I am sorry you are suffering from this horrendous condition - ugh. I was suffering as well but I have gone to a great immunologist who has gotten me on the right track. The trick for me is staying on it. I was tested for a couple different things - wheat, milk, soy, eggs, etc. all negative and h.pylori is another things to get checked off the list to. I was in dire straights for a couple days before I started the water therapy....I can't tell you 100% it cured me because as I write right now I have 1 hive under my armpit. Anyhow....I was on 36mg of medrol (steroid), 2 zyrtec s and 2 zantacs daily for the first 7 days after my first visit with this doctor...and water therapy ...by day 6 on water therapy and medication the break outs stopped. Then for 12 more days I stayed on the same medication, slowed my water therapy (when I shouldn't have but I haven't had really breakouts except today), and have been off the steroid for sometime and today is the first day without Zyrtec. I am terrified these things will come back but I am trying to manage my stress level (finals for college and a toddler together) make things stressful and whatever else life throws my way. I started back full force on water therapy and cut out caffeine and am going back to gluten free starting tomorrow.
Although I know people don't want to hear it sometimes it takes a strong regiment of steroids and antihistamines to help get your body back in order and I mean doing that for a month or two and then try supplements like b12 and quercetin ..which I started b12 awhile ago and quercetin over the weekend.
I am hoping when I am finally off the Zantac and just the supplements ...if I have sny break outs that they will be minimal..I have never been a pill taker so this has affect me big time.
Pm at firstname.lastname@example.org if you wish to talk further !!
Well I am now a victim of hives! It's been almost 2 months since the first time this issue has surfaced. Within the last 2 weeks I have experienced severe hives (head to toe), swelling in my eyelids and lips. Before it was what would consider minor. In the last week I have been to a doc-in-the-box, ER, ENT, back to the ER to be turned away, and then to an immunologist to be tested for wheat and gluten allergy as well as drug allergies.
I have been given antihistimes and predisone and now medrol.
I was extremely happy with the immunologist and his interest in my recent issues, however due to breakthrough hives while on steroids and antihistamines, this has left me with little desire to continue antihistamine medications any further.
Also, my desire to not just live with this has lead me on an Internet research kick and to here!
I am thankful I have stumbled upon this because the dehydration issue is what I am praying I am suffering from.
For the past two months - I have worked out vigorously(700-850 calorie burns), while taking a stool softener, drinking at least 3 -12 packs of diet soda thru the weeks and barely any water except when I worked out. My diet itself has consisted of crap food, chocolate, cake, wine, fried foods. Etc.
I am not certain these foods are the trigger, however, it's worth a shot to remove them at the present time.
I stopped my steroid today, I have not had any medication for nearly 9 hours and I am severely broken out....no edema (yet). I have down more water than I can even imagine and I plan to do this until I see some result. I have another appt this Thursday with the immunologist and I pray that when I get there, this water prescription will have had sufficient results.
Now, my questions lies in salt intake....how much do I need!? I weight 135 lbs prob less by tomorrow since I don't know to really eat and am keeping my options light.....
I pray that we all who suffer find a means to an end to this.....this is truly life altering.