Today has been a good one. Our family had a cook-out tonight, so Labor Day will be a day of rest for us.
Ken is doing much better and seems stronger. He has been alert and verbal most of the time.
Last Tuesday, an old friend whom we haven't seen in a couple of years, came by. We had been looking forward to this visit. Tuesday morning Ken woke up feeling really draggy. He was mentally and physically slow and very sleepy. He slept until about 11:30 am when our friend got here. His mind was so slow, he could hardly talk. After lunch, he began talking a little more. When our friend left about 2:30 pm, Ken went back to sleep for the next 4 hours. I had to wake him. I'm wondering if this was psycological because of looking forward to the visit. He slept a lot the next day also, then worked out of it. His blood sugar was about 200. This is high for him.
I appreciate your information. Just for clarification: I have never read anyplace that caffeine feeds tumors. As a post breast cancer patient, my doctor gave me that information. My friend who was 'in the same boat' was told the same thing from her doctor. True or not, I drink mostly decaf., but I like the 'real thing' also
Ken and I have recently gone to the county fair to watch our grandson(learning disabilities) show his Boer goat which he got a blue ribbon and $1,000. (this making a long story short.) It was his first time of raising a goat and showing it. It was an awesome weekend. Ken did a great job in walking.View Thread
I have seen an email about John Hopkins and plastic, etc., but I also read about it on snopes.com I have not seen one about caffeine. I check out everything on snopes.com So many things are not true. My doctors told me that years ago. Other cancer patients have said the same thing. I won't see my oncologist for another year, I hope, but I'll try to remember to ask him. If you find any proof either way, I'm interested. Thanks for sharing.
Hi Judy, I suspected it was the caffene. Caffene feeds tumors, so due to my breast cancer and the fact that my body likes to grow tumors, I cut back on it. I have been drinking 1 or 2 small cups of caffene coffee after lunch. Also the tea has caffene. It does give me a pick up. I appreciate the information that you pass on to us. Thank You.
The NP finally got back from vacation. I had left the question about fenofibrate for her. She said she wants him to stay on it because it will help protect him from heart attack or stroke and pancreatic inflammation. She mentioned the kidney disease, but her nurse didn't give me that information. I'll ask the kidney NP next month. Thanks for the information.
I'm glad this has helped someone with the understanding of what is going on.
It must be very difficult for all of you and just think how much your grandmother is hurting. This is a double trauma for you all. Hearing other peoples stories helped me realize that Ken's dad had alzheimers and we didn't have a clue.
For yourself, read the information on Web MD about brain food and things to do to keep your mind active and alert. I was surprised that one of the biggest things is exercise. I am concerned about my children. Soooo, take care of yourself.
Your mother's heart must be breaking to be treated so badly by her mother. It's good that she has outside help.
It seems that this attack of paranoia came from my waking my husband from a deep sleep. He has been taking 2 benedryl each night for sleep and I had forgotten when he told me that he is really in a deep sleep for the first few hours due to the pills. The last two nights I gave him only one benedryl and he lays awake for a long, long time. I asked him if he thought it was good for him to be in a deep sleep and he said, "No!" So he will get only one pill from now on. I'm also thinking of Melatonin.
I know your mother needs your support. God Bless you all.
I'm not sure what a 'memory care clinic expert' is. He was diagnosed by a psychiatrist who have him verbal tests.
Ken usually remembers things that happen at night. Sometimes he won't mention it for 2 or 3 days, but lately, he tells me the next day. Do you mean that a person with AD does not remember what he says or does the next morning?
I'm sure Ken won't want a urinal. He usually gets up with no problem. The bathroom is a few feet away from him.
I read about Lewy body dementia. It seems very strange. In the past, Ken has acted out his dreams by hitting, kicking, yelling. When he did hit me, he didn't have any power behind the punch. It just woke me. I could usually tell when it was coming on by his jerking and twitching. The next morning he would tell me what he was doing, or maybe I was doing something in his dream. We discussed this with his doctor and he said there was nothing that can be done about it. Ken has not acted out his dreams since he retired and doesn't live a stressful life. Also if something really worried him, he may carry that to his dream and act it out.
I would be afraid of taking him off the Aricept and Naminda. He is doing so well with it. Thanks for the information. I will keep reading about it and consider talking to the doctor about it.