Hi Judy, hope you are well. The holidays are so difficult for patients and caregivers, and your thoughts and kind words make life a little easier. Thank you so much.
Doug is feeling alot better but still has a bit of congestion. Hospice recommended a humidifier which I purchased. The nursing home said no I said yes. The humidifier is now in operation and it has helped!
He is eating better, though last night he was in his "terrible twos" and was throwing food and getting angry. But with soft talk and a promise of a Hershey bar we managed to get things done. This sundowners part is difficult on the staff, especially if there are several residents who have it. Several of us who have family there for AZ have banded together and watch each other's family member. This helps when sundowners syndrome takes over. It's like a full moon thing - it seems to be especially bad on everyone at the same time. Don't know if there has been a study on why a flare-up seems to happen within a group. It would be interesting to know.
Carol, the hospice team meeting was very enlightening....at least it made me feel better. The answer to the prn nurse's response of antibiotics was per the standards of this unit. Antibiotics are to used to treat an infection for the comfort of the patient but are discontinued if the patient shows no response. The premise being that the antibiotics will make sleeping and eating easier, but if the patient does not respond it would indicate the need for final stage comfort measures. It is still a choice that needs to be made by the caregiver but knowing what the choices are and why make the decision easier.
I hope this helps if someone else is facing this decision.
Hi Carol, I have been blessed with a great friend who has been a wonderful shoulder to cry on, laugh with and just be there. Unfortunately they have sold their home and moving back to Florida. Am sure we will keep the phone lines burning!
I signed on to this website a couple of years ago but was totally ignored, all the members then seemed to have a connection and didn't have time for a newbie. Glad to see that no longer exists! So many caregivers are struggling and need a kind word of support.
I will be glad to pass on the info from hospice after our meeting. Thanks, LynnView Thread
Carol, thanks for your input. The response from Hospice has certainly thrown me for a loop. The nursing home suggested a Z-Pack and if he doesn't respond to just give comfort. The director of nursing was surprised at the hospice recommendation. In light of the fact that one resident was taken to the hospital 2 nights ago with pneumonia and died the next morning I would have thought the q & a at the morning hospice meeting would have pinpointed a proper response. I will meet with hospice again tomorrow and ask why they recommend antibiotics.
My husband has end stage ALZ and it appears he is beginning to show symptoms of pneumonia. His physician had said getting pneumonia is the best thing to happen to an ALZ patient and he recommended no intervention. Hospice gives me an opposing opinion with need for antibiotics, etc.
Which is it? It's hard enough without receiving 2 opposing opinions.