I have given up trying to get help. Seen too many docs that say the same thing. They never heard of anyone having problems. They are just lying because WE know that is not true..........I reported the issue as an Adverse Event with a medical devise to the Federal Health Department. Also spoke with 3 lawyers. Nothing can be done except to treat the symptoms with meds. My rehab doc said not to do it, and I wish I had listened to him. He's the only one that said he had seen nothing but problems with the SCS implants.
Good Luck to youView Thread
I use the bean bag heating bags. They come in many shapes and sizes. Only a few minutes in the microwave and they stay extremely warm almost too hot for over 30 minutes..........I have one shaped for the neck and shoulders, one flat and rectangular for the bottom of my back and two other smaller ones . They contour to the body, can't live without them....of course the hot bath tub works best......View Thread
Joy, let me ask you, what do you take for the spasms? I feel that those are more painful than the neuropathy pain. The spasms quiver, jerk and tighten into a knot. They run the gamet. I use xanax which hardly helps and ativan at night which works better........but the dose is minimal. I have found the only thing to help is heat..........sometimes the spasms are quivering so fast that it throws me into a hot flash.......all the medical advancements out there and we can't get the help we need......View Thread
I knew Joy, that you would still be here posting. I am glad you are an ear for the new people hurt by the SCS. No doctor will say they have seen any harm come from it. My rehab doc, ...he told me not to do it, said it only causes problems. He was the only one ever, I wish I listened to him..........unfortunately he also said, no one can fix the problems it has caused and I need to figure out how to live with it. And that I will always be on pain meds.
I have herniated another disc and tore one trying to work, and am having the steroid injections. I have one more left. They are not helping and the steroids make me feel so horrible.......... But the rehab doc says he will always write my med orders because he believes that I truly am in agonizing pain.......I just take Dilaudid and xanax. Just a small dose, but it gets me through the day..........
After 15 injections Joy, you now have so much scar tissue, I am afraid your pain will now be worse. That is one thing he also told me....that every injection causes scar tissue that causes more pain. Why does my rehab doc know this, yet not the docs that insert these crazy SCS's?
I have been told by so many that I should stop thinking I can go back to work and I should apply for dissability. I may just be going down that road............and I did try to file a suit, but not one lawyer would go for it. They said there had to have been an obvious I insertion error by the doc. And we know that wasn't an issue.........we are stuck, in pain, depressed, muscle spasms, little sleep, etc. and most have developed fibromyalgia.........
I hope someday you find relief Joy.View Thread
If you are referring to Dawn, that is me. I have been on the web site, but have not posted in a few months..............I don't follow all the posts anymore................while I was struggling, I was here constantly........since then, 2 yrs since my failed SCS, I have not found any answers, have not been able to improve my medical conditions caused by the SCS.......the day I came home from the hospital, I vomited for 12 hrs and the wires migrated. For weeks my doctor refused to believe that anything was wrong. After 45 days it was removed, because at that point I was having trouble walking........
And to this day, all the damage done (from weeks of being "electrocuted" into my chest wall muscles) is stil affecting me and probably always will.
I have stopped trying to find help and have to try to live with pain medications, to get through each day..........I have seen 5 doctors from different specialty, all say the same thing......never seen this before, don't know how to help................so at this point I don't involve myself with the discussions, but I do watch and read what is happening......
Hoping that some one will one day find a medical professional that can help.
Mona, Henry, and anyone else who has asked me the question, "what were your symptoms?". If you click on my name you should see my other posts as Joy has stated. Listen to Joy, she has been through so much.
As for myself, I had failed back surgery. I had rupture 2 lumbar discs. For 5 months I went to 6 doctors, and not until I threatened the last one did I get the needed MRI I, which showed the rupture. So for 5 months the nerves were being damaged. I had the fusion to 2 lumbar discs, yet the pain remained debilitating. The nerves were permanently damaged.
.................I was on Xanax for severe muscle spasms, the only med that worked, plus Dilaudid for pain. I was desperate to get off the meds. My NS suggested the SCS.
..........I. Did NO research. The trial was great, NO PAIN, yet the stimulation made me severely nauseous. With anti-nausea meds, I was great. So I went for the implant. Warning the anesthesiologist and the doctor about the significantly high stim done in the OR and RR, I did not wan to go home sick.....................no one listened, I went home and vomited for 12 hrs............not knowing at the time, this violent vomiting dislodged the wires........I knew something was wrong immediately. It took me weeks of complaining and seeing the anesthesiologist that did the implant......constantly calling the SCS rep from St, Judes, finally the rep recommended the in office X-ray check..............this showed the wired out of place. So for weeks my chest wall muscles were being electrocuted.......................I went on using one side that appeared fine, but it never worked right, I started having trouble walking, and had it removed.................
Since then I have had severe, constant muscle spasms surrounding the whole chest and the original pain was worse...............I continue on the same meds and am very depressed as I can not enjoy my life, everyday is a struggle. It is very difficult to live with someone in constant pain. ...........I needed to work and found a job that did not require a drug test, and I have been working the night shift, which is a killer and makes me feel even worse, but it is a job and I can take my meds and feel okay...................I have other issues, that had begun at the same time, such as fibromyalgia, intolerance to temperature changes, blah, blah, blah.....
For some the stimulator does work, for some it is a disaster.............
Good Luck to you all..............................DawnView Thread
Hi Vicki S.......sorry to reply so late, but I am not on the web site anymore, and as you know sometimes it is so hard to get through the day. Reporting a problem with the SCS is easy, and everyone with issues with it should. Just google FDA MedWatch. The first site that pops up will get you there, the address is .......fda.gov/Safety/MedWatch.........
On the left side is a page is a section that is titled resources for you......The first title in that section is, "Report a Serious Medical Problem Online", click on it. That will bring you to the Reporting Form page. On the right side there is an area that states "Begin Report As a; You click on Consumer/Patient, then you start answering the questions.
One other way is to search the MedWatch site for form 3500...... This is the form you will be filling out. It is very easy to do....This way may be easier for you to find it......
Hang in there Vicki.........Dawn
The more people that report the "Adverse Events" is the only way to get the FDA involved in the horrific, life altering damage that the SCS can cause.......View Thread
Dear Joy.........think real hard about having another stim placed. The first one showed you how damaging they can be. Yes a flat panel is different, but only in the fact that the wires are sutured into place. My wires migrated the day I came home. Yours did not migrate, yet you still had sever side effects. That should tell you something right there.
Mine was in place for 45 days before I had it removed. It has been a year now and I am still suffering from the damage to my chest wall.
Remember you are going to be electrocuting your spinal column.!!!!!!!
JOY AND DAVE.
I did have a double lumbar fusion after a rupture. I hobbled around for 5 months with the rupture because every doc I saw said it was referred pain and so there was nothing wrong. (Originally, I developed bulging discs from heavy lifting at work.)
Finally after 5 docs I told my medical md that he if didn't order an MRI, that I would see him in the ER, while he had office hours. Okay then, I got the MRI. Lo and behold, a massive rupture.
Now I have permanent damage. The rupture was immediately after a nerve block when the steroid injection didn't work.
Why should one try to convince md's that something is wrong. One thing I did learn is........NEVER tell the doc you are seeing, that you saw another doc and what that one said. Because every one said "I agree with the other doc".
I needed to work but was on too many meds. The only option was the SCS. I am so sorry I didn't do the research and go to back pain web sites.
My rehab doc gave me an okay to be working with the pain meds, so now I can do a bit of part time work.
If you can live with the meds working, do NOT go for the stimulator. One person on Health Central said her husband had it and he was immediately paralyzed and has breathing difficulties. Of course the doc say it wasn't the stimulator. And there is no way to prove this.
Others have severe inflammatory issues now.
Good Luck.........DawnView Thread
d_grigg..........I would never recommend a spinal cord stimulator to anyone. I was far better off without it. Health Central and other pain sites have boards that are filled with people like myself that have had disaster our outcomes. I am 80% worse. I have constant muscle spasms that meds don't help, intolerance to temperature changes, my back pain is twice as bad, I developed fibromyalgia. Life really sucks.
The trial worked well, the permanent implant has ruined my life. There are some that are far worse than I am.
Do research and go to the other sites. We have all been told no one has any problems. And we are pushed aside.
I wish you luck...........DawnView Thread