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Back Pain Community

Reply: I had a phone interview with disability insurance

Dear Tim, The phone interview is for the benefit of the insurance company, recorded, and...

Posted by aprilrose9

14 Replies | Reply | Watch This DiscussionReport This| Share this:I had a phone interview with disability insurance Dear Tim, The phone interview is for the benefit of the insurance company, recorded, and...

Reply: Didn't know a support group/ community existed onl...

Dear Vickiem1, Sadly, we all deal with uneducated and unsympathetic family, friends,...

Posted by aprilrose9

4 Replies | Reply | Watch This DiscussionReport This| Share this:Didn't know a support group/ community existed online. Dear Vickiem1, Sadly, we all deal with uneducated and unsympathetic family, friends,...

Reply: Am I alone?

Dear 250929, I don't have much to add to the discussion, but your story is emotional and...

Posted by aprilrose9

Dear 250929, I don't have much to add to the discussion, but your story is emotional and many of us can relate to many of the issues in our own lives.

People have little understanding of how an injury to the spine can have an imact on most, if not all areas of our lives. How is it the rest of the world forgets what they learned at a young age in school? It is called a CENTRAL NERVOUS SYSTEM for a reason. Why do people understand the importance of the brain in your health, but think the spine is inconsequential in the picture.

If we don't walk in a physicians office with our abdomen split open, dragging our intestines behind us through the door, we are deemed to be healthy. Even if we are fortunate to find a knowledgable and caring health care provider, we then must deal with family and friends and their perception of us post injury. One thing I learned from a wise psychologist, our family and the role we had in the family prior to the struggle with chronic pain, does not change after the injury. They always tend to see us the same way.

The people on this site are very kind and caring. It has been extremely helpful to me the last couple of months. Many of the monitors (I am clearly not one of them), have extensive knowledge and can point you in a good direction.

My sister is a psychologist who did a two year post doctoral fellowship in health psychology and she feels finding a good cognitive therapist is as difficult as it is to find a good physician. Dealing with pain, financial worry, grieving the loss of your profession, isolation, loneliness and the change in relationships is a very huge loss many of us have had to face after we have had an injury. I understand your reticence to have to make it to someones office. Maybe, check to see if someone will have a phone or skype appointment, once you have explained your situation.

I don't know how old you are and what kind of support system you have, but I would encourage you to take your mother to your doctors appointments, in the hope she will gain a greater understanding of the complex nature of your spine injury. Many feel surgery is a "cure all". I have heard many rude comments about my chronic pain over the years.

I feel for you and your situation. I have had three spine surgeries and a SCS placed without much success. I wanted desperately to return to work and had far too many surgeries for my own good. I have been in pain every day since my injury. I am the anti surgery person on this site, due to my personal poor experience with the outcome of surgical intervention. I believe in trying consevative measures first and only trying surgery as a last resort. Of course, some injuries must be tx surgically or risk paralysis. I do not like the non reversal nature of surgery. The scar tissue can take time to occur, the nerves change and the anatomy of the spine is different post op.

Well, as always for someone who claims they do not have much to add to the discussion, I end up rambling on and on.

Take care, and remember to reach out to the kind people on this site.
Aprilrose9View Thread

Posted byaprilrose9

8 Replies | Reply | Watch This DiscussionReport This| Share this:Am I alone? Dear 250929, I don't have much to add to the discussion, but your story is emotional and...

Reply: Failed Laminectomy Syndrome~

Dear An-250850, I saw what you had written about the failed spine surgery and tried to...

Posted by aprilrose9

4 Replies | Reply | Watch This DiscussionReport This| Share this:Failed Laminectomy Syndrome~ Dear An-250850, I saw what you had written about the failed spine surgery and tried to...

Reply: Hey, TRS1960

Dear TRS1960, So unfair to get sick AND have chronic pain. Why isn't there a "law of the...

Posted by aprilrose9

4 Replies | Reply | Watch This DiscussionReport This| Share this:Hey, TRS1960 Dear TRS1960, So unfair to get sick AND have chronic pain. Why isn't there a "law of the...

Hey, TRS1960

Dear Tim, Hope all is well. Computer was down all week. Tried to let you know I had...

Posted by aprilrose9

4 Replies | Reply | Watch This DiscussionReport This| Share this:Hey, TRS1960 Dear Tim, Hope all is well. Computer was down all week. Tried to let you know I had...

Reply: Dazed and Confused

Dear backinsanity, I would see an attorney concerning your situation. Actually, I...

Posted by aprilrose9

2 Replies | Reply | Watch This DiscussionReport This| Share this:Dazed and Confused Dear backinsanity, I would see an attorney concerning your situation. Actually, I...

Reply: Any Thoughts? Need some help~~

Dear bj1208, Tried for many days and many times to respond to your question. Having some...

Posted by aprilrose9

15 Replies | Reply | Watch This DiscussionReport This| Share this:Any Thoughts? Need some help~~ Dear bj1208, Tried for many days and many times to respond to your question. Having some...

Reply: I AM SO ANGRY!

Dear TNT 4145, Nice to hear from you. Tried to respond last week, but have been having...

Posted by aprilrose9

10 Replies | Reply | Watch This DiscussionReport This| Share this:I AM SO ANGRY! Dear TNT 4145, Nice to hear from you. Tried to respond last week, but have been having...

Reply: Aprilrose9

Dear TRS 1960, Do you have any idea why I am having trouble the last six days. Whenever...

Posted by aprilrose9

4 Replies | Reply | Watch This DiscussionReport This| Share this:Aprilrose9 Dear TRS 1960, Do you have any idea why I am having trouble the last six days. Whenever...

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