Alzheimer's Community: Support Group

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October Check-In

Hello everyone. Autumn is well underway up here in Western New York. The trees are beautiful. My dad...

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Blessings, Dave

Posted by davedsel57

7 Replies | Reply | Watch This Discussion Report This | Share this:October Check-In Hello everyone. Autumn is well underway up here in Western New York. The trees are beautiful. My dad...

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Trouble with meals

My husband who has Alzheimer's is having some trouble eating. His hand is shaking and that is very disturbing...

Posted by An_247998

2 Replies | Reply | Watch This Discussion Report This | Share this:Trouble with meals My husband who has Alzheimer's is having some trouble eating. His hand is shaking and that is very disturbing...

Gratitude

The webmd theme to look for something you are grateful for actually is so sound. Studies show that...

Posted by Judith L London, PhD

3 Replies | Reply | Watch This Discussion Report This | Share this:Gratitude The webmd theme to look for something you are grateful for actually is so sound. Studies show that...

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New chapter in life.

My mom 72 has Alzheimer's or Dementia, not sure of the difference yet, and has been displaying the symptoms...

Posted by Debra_EO

My mom 72 has Alzheimer's or Dementia, not sure of the difference yet, and has been displaying the symptoms for a little over a year now. This past weekend I got her to move in with us. The aggression and the violence between my parents has now developed. I know Dad yells, has as long as I can remember, now though it is more viscous. Was visiting with my hubby and boys (7 and

last Christmas and Dad started yelling at the 8 year old. I have never seen my husband so mad, he interceded, told Dad in no uncertain terms never to speak to his son like that again. He gathered up both boys and took us to a hotel to stay for the rest of the visit. We have not stayed in their house since and when I have had to go visit or help I go alone. I am not sure to what extent the violence has gotten to and who is hitting whom. We employed a caregiver 8 hours a day a month ago and she says it is a little on both sides.

All I know Mom is afraid and doesn't want to be there any more, so I again asked if she wanted to move in. She consented and I am relieved, now I can get her diagnosed. She would forget or cancel all the appointments I made for her. I am unsure how to proceed now and what I need to do next. Thankfully my brother has been doing their finances for the past year, but he lives in Southern California, and I live in Northern CA. He can probably still do that since Dad is still in the home with the caregiver continuing her services. Don't know how or if I should get some of Mom's things like her bed, dresser, TV or just get new for her room here. I am thinking just get new to avoid the upset on both parents part and less upheaval. Her personal affects we can gather as needed. The legal matters are another story. Do I get power of attorney, or does my brother, or both? Health care directive? I am looking on line and gathering info, but any advise would be appreciated. I suppose I will need a support group for her and us, I don't want to stress out the family or my boys more than they can handle. Just unsure of where to go from here.

D.View Thread

Posted by Debra_EO

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To wildstick1 (Diana)

I am posting my reply to your post in the September Check-In Thread here to be sure you see it. When a...

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Blessings, Dave

Posted by davedsel57

5 Replies | Reply | Watch This Discussion Report This | Share this:To wildstick1 (Diana) I am posting my reply to your post in the September Check-In Thread here to be sure you see it. When a...

Who Do You Go To In Order to Start the Diagnosis P...

My mother is having bouts with what may be Alzheimers. Who do we go to in order to diagnose it? GP? Other?

Posted by An_247602

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September check-in

Happy September First, Everyone. What's happening over this Labor Day week-end? Anyone getting...

Posted by Judith L London, PhD

6 Replies | Reply | Watch This Discussion Report This | Share this:September check-in Happy September First, Everyone. What's happening over this Labor Day week-end? Anyone getting...

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Im losing my cool ...any support?

Hi all been on here before but could really use some advice right now...i am just really angry lately not at...

Posted by Anon_30608

Hi all been on here before but could really use some advice right now...i am just really angry lately not at my mom who has alzheimers early stages but at the pple around her that she is allowing to become involved in her life and personal buisness...i ask her to do simple things like be where she is so can meet her and she is outside smoking or off to the store while im left waiting....my mother goes running to a few friends in her complex about issues that she shouldnt and getting them involved ....so i get questioned as my role and my brothers roles as her caregivers...and i feel its none of their buisness...yet some truly care about her and want the best , it just seems to be a hassle for me....like her telling them her arms hurt and she cant remember the last time she went to a doctor so i get approached by them asking when has she last went and or why hasnt she seen a doc...? when she was actually there 2 wks ago and was treated.....she is annoying me by making my life harder than what it should b....taking care of her is not easy but this is too much....i feel like im constantly questioned as to her care and had one lady insist on putting her on gove help....cause she felt she needed it....hello! that should be our doing as her kids not a neighbor....i understand the neighbors care and gossip and some nosey but this is nuts....mymom for the most part takes her meds , dresses herself and functions okay for now ....her issue is eating she doesnt eat and we provide for her more than u know , home cooked meals that go uneaten so we take her out to eat and do what we can ....i take care of meds as her daughter and doc appt...her health ....but she lies about eating and recently took 2 cholesterol meds at the same time cause she moves stuff....so i raised my voice at her mom please stop doing that ....and her friend was there and was mad cause i shouldnt scold her..i said i need to be firm on somethings......should other pple besides caregivers , doctors or family be getting involved in her care adn her personal life? i say NO....but am i wrong to think she should still be independent if she isnt eating properly....her cholesterol is high and she is borderline diabetic cause of eating candy bars and ice crm....she has food in the fridge she eats what she wants....her freinds think she should get her independence taken away and go in a home .....we do all we can and spend all the time we have avail with her what more can we do???? i dont feel i should get quesitoned constantly about the care she recieves or what im doing for her? do i have a right to be upset? how can i stop her from going to others and getting them involved...? help?View Thread

Posted byAnon_30608

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Inappropriate medications for older people

From the People's Pharmacy newsletter that I get every week, here is an article about drugs that are...

Posted by cjh1203

1 Reply | Reply | Watch This Discussion Report This | Share this:Inappropriate medications for older people From the People's Pharmacy newsletter that I get every week, here is an article about drugs that are...

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Cocoa for better cognition

I receive the weekly People's Pharmacy newsletter, and thought some of you might be interested in this article...

Posted by cjh1203

8 Replies | Reply | Watch This Discussion Report This | Share this:Cocoa for better cognition I receive the weekly People's Pharmacy newsletter, and thought some of you might be interested in this article...

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Night-time mental disturbance

I don't know the best title for this. I got Ken up to go to the bathroom late at night before I went to...

Posted by 2010guardian

I don't know the best title for this. I got Ken up to go to the bathroom late at night before I went to bed. Sometimes I have to coax him to get him awake enough to get out of bed, including telling him how to move to get out of bed.

About 3 nights ago, I was going through this process, but he was in a deep sleep. I just kept working with him until he got on the side of the bed. He still couldn't open his eyes. He finally went to the bathroom. He came back and sat on the bed. I had to coax him to get him to lie down and he would instantly sit up in bed easier than any other time. He got up again and went to the bathroom and then walked through the house. After sitting down on the bed, he asked me, what I was trying to do to him. I said I'm trying to get you into the bed. Then coaxed him to lie down. Then up he came again and we reaped that a couple of times.

He then asked me where I was taking him. I said nowhere, just to bed. Then other questions: what is wrong? am I going to have to be like this the rest of my life? am I having a stroke? He talked in a low voice and demanded I answer his questions. I told him he was just confused and it was his Alzheimers. I then went over and tested his strength while he put his arms out. He thought I was trying to get him to go someplace and do something to him. Finally I got him to lie down and I put my arm around him so he could tell that I was beside him. He went to sleep.

The next morning I decided not to say anything and see what he would remember. He immediately came to me and said, " We had a problem last night. I thought you were trying to get rid of me so you could bring someone else in." This is so sad that he was hurting so bad and thought I was trying to get rid of him. I told him that anytime he is in a deep sleep, I'm not going to force him awake. I feel like this was a potentially dangerous situation. It makes me feel insecure and I don't know what else can happen in the night.
Have you heard of this before? I try not to think of it, but it's still there.

KathyView Thread

Posted by 2010guardian

10 Replies | Reply | Watch This Discussion Report This | Share this:Night-time mental disturbance I don't know the best title for this. I got Ken up to go to the bathroom late at night before I went to...

Night-time mental disturbance

I don't know the best title for this. I got Ken up to go to the bathroom late at night before I went to...

Posted by 2010guardian

I don't know the best title for this. I got Ken up to go to the bathroom late at night before I went to bed. Sometimes I have to coax him to get him awake enough to get out of bed, including telling him how to move to get out of bed.

About 3 nights ago, I was going through this process, but he was in a deep sleep. I just kept working with him until he got on the side of the bed. He still couldn't open his eyes. He finally went to the bathroom. He came back and sat on the bed. I had to coax him to get him to lie down and he would instantly sit up in bed easier than any other time. He got up again and went to the bathroom and then walked through the house. After sitting down on the bed, he asked me, what I was trying to do to him. I said I'm trying to get you into the bed. Then coaxed him to lie down. Then up he came again and we reaped that a couple of times.

He then asked me where I was taking him. I said nowhere, just to bed. Then other questions: what is wrong? am I going to have to be like this the rest of my life? am I having a stroke? He talked in a low voice and demanded I answer his questions. I told him he was just confused and it was his Alzheimers. I then went over and tested his strength while he put his arms out. He thought I was trying to get him to go someplace and do something to him. Finally I got him to lie down and I put my arm around him so he could tell that I was beside him. He went to sleep.

The next morning I decided not to say anything and see what he would remember. He immediately came to me and said, " We had a problem last night. I thought you were trying to get rid of me so you could bring someone else in." This is so sad that he was hurting so bad and thought I was trying to get rid of him. I told him that anytime he is in a deep sleep, I'm not going to force him awake. I feel like this was a potentially dangerous situation. It makes me feel insecure and I don't know what else can happen in the night.
Have you heard of this before? I try not to think of it, but it's still there.

KathyView Thread

Posted by 2010guardian

0 Replies | Reply | Watch This Discussion Report This | Share this:Night-time mental disturbance I don't know the best title for this. I got Ken up to go to the bathroom late at night before I went to...

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What to Do?

My grandmother (78) has been diagnosed with Alzheimers for a couple of years now. We noticed her memory...

Posted by Anon_169050

My grandmother (78) has been diagnosed with Alzheimers for a couple of years now. We noticed her memory loss for years but over the past couple of years she has thought that she was living an earlier time in her life. My grandfather is 78 and he has not dealt well with her illness. We've noticed my grandmother's hostility growing over the past year toward my grandfather and my mother whom my grandfather leans on a lot. It took a while for my three uncles to come to the realization that my grandmother truly is ill. My grandmother has been really hard on my grandfather and mother with her hostility (although I know it's the disease and not truly her). Two weeks ago my grandfather was admitted to the hospital. Well I have come to believe that he faked his symptoms just to get away from my grandmother. He was released from the hospital a week ago and my Mom has taken a leave from work to help take care of them. My mom spends every day with them and my uncles take turns spending nights. Today her hostility turned violent. She was hitting my grandfather and going to hit him with his walker. She thought that my Mom was some random woman that he was cheating on her with. He calls for help from my mother. She enters the room and my grandmother attacks her, punching her. My mom grabs the phone to call my uncle for help. My Mom later asks my grandfather if she was hitting him the night he was admitted to the hospital. He replied, 'It has been going on so long I can't remember.' My heart is broken for both of my grandparents. My question is, when you hit this point in the road what do you do? We tried to take care of them ourselves at there home. But after today I feel like we are incapable of caring for my grandmother.

Med wise the Aricept made my grandmother worse. And the doc prescribed a nerve medicine but we can't get her to take anything.View Thread

Posted byAnon_169050

8 Replies | Reply | Watch This Discussion Report This | Share this:What to Do? My grandmother (78) has been diagnosed with Alzheimers for a couple of years now. We noticed her memory...

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Exercise

Today was like a small miracle day. We went to the Wellness Center and Ken was open to exercising. The...

Posted by 2010guardian

4 Replies | Reply | Watch This Discussion Report This | Share this:Exercise Today was like a small miracle day. We went to the Wellness Center and Ken was open to exercising. The...

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August Check-In

Happy August, everyone. Life has been very busy for me but we are all doing OK. My dad fluctuates -...

Click on my user name or avatar picture to read my story.

Blessings, Dave

Posted by davedsel57

11 Replies | Reply | Watch This Discussion Report This | Share this:August Check-In Happy August, everyone. Life has been very busy for me but we are all doing OK. My dad fluctuates -...

Where does he go next?

My father is becoming progressively worse with senile dementia. We just moved him from an assisted living...

Posted by An_246895

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One Thing

Every 69 seconds someone develops Alzheimer's disease. Please share this video and one thing that you never...

Posted by An_246679

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One Thing

Every 69 seconds someone develops Alzheimer's disease. Please share this video and one thing that you never...

Posted by An_246679

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anyone heard of using this for alzheimers?

just read about phosphetydle serine for improving memory and awareness....a natural supplement i found on...

Posted by Anon_30608

3 Replies | Reply | Watch This Discussion Report This | Share this:anyone heard of using this for alzheimers? just read about phosphetydle serine for improving memory and awareness....a natural supplement i found on...

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gotta laugh- for caregivers...

I am my moms caregiver and wanted to share one of my moms many "gotta laugh" moments...firstly my mom loves...

Posted by Anon_30608

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New Discovery in Gene Mutation Study

I just read an article regarding research into gene mutations. Looks like the researchers have discovered a...

Posted by EricPete

1 Reply | Reply | Watch This Discussion Report This | Share this:New Discovery in Gene Mutation Study I just read an article regarding research into gene mutations. Looks like the researchers have discovered a...

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Alzheimer's news

Researchers have found a gene mutation that seems to protect people from cognitive decline and Alzheimer's....

Posted by cjh1203

2 Replies | Reply | Watch This Discussion Report This | Share this:Alzheimer's news Researchers have found a gene mutation that seems to protect people from cognitive decline and Alzheimer's....

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Incontinence Issues, hospital beds, and lifting pr...

This Alzheimer's Community has been helpful to me during the past year or so. Thank you all for being so kind...

Posted by 7grands

13 Replies | Reply | Watch This Discussion Report This | Share this:Incontinence Issues, hospital beds, and lifting procedures This Alzheimer's Community has been helpful to me during the past year or so. Thank you all for being so kind...

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New to it all

Hi, This is my first "community" or blog to be a part of. My Husband was recently diagnosed with...

Posted by nanabarbie5

6 Replies | Reply | Watch This Discussion Report This | Share this:New to it all Hi, This is my first "community" or blog to be a part of. My Husband was recently diagnosed with...

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Alzheimers possibole treatment?

Ok I guess I'll just ask these questions before I post the kind of proposed treatment. 1. What drugs or what...

Posted by Euphorics

Ok I guess I'll just ask these questions before I post the kind of proposed treatment.
1. What drugs or what could be used to help do this? I read that these drugs already exist. I know this is not a legitimate treatment, but could it possible be? I'm so desperate I don't really care what it takes. Just want some thoughts of whether this could actually work?

ANyways thank you so much for just reading or if you could possibly help it would mean everything

The hypothalamic-pituitary-adrenal (HPA) axis is a major system maintaining body homeostasis by regulating the neuroendocrine and sympathetic nervous systems as well modulating immune function. Recent work has shown that the complex dynamics of this system accommodate several stable steady states, one of which corresponds to the hypocortisol state observed in patients with chronic fatigue syndrome (CFS). At present these dynamics are not formally considered in the development of treatment strategies. Here we use model-based predictive control (MPC) methodology to estimate robust treatment courses for displacing the HPA axis from an abnormal hypocortisol steady state back to a healthy cortisol level. This approach was applied to a recent model of HPA axis dynamics incorporating glucocorticoid receptor kinetics. A candidate treatment that displays robust properties in the face of significant biological variability and measurement uncertainty requires that cortisol be further suppressed for a short period until adrenocorticotropic hormone levels exceed 30% of baseline. Treatment may then be discontinued, and the HPA axis will naturally progress to a stable attractor defined by normal hormone levels. Suppression of biologically available cortisol may be achieved through the use of binding proteins such as CBG and certain metabolizing enzymes, thus offering possible avenues for deployment in a clinical setting. Treatment strategies can therefore be designed that maximally exploit system dynamics to provide a robust response to treatment and ensure a positive outcome over a wide range of conditions. Perhaps most importantly, a treatment course involving further reduction in cortisol, even transient, is quite counterintuitive and challenges the conventional strategy of supplementing cortisol levels, an approach based on steady-state reasoning.

This is the site from which it came from and more information on the treatment here:
http://www.ploscompbiol.org/article/info%3Adoi%2F10.1371%2Fjournal.pcbi.1000273 View Thread

Posted by Euphorics

3 Replies | Reply | Watch This Discussion Report This | Share this:Alzheimers possibole treatment? Ok I guess I'll just ask these questions before I post the kind of proposed treatment. 1. What drugs or what...

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Alzheimers possibole treatment?

Ok I guess I'll just ask these questions before I post the kind of proposed treatment. 1. What drugs or what...

Posted by Euphorics

Ok I guess I'll just ask these questions before I post the kind of proposed treatment.
1. What drugs or what could be used to help do this? I read that these drugs already exist. I know this is not a legitimate treatment, but could it possible be? I'm so desperate I don't really care what it takes. Just want some thoughts of whether this could actually work?

ANyways thank you so much for just reading or if you could possibly help it would mean everything

The hypothalamic-pituitary-adrenal (HPA) axis is a major system maintaining body homeostasis by regulating the neuroendocrine and sympathetic nervous systems as well modulating immune function. Recent work has shown that the complex dynamics of this system accommodate several stable steady states, one of which corresponds to the hypocortisol state observed in patients with chronic fatigue syndrome (CFS). At present these dynamics are not formally considered in the development of treatment strategies. Here we use model-based predictive control (MPC) methodology to estimate robust treatment courses for displacing the HPA axis from an abnormal hypocortisol steady state back to a healthy cortisol level. This approach was applied to a recent model of HPA axis dynamics incorporating glucocorticoid receptor kinetics. A candidate treatment that displays robust properties in the face of significant biological variability and measurement uncertainty requires that cortisol be further suppressed for a short period until adrenocorticotropic hormone levels exceed 30% of baseline. Treatment may then be discontinued, and the HPA axis will naturally progress to a stable attractor defined by normal hormone levels. Suppression of biologically available cortisol may be achieved through the use of binding proteins such as CBG and certain metabolizing enzymes, thus offering possible avenues for deployment in a clinical setting. Treatment strategies can therefore be designed that maximally exploit system dynamics to provide a robust response to treatment and ensure a positive outcome over a wide range of conditions. Perhaps most importantly, a treatment course involving further reduction in cortisol, even transient, is quite counterintuitive and challenges the conventional strategy of supplementing cortisol levels, an approach based on steady-state reasoning.

This is the site from which it came from and more information on the treatment here:
http://www.ploscompbiol.org/article/info%3Adoi%2F10.1371%2Fjournal.pcbi.1000273 View Thread

Posted by Euphorics

1 Reply | Reply | Watch This Discussion Report This | Share this:Alzheimers possibole treatment? Ok I guess I'll just ask these questions before I post the kind of proposed treatment. 1. What drugs or what...

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July Check-In

Hello, everyone. Hard to believe it is already July. Our weather in Western New York has been sunny with...

Click on my user name or avatar picture to read my story.

Blessings, Dave

Posted by davedsel57

6 Replies | Reply | Watch This Discussion Report This | Share this:July Check-In Hello, everyone. Hard to believe it is already July. Our weather in Western New York has been sunny with...

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Chronic Kidney Disease/Alzheimers

My husband, Ken, has been diagnosed with Chronic Kidney Disease, upper end of Stage 3. This was so...

Posted by 2010guardian

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Chronic Kidney Disease/Alzheimers

My husband, Ken, has been diagnosed with Chronic Kidney Disease, upper end of Stage 3. This was so...

Posted by 2010guardian

6 Replies | Reply | Watch This Discussion Report This | Share this:Chronic Kidney Disease/Alzheimers My husband, Ken, has been diagnosed with Chronic Kidney Disease, upper end of Stage 3. This was so...

Chronic Kidney Disease/Alzheimers

My husband, Ken, has been diagnosed with Chronic Kidney Disease, upper end of Stage 3. This was so...

Posted by 2010guardian

0 Replies | Reply | Watch This Discussion Report This | Share this:Chronic Kidney Disease/Alzheimers My husband, Ken, has been diagnosed with Chronic Kidney Disease, upper end of Stage 3. This was so...