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TIFFView Thread
It's so nice to know I am not alone and I do have some people to talk to that have the same thing. I am glad I found this blog.View Thread
was i a big drinker? Nope not at all. I used to be when I was 21? But i get migraines from it...so that was ruled out. No cirrhosis of my liver was shown when they took my biopsy so I feel lucky for that. there's just so much about this disease or disorder that doesn't make any sense to anyone. It appears that everyone story is different. Everyone I just the medication differently. hello! Even doctors treated differently!
how long was my bloodwork good before he took me off the prednisone? I honestly don't know. I ended up taking myself off of it when I was on 5 milligrams and I know that I shouldn't have done that. they had suggested putting me on a winning situation where would be for milligrams per month 3 milligrams for another month and so on until I was down to one milligram and then they wanted me to cut it in half and I couldn't do that anymore. as for the in urine? According to my doctor it doesn't do anything to my body? especially in the amount of it I was taking. however I no longer take that either. let me preface that with it is completely against my doctors wishes. He's suggesting that I do not take myself off of the Imuran due to the nature of how fast and how awful it was when I came down with it. please understand! My doctor does not want me of medication. It is my choice but I took myself off of it because I don't like what its done to my body. I used to be very in shape, I used to be with and my normal weight range. I now weigh somewhere close to 240 and I still can't take it any of the weight off. I was hoping that SOME of the weight would come off..but no luck. it has now been over a year since the beginning of my journey with this disease / disorder? and everytime my hands will itch..I get nervous that it's back. I'm EXHAUSTED. All the time. Work doesn't understand. I certainly can't work out like I used to. I'm trying to go back to roller derby... it sucks. But the only thing you can do is take it & keep going. according to everything that I've read, according to everything anyone has told me, it's only a matter of time before we relapse. But I want to make sure that I am prepared for the next time.
Good luck to all of us..it's good to know we're not alone.
HeatherView Thread
HEPATITIS AND BOOZE == DEAD
TIFFView Thread
Yes, it is hard sometimes that is for sure. I saw your post and felt the need to respond as we have a lot in common. I found out I had HCV back in 1998, but did not really have an effects until last couple of years. I was always tired, no energy just felt generally bad. I thought that it was all about getting older you know? Menoapuse etc... Had a liver biopsy 4 years ago and liver still looking good but my Dr. really felt it was time for me to do treatment. I started treatment back in Jan, and here it is May! It has been the longest 5 months of my life = but will be so worth it when done. I just want this out of my system!!! I try to keep the "CURE" in the front of my thoughts and make it through every day. AND I really try to stay grateful about what ever I can and make it one more day. The side effects haven't been fun, but it hasn't been any worse than my imagination was working up!! Good luck to you - I'm watching discussion so if you need to talk just let me know!-TLH in Tucson, AZView Thread
TIFFView Thread
AT WEEK 12 OF MY 48 THEY HAD TO DROP THE RIBA TO 3 PILLS A DAY....SO I FINISHED MY 48 WEEKS WITH INTERFERON AND 3 RIBA....I STAYED CLEAR.... HAVE BEEN FOR 13 YEARS NOW....
TIFFView Thread
TIFFView Thread
MANY HAVE NO SYMPTOMS AT ALL....YOU NEED TO SEE AN MD AND GET TESTED AGAIN....AND DO WHAT THEY SAY...
TIFFView Thread
PERHAPS THIS WILL HELP ALSO
http://www.cdc.gov/vaccines/pubs/vis/downloads/vis-hep-b.pdf
TIFFView Thread
TIFFView Thread
TIFFView Thread
I FINISHED 48 WEEKS OF TX 13 YEARS AGO AND AM STILL CLEAR.......MY STAGE 4 LIVER IS HAPPY I DID SO TOO...
HERE IS A SITE THAT WILL HELP YOU TOO..
http://www.hepcsurvivalguide.org/comboguide.htm
THE SITE ABOVE SAVED MY LIFE ON TX AND TAUGHT ME HOW TO DO TX WITH A GIGGLE ALSO...
AS ALWAYS THOUGH KEEP THE MD(OR NURSE) ON REDIAL..
TIFFView Thread
I HAVE BEEN MARRIED TO THE LOVE OF MY LIFE FOR 46 YEARS....HE DOES NOT HAVE IT....NOR DO ANY OF OUR 3 ADULT DAUGHTERS(WE SHARED RAZORS TILL 1993 WHEN I FOUND OUT)....
I DID TX(TREATMENT) 1999-2000 AND CLEARED(ONLY HAD A 30% CHANCE TO CLEAR)....MY STAGE 4 LIVER IS HAPPY I CLEARED TOO....SINCE I CLEARED I HAVE SEEN 6 GRANDS BORN AND WE HAVE A WONDERFUL LIFE..
BREATHE DEEP RELAX AND LEARN ALL YOU CAN.. YOUR KNOWLEDGE OF HCV WILL HELP YOU MOST
MOST DIE WITH IT NOT FROM IT
TIFFView Thread
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Hep c through a blood transfusion0% (0)
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I am getting ready to start the triple-drug therapy and am having no luck finding out a ballpark amount this will cost me. I have Presbyterian Health Insurance but my doctor's office tells me they can't tell me the cost until I actually start treatment. Can anyone shed a ray of light on this for me or suggest who I should talk to? I would greatly appreciate any advice or insight.
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Hope all is going well at this point.View Thread
It has been my experience that the progression of hep c is very slow unless you are a drinker/drug user... and I mean slow.
I am 58, had the infection since the mid to late 80's, been through triple therapy recently with no success and still am only level 1.2 of 1.0 - 4.4 (in other words 1.1, 1.2, 1.3, 1.4 etc.; 4.4 is full blown cirrhosis needing transplant). I may very well die with it rather than from it.
Chance of transmission is extremely low in cases of shared razor, tooth brush and sex; it is 100% transmitted intravenously or blood to blood. The virus has been known to survive up to 1 week on surfaces outside the host; even then transmission via open sore contacting the same surface is low.
Three things I would suggest; 1) get your gallbladder checked for sludge or stones as this may be your side pain (the liver does not ache to my understanding), 2) have a blood test done to determine whether or not you have contracted hep, and 3) do not worry because the stress is as much a health issue as the one you are worrying over.
If you have a return diagnosis of infection, still do not worry, stop drinking if you do drink alcohol and mind those times you cut yourself in much the same way as anyone else would; contain, cleanse, wrap in bandage and go about your business as usual.
I wish you the best outcome over all.View ThreadWomen's Health Newsletter
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