So it's been about a year since I posted this initial discussion. Unfortunately I still dont have any solutions.
Since my last post a year ago, I saw an allergist. I had the prick testing done on my arm, patch testing on my back, and lots of blood work. Nothing provided any answers. The allergist seemed pretty stumped.
A friend of my mother's is also having the same reaction we are. She saw the same allergist I did, and same thing - no answers.
What I started doing was stocking up on prednisone and take it as needed. I know it's bad to take prednisone regularly, so i would try to take it as little as possible. Usually, if I took one pill at the onset, that would be enough to stop the reaction so I wouldn't have to take any more. However, my good friend is a MICU nurse, and she said it's almost just as bad to randomly start and stop prednisone like that. So again, I'm not sure what the best approach is.
The past couple of months I actually have had some relief of symptoms thankfully, so I can be outside now without any reactions in the next couple of days. However, I have no idea why it's been getting better. It's been just over 3 years since I had my first reaction, so I'm wondering if whatever it was ran its course? They say your body changes every 7 years or something like that, so maybe it's something like that. I seriously have no idea.View Thread
For the past two years, I've been having some sort of reaction after being outside for a while on a hot and sunny day. The day of exposure is fine - no sun burn or any obvious discomfort, but it's always the next day or usually two days after when I wake up, it's there.
It's swelling under my eyes and sometimes up around the eyelids if it's quite bad. The swelling lasts a couple days, and the effects on the skin (saggy and wrinkly) last a good few days. While the swelling is there, the area is quite painful, it feels raw and stings. And then as the swelling goes away, it starts to itch. The actual eye balls are fine - no irritation, redness, blurred vision, etc.
It's been quite random, so I haven't been able to figure out a pattern of what is causing it or how to prevent it. In terms of location, it's happened to me while in Tennessee, Massachusetts, Fiji, and New Zealand. One doctor told me it's a heat allergy and to wear sun glasses while out. However, another doctor told me a heat allergy doesn't exist. I've tried avoiding eye creams (thinking it was a chemical in the cream reacting with the sun), wearing sun glasses, wearing hats, staying in the shade, and it doesn't always help. Antihistimines don't help, either with regard to prevention nor treatment once the swelling has begun. Ice doesn't bring the swelling down. The only thing that helps bring the swelling down has been Prednisone.
It's seriously so random. It doesn't always happen, and when it does happen, usually one eye gets it worse than the other.
It's getting quite bothersome. I'm beginning to get stressed out about being outside on a nice day. So far the doctors I've seen haven't been much help. What is this and how do I prevent it?? (The pic I've included is one of the only ones I have - it's not very good quality and doesn't show it at it's worst) View Thread