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Thursday I was back in the hospital. Friday, I found out that I was approved for Xolaire. Though a little late as for as keeping me out of the hospital, I am thankful that I was approved. Most importantly, with the love and care of my new allergist I have a new lung specialist who is working very hard to help me as well. For the first time in a long time I feel hopeful with my new medical team. They both have expressed that I was a complicated case but they were up to the battle. So, I thank God for placing them in my life. This support group has been a big help as well. No matter how bad we may feel that we have it, there is always someone who has it worst. This sounding board keeps me grounded. I am a little concern about starting the Xolaire but I am hoping for the best.
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Cwille,
I am now in the same position. Currently, taking prednisone (now down from 40 to 20) and I have gain a total of 24 lbs. My pulmonologist doesn't seem to be concern about the weight, yet my endocrinologist is very concern because of the diabetes, (result of the prednisone), high-blood pressure (result of asthma medication). Most importantly, I do not like myself with the extra weight. I recently, signed up for Weight Watchers Online, but have yet to commit to it. Not sure if it will work because the weight gain is the result of prednisone not that I eat badly. So, yes I understand what you are going through. I like to suggest, that you take one day at a time. I find that when I focus on getting through one day at a time I tend to stay on course. I pray each night that I awake each morning with the mindset I will have a great day, exercise, eat the food that I prepared, and try to remain positive. It looks like you are on the right track, so please keep pressing forward. You have to allow your body to re-adjusts to accept the lifestyle changes that it has to come to reckon with. If your are heart is in it, YOU CAN DO THIS!
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Thank you for your post. Right after my first post to the site, I was hospitalized. I also suffer with the cough as well. The cough is so bad it is nothing for me to lose 10lbs in a week. To only put it back on again with the high dosage of steroids. I have scheduled an appointment with a new allergist with hopes of getting an alternative method of treating the asthma. While I was in the hospital, I was told that my phosphorus level was high. I'm so afraid that the steroids are now affecting my kidneys. The reason that I cannot sleep is that I have to sit-up. This is not a comfortable position for me. In addition, I have to get up throughout the night for breathing treatments (every 4 hours).
Again, I really appreciate your posting because it makes a difference communicating with someone that understands.
Sleepless
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