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Welcome to the WebMD Osteoporosis Exchange with experts from the National Osteoporosis Foundation who rotate their time here.
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No expert in osteoporosis in my area (no trainer, therapist etc. that specializes in the topic), and definitely not gym that takes into account osteoporosis sufferers.
I'm not sure if insurance companies should pay for exercise - in my view it is more a personal responsibility and lifestyle choice, like your diet.
What has "saved" me so far from nasty fractures and other consequences from my osteoporosis, is exercise. Doctors should really drill the importance of exercise in their patients, keep repeating the message, show patients the "success stories", hammer it home.
It would be nice of course if there were more courses for health specialists to specialize in the treatment of patients with osteoporosis (trainers, physical therapists, exercise specialists, and more).View Thread
I started exercising 5 times a week - I have always found it enjoyable, so I would classify that as "easy": although the exercise itself is never really easy, the lifestyle change has been.
Another lifestyle change is to eat healthier, which has probably been the most difficult, and I still struggle to replace candy with healthier things! Luckily I also eat a lot of vegetables and lean protein. Not eating enough dairy though.View Thread
T-scores are the way we measure your bone density. The T doesn't stand for anything, BTW. Normal bone is having a score of -1.0 and higher. Osteopenia (or low bone density) is having a T-score of -1.1 to -2.4. Osteoporosis is having a T-score of -2.5 and lower, OR having had a vertebral or hip fracture, regardless of T-score.
Look at the NOF (www.nof.org ) for more information.View Thread
Congratulations on the baby!View Thread
It also is advertised for people experiencing bone loss as a natural part of aging. (bone loss is not necessarily a natural part of aging) They are very careful in not saying anything about people already diagnosed with osteoporosis.
As for raw calcium? What? Calcium is a mineral. Calcium is calcium. There is no good, bad or better. It's simply a matter of what your body best tolerates.
As I've said many many times before, once your T-scores reach a certain on their own or combined with other risk factors present, there is NO natural way to rebuild bone. You have to have a proven prescription drug and weigh the benefits against the risks. As you do with all courses of treatment.View Thread
I have been taking Forteo for almost 8 months now. I don't know yet whether it works for me, I'll get another DEXA scan in 3 months.
I had a blood Vit D level of 25. Three months on 1500 U Vit D supplement brought it up to 27. I am now taking 3-4000 U Vit D per day and will try to get another blood test soon to see the result.
I am also taking about 600 mg Ca per day to supplement my diet which I estimate has about 600 mg from milk, yoghurt, cheese and others. After developing a strong aversion to the monster pills I am now taking chewable tablets, much better. I look for those with some magnesium in it, preferably at a ratio of 2:1 for calcium:magnesium. I take calcium supplements at every meal, 100, 200 or 300 mg at a time, since I read that the body can only handle 600 mg at a time. There is also an slightly increased risk of heard attack in women who take calcium supplements, possibly because the body cannot handle mega-doses easily, so breaking up the dose in multiple portions may be a good idea. I am also a little concerned about kidney stones since I excreted too much calcium in the urine even before taking calcium supplements. I therefore would prefer to have calcium citrate supplements which are also better absorbed from the gut, but the chewables are usually calcium carbonate. Forteo sometimes increases calcium excretion in the urine but usually is expected to increase reabsorption of calcium from urine. A 24h calcium urine test will show what's going on.
I have a step counter and try to walk at least 5000 steps a day (the goal is 10,000) per day), on some days on a treadmill with 3 pound waits in my hands to add some upper body exercise. No bending and twisting of the spine is difficult to achieve, but I am definitely more careful now, even thinking of getting somebody else to do the house cleaning and other work.
I'm sorry to hear that you are in pain. Did your doctor try to find out why you have such a low bone mass, did you get a parathyroid hormone analysis and other tests? I have no risk factors and no idea what caused this low T-score, something that is unsettling since whatever the cause, it may still be going on and worsen the situation, something I really cannot afford with these bones.
I hope this helps a little even though everything that I am doing is trial and error, without any data to indicate whether I am on the right track. An unpleasant situation, but I fell with a T-score of -4.2 I cannot afford to wait and see,
Good luck!View Thread
You don't give your T-scores or fracture history, but I'm suspecting you're in the osteoporosis range since your doctor has prescribed a medication. I can tell you that if your fracture risk is high - the benefits of taking an osteo med that has been proven to reduce your fracture risk far far outweigh the risks of taking a med. Once you've had a vertebral fracture, there is no second chance.
With your history of GERD and gastritis, an oral med may not be the best choice for you. Talk to your doctor about Reclast, the annual IV med or IV Boniva.
You say you can't take Vit D or calcium. I don't understand what prohibits you from doing that because calcium in the form of Tums is often taken for reflux or indigestion. Vit D comes naturally from the sun (but not enough) and the supplements have not been shown to have an effect on the digestive system.
You should know that any medication you take will not work unless you give it something to work with in the form of calcium and Vit D. If you can't take the supplements, get it in your diet. Read food labels carefully as many foods now have calcium added. You need 1200 mg a day. Your body will absorb about 500 mg at a time.View Thread
UK researchers have discovered a new way to help and detect osteoporosis - a faulty gene.
See this article and research to find out more and then come back to share your thoughts.
ElizabethView Thread
You might want to try a prescription discount card. It will help lower your costs if your meds are not on the $4. or $10. list. you can get a free card at:
www.angelwealthrx.com . It has helped me after I lost my insurance due to job loss. God Bless.View Thread
See these resources to help make your home and yourself fall-proof -
What or where do you feel is your biggest risk of falling?
ElizabethView Thread
You can also go online at the National Osteoporosis Foundation (www.nof.org ) and order their booklet (for $1) called "Boning Up on Osteoporosis." We use it as a teaching tool in our osteo rehab classes. It has tons of good information on everything osteoporosis as well as illustrations of movements to avoid and what to do instead.View Thread
Do you have any of these other conditions? Did any surprise you?
ElizabethView Thread
After the treatment course for Forteo, you do have to strengthen the new bone growth with a bisphosphanate. This could be Fosamax, Boniva, Reclast or Actonel. You could do the Prolia, but that's not your only choice. And it not necessarily for life.
The goal is to reduce your risk of fracturing. T-score is only part of that picture. Family history, fracture history, medication history all play a part. If you're at a high risk, then you'll most likely take the meds longer. If the Forteo improves your T-score and your other risks are low, you might not have to be on another med very long. It would depend on your test results showing you're stable.
There are a lot of variables in your situation. I wouldn't just reach for the Forteo unless you're at an extremely high risk of fracture. This would be determined mainly by the presence of prior non-traumatic fractures in the last couple of years, the use of prednisone for greater than 3 months or antiseizure medications, and whether you're postmenopausal. If none of those things apply to you, I'd ask for a Vitamin D check and talk about Reclast, Actonel or Fosamax instead of Forteo.View Thread
I am so sorry to hear about your son's injury and complicated recovery. In a search of our communities I found two member created communities that may be helpful -
Traumatic Brain Injury Survivors and Caregivers
TBI - Accidentally Forgotten
And a couple other places to network for information -
Brain Injury Association of America
BrainLine
Hoping you find answers soon,
ElizabethView Thread
FDA OK's Generic Boniva for Bone Loss
Is this good news for you?
ElizabethView Thread
A 4.6% decrease in one year is cause for concern. Normally testing is done every two years because bone is slow to respond to change. A decrease like that in only one year certainly warrants a medication, even though your score in itself isn't alarming.
Make sure you get your 1200 mg of calcium with the Reclast or it won't maximize its effectiveness. Also get in 1000 IU of Vit D.View Thread
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