Absolutely! Almost every night I am awakened by very painful leg/foot/ankle cramps. I've done a lot of reading and mine are a odd ball side effect of Brovana, which is a long acting bronchodialator. I can't use inhalers and must use the neb twice a day.I have found that increasing magnesium has helped some, but doesn't totally get rid of them. Increasing potassium didn't help much and in fact, the longer I took potassium, the worse they got. Now that I've quit taking potassium, they are some better but I can't even eat a banana without the getting worse again. Gotta love asthma meds!View Thread
Welcome to the community-you will find lots of support here. I was diagnosed with severe, uncontrolled, non-allergic asthma 2 years ago. Like you, it hit hard because I have never been a sickly person. I tried all of the "traditional" asthma meds (Advair, symbacort, dulera) and had allergic reactions to them all. Needless to say, I use a neb of Brovana twice a day and will for the rest of my life. I also take meds for acid reflux. Until a year ago, inhalers worked great, but they suddenly stopped working. The med in them still works, but not in inhaler form. I have to carry a nebulizer with me always now. I was one test away from becoming a black belt in Korean Karate and had to quit because I couldn't stay in class long enough due to asthma attacks. Because mine is non-allergic (all alergy testing came back as no reaction), I never know what is going to hit me and I have very little warning about an impending attack. I have managed (through daily diary) to determine weather changes hit me hard and strong smells of any kind. It is hard to deal with. '
No one in my family has issues either, so they don't understand how difficult it is. It takes me longer to get ready to go anywhere because I have to use my neb-not just grab an inhaler. It does get better and you will learn that you can do pretty much anything you want, with some pre-planning and caution. I'm sure your specialist will be able to help you with this. Hang in there-it does get better.View Thread
I too don't wheeze and normally have normal o2 sats. When I'm REALLY bad, mine drop fast and end up around 92, but by then, I'm doing really badly. I don't know what it is with med personnel that think it's all in our heads. I'm on a new job and can't get off to go to my doc, so I saw one of the ones I work for (I manage a med. practice) and because my lungs were clear and I wasn't wheezing, he thought I just had a cold. Guess what-I was running 101 fever and couldn't breathe worth anything. I use a neb twice a day anyway and and the highest dose of inhaled steriods I can. I KNOW when I need a steroid shot and I know the symptoms that need an antibiotic-what I don't need to be told is that I don't know my own body. I wasn't too happy. I ended up calling my asthma doc, explaining to them that I couldn't come in and she called me in antibiotics and added duoneb 3 times a day. Feeling some better but got a ways to go.View Thread
I've posted here a few times, but just a quick about me. I have adult onset(less than 2 years now), non-allergic severe persistant asthma. I've been evaluated by a pulmonologist and see an allergist/asthma specialist for care. She has seen me for about a year. Tuesday, on my regular visit, things were REALLY bad-spiro in the dumps as usual and having a really hard time. She told me she's leaving to move back home and has assigned me to a new doc that is associated with the lung research center here at UAB. Because of some recent problems, she added back some of the meds I've been off of for over a year and flatly told me that she was out of options and if the new doc didn't have any, my only and last home was Jewish National in Denver. She actually has nick named me her "disaster patient" because of the condition of my lungs and difficulty with meds. She was joking and I laughed too, but it still hurt to be called that.
I had allergic reactions to TONS of meds including all of the combo meds, so I have to use a neb. About 6 months ago, all of my rescue inhalers quit working on me, so now I carry a neb everywhere. Thankfully, it is still working. Going to Jewish isn't an option. They are out of network for me and the expenses would be huge.
As if that's not enough, a lady that works for me has recently starting giving me a hard time. Every time I have to use my neb, she starts yelling "see anxiety!" Yes, I believe stress does play a roll, and I've been under a lot, but this has been going on for over a year and steadily gotten worse. I average using me albuteral neb 3-3 times a week EVERY week. I feel self conscious enough when I have to use my neb, and now to have this added makes me feel worse. She has asthma also, but it's controlled with 1 puff a day of Advair, so she doesn't understand what it's like. I'm glad her's is controlled, but a little consideration would be nice.
Guess I just needed to vent a little. I absolutely feel like a freak right now and feel like there is no one that can help me with the stupid type of asthma. Thanks for listening. LynnView Thread
Thank you all for your reply. I've been fortunate and have never had to go to the ER with an asthma attack. I am an otherwise healthy 47 year old that has adult onset-non intrensic, severe persistant, uncontrolled asthma(geeze, that's a mouth full!) Having said that, I also have a HUGE list of meds that I'm allergic to-including all of the combo meds for asthma and yes, they were allergic reactions and not side effects of the meds. I've only had asthma for a little less than 2 years and it's been tough going. I am able to use Brovana neb (LABA) along with QVAR for fairly good control. It is a work in progress and always will be.
Recently, my albuteral inhalers quit working as rescue inhalers. They will keep the attack from getting worse, but won't make it any better. I've had to resort to carrying a neb all the time (thank goodness for handheld units). Because it is non-allergic asthma, I never know when it's going to hit and have no idea what flares it off. I have been allergy tested (both skin and blood) and have no allergies. That has only led to more frustration.
I am working with an asthma specialist and do have an action plan. It will be updated at my Oct. appointment to reflect the neb instead of inhalers. I check my peak flow's twice a day and generally know where the limits are before I have problems and definitely what the limits are that I need to see the doc.
I am constantly exposed to whatever is going around-not only do I manage a family med. practice, I also work front desk. It's amazing how many people will sign in and cough or sneeze right in your face! I get flu shots yearly and intend to get pneumonia this year, as my asthma has been worse than usual. I exercise regularly (active in martial arts) and am able to work outside in my yard pushing a mower for around 3 hrs when the yard needs it! All in all, my life goes on and I'm grateful for that.
As long as I don't have an attack, I'm OK-when they hit, they go from 1-2 symptoms to full blown within 5 min. I have cut my LABA back to once daily from twice and I find I have no time to "head off" an attack. Once those first few symptoms appear, it's already too late to head it off. By then, it's a matter of hitting the neb NOW. I do keep albuteral and atrovent for my nebs and have been instructed when to use them, so at least I have that. I also keep oral steroids to use as a last resort. Because of the type that I have, my allergist/immunologist keeps me armed with everything I might need.
I have a really stupid question for anyone that has had to go to the ER with an asthma attack-what exactly do they give you? I got hit REALLY bad last night after multiple triggers hit at the same time. I should have gone to the ER, but it was super late. I didn't know what they'd do there, so I hit an albuteral neb. It took 2 to get it settled back down and of course, I shook the rest of the night. What else could the ER have done?View Thread
Thanks Mattie-do you use a full 2ml vial every time or what? I have a follow up with my asthma doc next week and intend to discuss it with her. Something has changed and it's got to give-I use my inhaler and get no relief at all. thanks LynnView Thread
Does anyone use a hand held/mini neb instead of an albuteral inhaler? My inhalers have almost quit working, but an albuteral neb works great as a rescue. If anyone does use a neb, do you use a small one or what? LynnView Thread
I have severe uncontrolled non-allergic asthma and keep 3 different "flavors" of albuteral inhalers with me all of the time. My body is strange-sometimes Xopenex will work great, other times not at all so I hit the Provental-same with it so I fall back to Ventolin. The ventolin has started flaring up my reflux so I use it as a last resort. Here's my problem-all 3 of them arent' working great any more. I frequently have to use one, wait to see that it isn't going to have any effect AT ALL, hit another one and it has minimal effect. I absolutely don't know what's left! I don't want to have to carry a neb with me all of the time, although albuteral neb works for me every time.
The other problem is the albuteral is now causing me to have migraines. Those were under control and I only had a few over the past 2 years. Now, every time I use albuteral, I get a migraine. Does anyone have any suggestions? I see my doc in 2 weeks so we'll see what she says.View Thread
Has anyone else had problems with Dulera and/or ventolin flaring up your reflux? I had severe reactions to both Advair and Symbacort, but my immunologist wanted to try me on Dulera and see if I could get off the neb twice a day and the separate inhaled steroid. It worked great, but the side effects about got me. I had TERRIBLE chest pain and major acid reflux. I take omeprazole for vapor reflux that affects my asthma, but I had full blown acid reflux for 3 weeks. Once I realized that the reflux was a side effect of dulera, I quit taking it and went back to my neb/steriod, but the reflux problems lasted a full 3 weeks-three times as long as I was on the meds to begin with!
Last week I had to use my ventolin for the first time in months (I normally use xopenenx) and darn if it didn't flair up the reflux! Has anyone else had these problems?View Thread