ
. MANY THANKS IN ADVANCE AND APOLOGIES FOR ANY INCONVENIENCE.
Kindest ragrds,
Sergio

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Many thanks for the reply.
I see where you are coming from, however I do not know if it is because I am 40 and most of the people that post on here seem to be a little older than me, that I do not share all of the symptoms as them. Only the chronic fatigue and exhaustion.
I am with you on the "hell" part, a living hell.
Once again thank you very much for your reply, good luck to you too and stay in touch.
Take care.
Warm regards,
Sergio
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,I wish you all happy holidays, especially a very prosperous 2012 filled with good health and of course a cure to our illness.
Hugs and kisses,
Sergio
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,Thank you very much for giving us the list.
You are a true star.
I hope you keep on getting better
Take care and keep in touch.
Kindest regards,
Sergio
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,Thank you very much for the information. Very interesting and useful.
Kindest regards,
Sergio
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,Would you say that CFS is what the medical world calls the condition of always being fatigued and exhausted, because it has not yet been able to properly diagnose the many and diverse conditions that have chronic fatigue and exhaustion as the main symptom but have many other different symptoms also and has just put them under one big diagnostic umbrella called CFS?
I ask you this because reading through the posts and replies, I am able to see that we all share the fatigue and exhaustion part but many of us have other different symptoms that some of us share and others do not, that would indicate that there are other conditions/syndromes/illnesses that we could have but like I say they have not yet been discovered and have all been called CFS.
What do you think?
Hugs and kisses,
Sergio
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,Thank you very much for the information.
Take care.
Kindest regards,
Sergio
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, I have considered acupunture, but have not yet decided to have the treatment as I am still having tests carried out by bmy doctor.On my last visit to my doctor he has more or less diagnosed me with CFS and for the first time in over 20 years the term Chroniic Fatigue Syndrome appears on my medical reports.
I wish you all the best and hope you get better very soon.
Kind regards,
Sergio
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All the best and I hope you get better soon.
Sergio
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,Would you say that CFS is what the medical world calls the condition of always being fatigued and exhausted, because it has not yet been able to properly diagnose the many and diverse conditions that have chronic fatigue and exhaustion as the main symptom but have many other different symptoms also and has just put them under one big diagnostic umbrella called CFS?
I ask you this because reading through the posts and replies, I am able to see that we all share the fatigue and exhaustion part but many of us have other different symptoms that some of us share and others do not, that would indicate that there are other conditions/syndromes/illnesses that we could have but like I say they have not yet been discovered and have all been called CFS.
What do you think?
Hugs and kisses,
Sergio

View Thread
,Would you say that CFC is what the medical world calls the condition of always being fatigued and exhausted, because it has not yet been able to properly diagnose the many and diverse conditions that have chronic fatigue and exhaustion as the main symptom but have many other different symptoms also and has just put them under one big diagnostic umbrella called CFS?
I ask you this because reading through the posts and replies, I am able to see that we all share the fatigue and exhaustion part but many of us have other different symptoms that some of us share and others do not, that would indicate that there are other conditions/syndromes/illnesses that we could have but like I say they have not yet been discovered and have all been called CFS.
What do you think?
Hug and kisses,
Sergio

View Thread
,Thank you so much for your kid words and thoughts, it is good to know that there are good people like you in the world that care and take the time and effort to read the posts and replies.
Take care,
Sergio
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