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Staff of the facility, including administrators, doctors, nurses, and even maintenance workers, observe patients carefully and take their cues from the patients rather than following the fairly narrow regimen of a standard memory-care facility. By watching the patients, they are often able to get to the source of anxiety, agitation or even violence and address that, rather than going the standard drug route. They have been able to get almost all of their patients off anti-psychotic drugs and reduced their meds significantly overall.
One illustration given was the case of a man who became very angry and agitated when he was being bathed or dressed. Someone noticed that he liked to watch TV during those times, but people kept getting between him and the TV, blocking his view. Once he was given a clear view of the TV, he was fine. In a normal facility, he would have probably been labeled uncooperative or difficult and given medication for his behavior.
They find the things that make patients happy -- for instance, one man loved being told he was handsome -- and the entire staff will tailor their behavior toward those patients based on that.
They also do not have a schedule for anything. Staff members do not have to have patients dressed or bathed by a certain time in the morning and, as long as basic hygiene is maintained, staff are free to take their patients' wishes as guidance. Patients are also allowed to eat at any time of the day or night and snacks are passed like hors d'oeuvres several times a day, since dementia patients often forget to eat and end up losing a lot of weight.
The goal of this philosophy of care is to keep the patient happy, rather than trying to regulate their behavior to keep them manageable. Keeping them happy seems to lead to much less agitation and violence.
Other facilities are now following The Beatitudes' model. Think what a difference it could make for the families of dementia patients, as well as the patients themselves, to see happiness as the primary consideration in care.
I hope you'll all get to read the article.
Carol
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I would recommend contacting your local Alzheimer's Association and discussing this with someone there. Denial is such a common thing in cases like this -- I'm sure they have dealt with this and probably have some good suggestions for you.
Best of luck. I hope you're able to get your husband to face the reality of his mother's condition.
CarolView Thread

It's great to see you back! I've missed you and it was a nice surprise to see your post just now.
I'm so glad your father handled the move well. He seems to have done that with every move, which is unusual and fortunate.
Take care. Look forward to hearing from you again.
CarolView Thread

The agitation and aggressiveness your father is exhibiting seem to be pretty common in Alzheimer's patients, but very difficult to treat. I know it's also very difficult for you to see your father in that state.
Agitation is listed as one of the possible side effects of Zoloft, but that doesn't necessarily mean that it's contributing to the problems your father is having. Seroquel actually is not recommended for dementia patients, but sometimes it's the only medication that can help combat aggressiveness. It can be a case of deciding if the benefits outweigh the risks.
I imagine your father is taking a lot of medications. You might take a list of them to your pharmacist and see if he/she thinks there might be adverse interactions or reactions making your father's behavior worse, and if there are other drugs that might work better.
I'm sorry I don't have any better suggestions. It may just be that the doctor needs to up the dosages of the Zoloft and/or Seroquel, or try similar drugs to see if they work better.
Best wishes.
CarolView Thread

For someone with Alzheimer's, anesthesia can make it worse. Here's one article about the subject, and here's another .
Only you and your family can make the decision, of course, but I tend to agree that, especially given your mother's age, surgery might not be the best choice. Even if the surgery were to save her life, she might end up with a worse quality of life than she has now.
It's a tough decision to have to make. Maybe you could make an appointment with someone at your local Alzheimer's Association to discuss the situation, or talk to a doctor who specializes in Alzheimer's.
Best of luck to all of you. I'm sorry you're in this sad situation.
CarolView Thread

It sounds as though your girlfriend's mother's Alzheimer's is fairly advanced. Here's a brief Web MD article about the stages of Alzheimer's, and another one from the Alzheimer's Association.
Is your girlfriend her only caregiver? It's a tough, tough job and I hope that the whole family is helping with her care.
It's nice of you to be concerned about your girlfriend's grandmother. You might both find an Alzheimer's Association support group to be very helpful; there are local ones in many areas.
Please feel free to post here any time, with questions or concerns. This board isn't very active right now, but someone will always respond to you.
Best wishes.
CarolView Thread

I'm really sorry about your aunt.
My uncle developed pneumonia about seven years after being diagnosed with Alzheimer's and, while he didn't have the walking and swallowing problems your aunt is having, he did go quickly downhill and didn't live much longer.
Has her doctor offered any information? Is she taking any new medications that could cause her to be over-drugged?
Otherwise, you probably are looking at the last stages of her illness and you might want to talk to her doctor about getting hospice care for her. Here is a good article about late-stage Alzheimer's.
Hospice care is a wonderful thing for both the patient and the family, and they make the last weeks or months so much easier for everyone. If her doctor thinks she has a life expectancy of less than six months, she should be eligible for hospice care, no matter where she is (some facilities will tell you that hospice is not available there, but that is not the case; hospice workers can care for a patient pretty much anywhere).
This is such a difficult thing for you and your family, I know. I hope there is plenty of love and support for all of you.
Best wishes,
CarolView Thread

I'm glad your cataract surgery has been such a big success! You seem so young to be having trouble with cataracts.
My mom had cataract surgery several years ago. She had always complained about how dim the kitchen was and was planning to have more recessed lighting installed. She couldn't figure out why nobody else thought it was too dark. Then she had her cataracts removed and she couldn't believe how bright it actually was!
It's nice to see you here again, and I'm glad your new, improved eyes have made your world brighter!
CarolView Thread

Were you told what specific type of dementia she has? If it's Alzheimer's, there are medications that can help slow the progress of the disease. If it's another type of dementia, there may be other types of treatment available (although no cures that I know of, unfortunately).
You might want to check out the National Ataxia Foundation's site for information about that part of her diagnosis.
If your mother has Alzheimer's, I'm sure there are support groups in Houston, and they could be a great help to you and your father. Here is The Alzheimer's Association site .
If she has a different type of dementia, you'll be able to find web sites devoted that that, also.
What are some of your mother's symptoms? Have they been developing over a period of time? Do you think she understands her diagnosis?
I wish I could offer you some words of comfort, but I know that there isn't a lot of comfort to be had for you right now.
This community has been pretty quiet lately, but I'm normally here every day and I'll always respond to you. I'm not a medical professional, but will offer any help any support I can.
Best wishes.
CarolView Thread

I'm terribly sorry about your wife. Alzheimer's is awful at any age, but especially heartbreaking in someone so young.
Has she been examined by a doctor to try to determine the cause of her cognitive problems? If she has Alzheimer's, there are drugs that can slow the progression of the disease in a lot of people. If it's something else, there may be other treatments available. The most important thing is to get a diagnosis if you don't have one.
The poster you responded to hasn't been here for almost a year, and the posts aren't about his mother. He just pasted a link from another web site; the posts were by someone on that site. If you click on the link in one of his posts, you may be able to read more current posts by those community members.
This board hasn't been very active recently, but someone will always respond to your questions, comments, frustrations, vents.. whatever you might want to talk about.
Best wishes to you and your wife.
CarolView Thread
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