Thanks Joy, I'll add to my list of questions. My spine specialist will not communicate with me, so I think I'm going back to the Neurosurgeon, although we both agree no more surgery for now. But at last he's prescribe the meds. The spine specialist and my general doc won't. And when I went to a pain specialist, they overdosed me where I was a zombie.View Thread
Wow Joy, in here was the first I'm heard about the pain pump, and after what you've related, I doubt I'd consider that. Oral medications from others tell me work, but I mentally couldn't handle the strong stuff and took myself off (that is anything stronger than the Norco and I still hate taking it). But I log every med when I take it, the amount of Tylenol I'm getting to save my liver and take with some kind of food to preserve my stomach.
I hate the trial you had, to be optimistic and then have that happen is such a slap in the face. I've been referring to these spinal cuttings as a 6 month band aid, but last one didn't work and this one has 3x the normal pain for 17 days and now I'm back to normal pain, and after 3 weeks, still no relief.
I have to research more, others have been telling me massage, acupuncture, etc., but I've got a lot of research to do. Obviously I'm beginning to see a trend, it seems to be different for everyone. I've maxed out my meds 3 days in a row and headaches are worse, I'm so tense I can't relax, and work just to try to pull myself out of the pain....works for a bit, then I crash.
Many must have received this same message this a.m. from WEB MD, but anything gives me hope " FDA OKs Existing Drug as New Pain Treatment Cymbalta, a drug used to treat depression, anxiety, fibromyalgia, and diabetic neuropathy, has been approved by the FDA for a new use -- to treat chronic musculoskeletal pain. This type of pain is commonly caused by osteoarthritis and chronic low back pain. "
Now I wish it addressed upper cervical pain, but for many maybe this is hope. View Thread
Thanks Joy, yes I remember your name, and wasn't it yours that actually made it worse??
When I spoke to a Medtronics rep, he talked about the ones in your neck working for arm nerve pain. I have mainly moderate nerve pain and ache in my left arm, but seems it would be coming from the top nerves. If it can control the arms, seems possible it could control the other cervical pain, hopefully down as far as the waist.
Maybe it's just wishful thinking, but I feel so desperate to not live my life on heavy drugs that are doing a real number on my stomach which is threatening to me as I've had the gastric bypass 7 years ago and can't afford to hurt my pouch (new stomach).
Sure hope someone has had the cervical implant that can shed some light on this.View Thread
Have lumbar which has been a miracle for me, but they're playing around for years with my neck, 21 all together, and the pain is getting unbearable and headaches made twice as bad after this last cervical C3-C7 nerve cutting (my 6th). After 17 days I think it's improving slightly, but still having to take loads of pain meds to keep it under control. Medtronics tells me they do have them for cervical, but I hadn't talked to any one who had it done. Wondered whether they are as successful as the lumbar versions.View Thread
Joy, I am surprised that they removed the trial stimulator after 1 day. I've heard it's normally 3-7 days, mine was 4. I sure wish it had worked for you as it's a miracle for me. But if it was causing other pain to increase, I guess that was the reason to remove it so soon.
As for my neck, I'd stopped the Gabapentin when they started the nerve cutting again, just to make sure the med wasn't masking the relief from the process. But with so much increased pain, I started the Gabapentin again after you mentioned it, and my arm is better. The Lyrica I liked better, but $45./month versus $5./month, I'll take Gabapentin. Both worked equally well for me, but the Gabapentin had me running into furniture and walls for months. But after being off for about a month, after starting again, I'm not hardly tipsy at all.
I freaked out just reading the meds you're taking and to still have little relief, they had me on Oxycontin and 6 other high powered meds years ago, and I up and quit. I felt like a zombie and with such little relief I didn't want to be an addict. I started self-help meditation, accupressure techniques, self-hypnosis, and eventually surgery. I resent every medication I have to take.
I'm not sure I understand why your first lumbar surgery helped and spine specialist says another one won't help. Have you tried a 2nd opinion.
I know we're not doctors, but what I have problems with is that some of the doctors and especially P.T.'s don't realize that we are the ones in pain and we know our body much better than they do. P.T.'s aren't helpful to me over time......just give me the basics of exercise, stretches, heat/ice, etc. and I'm self-motivated and will do the work at home. I have an exercise bike, a sophisticated traction unit for my neck, all the stretch cords, balls, dumbells, and instruction sheets for every P.T. I've been to. All I can do to help myself I prefer.
I could just cry for you though with those meds and still a pain level of 9. Many of the meds make me too sleepy, and I need mental control during the day, so I don't take the Neurontin, Valium, Ativan during the day, but I do sleep much better with them at night.
I found instead of every 4 months getting shots of cortisone for bursa sac pain in hips, when it starts, I rest more and use ice packs and soon calms down.
PM me any time, maybe something will just click that someone tells you and even a tiny bit of relief is great.View Thread
How frustrating to not have any of this work for you. I had a bad auto accident in 1971, now bone spurs, bad discs, arthritis, etc. has taken it's toll. Have been through P.T. for 21 years, pain docs with the strongest meds imaginable, cortisone shots galore, epidural injections (never worked), finally the nerve cutting after the 1st cervical fusion. Right, then left, both seemed to work for 6 months. Also lumbar right and left, both seemed to work for 6 months. Then major fusion and grafting L4-S1, resulting in 9 months with scar tissue wrapping around screws and severe nerve pain from waist down. Had the spinal cord stimulator implanted, and has been the biggest blessing in my life for the last 4 months. Also had a 2nd neck fusion, which now has caused disc problems from C2-C7. They don't want to fuse any more, so did epidurals, of course didn't work. Did the nerve block and worked incredibly well, 2 whole days of no pain, then back to feeling like someone kicked me in the back between C6-C7 and C2-C5 severe nerve pain, causing pain and numbness down one arm, both shoulders, little movement in my neck and 24 hour intense headaches. As the block worked, they did the nerve cutting on the right cervical, but of course no one told me that cutting up higher C2- C3 can cause extreme pain for 1-2 weeks. It's been 12 days now, started after 2 days and seems worse every day. I can't function. Hope it abates soon, and then the waiting of 2-6 weeks for hopefully the nerves to calm down and cut the pain, but with my past, it's either 6 months or not at all. I'm dealing with a good, but very difficult doc that doesn't want to hear what I have to say, but after all these surgeries (17 procedures for him alone) 3 fusions ankle surgery and fusion 3 knee surgeries last year on the same knee, this neck/headache pain is ready to do me in. Not sure how to tactfully try to get through to this doc that I think it's time to try the spinal cord stimulator trial on my neck. I want my life back!View Thread