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Reply: How long to really feel pred?

Yep Sue is right...this is burst TWO for me...typically that makes things change quickly...

Vive Bene, Spesso L'Amore, Di Risata Molto (live well, love much, laugh often)

Posted by abbymay16

Yep Sue is right...this is burst TWO for me...typically that makes things change quickly especially considering I'd only been off 8 days and didn't wait for things to continue to get worse.PLus I was still on the double inhaled steroids so my levels were high.

On a first burst (and I have to wonder if 9 days- which is what I think you said you got is going to be enough to really turn this around) Pred loosens up things and we've always had a saying here on the boards about things having to get worse before you get better. Sometimes I've been on a week before I start to feel like there is improvement--and I know its hard to say be patient since you feel sooooooo bad.

I understand how tired you are with all this as I am in the same leaky boat. I've had this flare since Christmas eve--feels forever since I felt halfway decent. I am tired and crabby and I HURT---yesterday we had strong barometric pressure changes which flared the rib pain and I hurt so bad I'd have been happy to throw myself under the bus to make the pain stop...and pain meds did nothing. It hurt to breathe let alone move.

My biggest thought is until you get answers on this most recent set of testing they did, perhaps you need a slightly longer course of pred as it seems you start to get better and then decline again, maybe they are just beating the flare down but not out--this can be an issue for me and we have found HARD and fast and for a longer period of pred works better than shorter courses yet repeats?? Just a thought.

I feel your pain and your frustration..I really do. Right now I am just exhausted, feel like doing nothing and the emotional roller coaster is really hitting hard. I've never had this much of an issue with pred side effects, except for the insomnia, while ON the darn stuff. While the cough is vastly improved now and I just get a little hacking after the nebs, I feel wrung out both physically and emotionally....at the end of my rope so to speak.

Just remember you are not alone...we all know how you feel and its hard to suck it up and remember better days are ahead when you feel this bad.

Gentle hugs from my leaky boat to yours!!!

MattieView Thread

Vive Bene, Spesso L'Amore, Di Risata Molto (live well, love much, laugh often)

Posted byabbymay16

10 Replies | Reply | Watch This DiscussionReport This| Share this:How long to really feel pred? Yep Sue is right...this is burst TWO for me...typically that makes things change quickly...

Reply: STILL COUGHING--grrr

Today was educate the doctor on cough variant asthma 101...he was in a listening mood and...

Vive Bene, Spesso L'Amore, Di Risata Molto (live well, love much, laugh often)

Posted by abbymay16

14 Replies | Reply | Watch This DiscussionReport This| Share this:STILL COUGHING--grrr Today was educate the doctor on cough variant asthma 101...he was in a listening mood and...

Reply: STILL COUGHING--grrr

Wow about 10 hours since I took the 40mg of pred and I have coughed only rarely!!...

Vive Bene, Spesso L'Amore, Di Risata Molto (live well, love much, laugh often)

Posted by abbymay16

14 Replies | Reply | Watch This DiscussionReport This| Share this:STILL COUGHING--grrr Wow about 10 hours since I took the 40mg of pred and I have coughed only rarely!!...

Reply: STILL COUGHING--grrr

Sue, Same day appointments here with any of our docs are all but unheard of...they just...

Vive Bene, Spesso L'Amore, Di Risata Molto (live well, love much, laugh often)

Posted by abbymay16

Sue,

Same day appointments here with any of our docs are all but unheard of...they just seem to practice a different type of medicine here.

I scored 16 more days of pred!!! woohoo!!

My doctor has never seen my cough variant asthma in full swing so he was nearly in PANIC mode when he called. (they just do not get much severe asthma here so they are not asthma saavy) Worried because the cough hadn't cleared and for whatever wacky reason wanting to change most of my meds. I had to talk the poor guy down off the ledge when he called.

I explained that those of us with cough variant asthma are trickier to treat when the cough sets in. Its not uncommon to need two bursts of pred. Plus this URI has left folks w/o asthma coughing for weeks on end. Even the pharmacy staff was surprised at his shock over the 2nd round of pred. I am not overly concerned as I have seen my asthma behave this way...usually a 2nd round of pred kicks it back under control.

He wanted to change my BP med as ace inhibitors can cause a dry cough, which I knew . But as I pointed out its not just a dry hacky asthma cough there was a WHEEZE present which indicates respiratory issues and I am coming off a bout of bronchitis.The asthma cough has a very specific feel to it. IF this burst of pred doesn't kick the cough (and its already working on ONE 40mg dose) then I'd consider changing meds but clearly logic says not just yet.

He did do an chest xray which was fine...better to be sure we are not missing anything. Even the xray tech said he could hear the congestion when I took a deep breath....he says wow that's an asthmatic bronchitis congestion I hear...YEP It is.

So I see the doc tomorrow and we will hash out the change the BP med...I just don't think that is the issue. But I took the first 40mg dose of pred today and the cough is 100% better already, so that leads me to believe I am on the right track??

Not thrilled about more pred but when you need it you need!!

I generally don't take the cough meds as the pred seems to work better but on occasion I will take some delysm so I can sleep. But then on this high dose pred sleep will be MIA for a good 7-8 days...isn't that something to look forward to. NOT

Will be intersting to see the discussion I have with the doc tomorrow....need to educate the dear sweet dude in the ways of CVasthma.

MattieView Thread

Vive Bene, Spesso L'Amore, Di Risata Molto (live well, love much, laugh often)

Posted byabbymay16

14 Replies | Reply | Watch This DiscussionReport This| Share this:STILL COUGHING--grrr Sue, Same day appointments here with any of our docs are all but unheard of...they just...

STILL COUGHING--grrr

Yeah isn't this fun...week five but who's counting. Been off the pred 8 days and the...

Vive Bene, Spesso L'Amore, Di Risata Molto

(live well, love much, laugh often)

Posted by abbymay16

14 Replies | Reply | Watch This DiscussionReport This| Share this:STILL COUGHING--grrr Yeah isn't this fun...week five but who's counting. Been off the pred 8 days and the...

Coughing-GRRRRRR

OK a girl can only be so patient...its been nearly 4 weeks of coughing and there seems no...

Vive Bene, Spesso L'Amore, Di Risata Molto

(live well, love much, laugh often)

Posted by abbymay16

4 Replies | Reply | Watch This DiscussionReport This| Share this:Coughing-GRRRRRR OK a girl can only be so patient...its been nearly 4 weeks of coughing and there seems no...

Reply: Getting short of breath

Do you have a rescue/albuterol inhaler. If so you would use it in this type of situation....

Vive Bene, Spesso L'Amore, Di Risata Molto (live well, love much, laugh often)

Posted by abbymay16

6 Replies | Reply | Watch This DiscussionReport This| Share this:Getting short of breath Do you have a rescue/albuterol inhaler. If so you would use it in this type of situation....

Reply: They stopped making my asthma medicine

Sonya is correct about the albuterol inhalers only being available in name brands due to...

Vive Bene, Spesso L'Amore, Di Risata Molto (live well, love much, laugh often)

Posted by abbymay16

4 Replies | Reply | Watch This DiscussionReport This| Share this:They stopped making my asthma medicine Sonya is correct about the albuterol inhalers only being available in name brands due to...

Pred Free....wooohoo!

Finally I am off the evil nasty stuff. Aside from a brutal couple of days after I took...

Vive Bene, Spesso L'Amore, Di Risata Molto

(live well, love much, laugh often)

Posted by abbymay16

5 Replies | Reply | Watch This DiscussionReport This| Share this:Pred Free....wooohoo! Finally I am off the evil nasty stuff. Aside from a brutal couple of days after I took...

Reply: Sinus infection?

Sonya, Something you might try is to hot pack your sinus's.....sometimes that gets...

Vive Bene, Spesso L'Amore, Di Risata Molto (live well, love much, laugh often)

Posted by abbymay16

12 Replies | Reply | Watch This DiscussionReport This| Share this:Sinus infection? Sonya, Something you might try is to hot pack your sinus's.....sometimes that gets...

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