First of all there is NO cure for asthma, things might get better for a period of time but you still, unfortunately, have the disease!
Take the inhalers especially if your Dr has advised you to. Asthma is nothing to fool around with. Not to scare you but there are lots of asthmatics who die every year by not having their asthma under control.
I personally would NEVER not take my meds. I've had a number of visits to the ICU and it's not something that I want to do again and if taking my meds regularly is what keeps my asthma under control then that's exactly what I will do. I also had a number of years where I had very few attacks but after a few years of being 'good' things started getting worse.
Please take your meds and don't become a statistic.View Thread
Myself and both of my grand kids have asthma. My grand son had cough variant asthma when he was younger, he's 10 now and his asthma flares more when he gets sick now.
He used to cough until he vomited and couldn't keep any food down sometimes lasting weeks at a time. It's sooooo very hard especially when they don't understand. My heart goes out to you!
We all have food allergies. I have more than the kids thank god. They both have allergies to nuts which is hard at school!
I hope your little ones find some relief. Reading labels is key to food allergies and we make a lot of things at home instead of buying processed foods as it's just easier that way and so much safer!!!View Thread
My feeling is now that it just wasn't meant to be! Although I'm still really upset, if that makes sense.
My last cold/infection was late March and my lungs still are not good it seems like it's taking longer and longer to recover and I've put off taking prednisone waiting to have good news about BT! I now woke up today with a very sore throat and a cough so here we go again.
I see my regular GP tomorrow for my Xolair injections, I get 4 injections a month, and I'm going to have a heart to heart with her about BT and see if she can do anything for me. I'm still waiting for a call back from the hospital about not being accepted and if I don't hear from them tomorrow I'll be calling them next week to voice my opinion and thoughts.
It frustrates me that someone who has never suffered from this disease can tell you how well controlled your asthma is when they haven't taken one of your breaths!!! I don't think you can fully understand this disease unless you've experienced the tightness and feeling of despair when you can't breath!
I had the methalcholine test today and the criteria to have BT my lung function had to be down by 20% and MY lung function was down 19%!!
So I don't think this procedure is in the cards for me unfortunately. I find it amazing when the tech said it me 'we'll at least your numbers show that your asthma us under control'! WHAT!! How can a 1% difference mean that your asthma is either under control or not under control!!
Very disappointing news!! The tech is talking to the Dr on Fri and will give me a call next week. But the criteria is set and as far as he's concerned there is no deviation from the required 20%!
Maybe I should stop my Xolair and see what happens. Why keep injecting $40,000 worth of drugs each year plus inhalers and prednisone if this procedure could help eliminate some of my drug costs!! UGHView Thread
Thanks for putting your 2 cents in. I really appreciate it. I've been similar to you for years. 8 years ago, before going on Xolair, I was contemplating an early or medical retirement. Xolair has helped me get off of a lot of my drugs but I'm still having problems and more this last 8 months or so. The specialist is concern that I'm spiralling out of control!
It sounds like you've not had a good experience with this procedure and I admire you for continuing! Have you found some relief since the second procedure?
I hope your final procedure goes better than the others and that you can have a more normal life. Please keep us updated on how you're doing.View Thread