My husband has Lewy Body Dementia. You can find excellent information at lbda.org, the website for the Lewy Body Dementia Association. We also have a members-only online support group for spouses of people with LBD. You can request membership at http://groups.yahoo.com/group/LBD_caringspouses/.
LBD is often undiagnosed and misdiagnosed, so you need to find a geriatrician or neurologist who is very familiar with LBD. There are several markers for LBD, but not every person will have them all: fluctuating cognition, gait and balance problems, hallucinations, delusions, neuroleptic sensitivity, REM sleep disturbances, compromised autonomic functions.
We also have an extensive set of resources on the Caring Spouses site with articles and links to websites about LBD.
The opinions expressed in WebMD Communities are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. Communities are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service or treatment.
Do not consider Communities as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.