I didn't know where to post this, so here goes. To any of those that say (such as 1 of my vets) there's such a thing as being 'sensitive', but not allergic to light and the sun. You'd be wrong. About a year ago after thousands of dollars in tests, my doctor told me that I and my daughter are PGE2 deficient. It's for Prostaglandin E2(Enzyme). Apparently neither of our bodies make any. She barely knows anything about this, and most whom I tell about it simply think I'm making it up. It doesn't even seem common among doctors or the photosensitive groups. I wasn't born this way, it started several years ago. I went from playing outside with merely sensitive eyes to only being able to tolerate outside for a few minutes at a time in direct light, to closing my house down to resemble a tomb inside. It seems to get worse on a nice downward spiral, and mine is so severe it gives me bronchial spasms and I can have trouble breathing, my skin inflates and itches like mad, etc. I've tried searching online (which all itself is also painful due to the brightness. I have to wear gloves and a stupid motorcycle mask), to no avail. I don't write this for a pity party, but in search of help; as I've not been able to find anything on my own so far. I know it may be rare, but it is a medical problem. And I wanted to know (since my own doc doesn't know) if anyone's ever heard of any type of infusions, enzyme injections, supplements, Anything that might help. I mean, I have no thyroid, and I take daily medicine for what's no longer made. Is there anything anyone's ever heard of that helps for those whom are PGE2 deficient? I've found nothing so far on my own. But I can't help thinking there must be something. So if anyone has any thoughts or knowledge on this, could they please share them with me? As I have come to a dead end on my own. Many thanks in advance for any help.View Thread
The opinions expressed in WebMD Communities are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. Communities are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service or treatment.
Do not consider Communities as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.