Painloopy, sorry I was typing and hit some random button threw me out happens often. With medicare, said I had to go to slc have dr order mri, then go back to slc to have him read it. So i finally, have everything in line for my new surgoen. 5 minutes away. He moved here from NYC, 2 years after my adr was placed. I had researched every dr here in ogden back in 2005. And was referred to slc by one of the E.R. nurses. Who then referred me to the artificial disc Dr in SLC. He did my surgery then i could not go back to the referring dr he said, too much liability. So i thought i was stuck. Made it hard to get 2or 3 rd opion by other surgeons. I am grateful to have found this support group. Here we can hear from patient who have lived through this. So anyway. I will keep you all posted on how everything turns out.. God bless DaneilView Thread
Painloopy, This is so good to hear, I've heard from you and two other patients that it has helped them tremendously. My st jude stimulator trial statts on Aug 4th. I am so emotional about it, as I have lost a lot of faith over the years. My new back surgeon has been highly recommended. I eorked at Mckay Dee hospital for 20 years. I've heard a lot of success stories from my patients in billibg and working in the emergency room. There I also learned which doctors never to trust nor let them touch me. I've just switched my back surgeon from salt lake city, to ogden. I could no longer travel in a car for 30 minutes. Became too difficultView Thread
Idk what happened sending from my phone my conversation disappered. So long story short, my so called covered medication, is supposed to be 45.00 $ a month. Well now finding out I'm in a coverage gap. My opana will cost 385.00? So infuriating, so I had my dr switch me back to oxycontin. Its $177.00, I don't get why they don't cover something that is cheaper. But anyway, I think this opana, is my problem of why my pain has been soo much worse. Aarp medicare complete, sent another denial on my muscle relaxers that I've had to take for the last two months. I called them and went off. Looking at their eob, they pay 0 on it. My cost is 16.00. I let them know how much they mess with my life. I am now finding out the social security night mare is not over after waiting and fighting for or two years it has now just begun.View Thread
Hi Joy, I want to thank you for sharing your story. It helps coming from someone who actually experienced this. I'm so happy that when they took the leads off your pains went back to normal cronic pain. That is a big fear of mine "having more pain" my body can't deal with a headache, or a stubbed toe let alone more back pain. I am still waiting to hear from my surgeon.
I am now on medicare, are you as well? Medicare denied paying for my oxycontin, so I seitched to a "covered medication" opana. Dont work, well maybe for the first month, then my pcp changed mg to 20 from 15. That worked for about a week. I switch to the opana about january of this yearView Thread
Hi Joy, oh my goodness!! Sounds like youve been to hell and back. God bless you. Pain is no fun especially when its worse after surgery. I am so sorry. I didnt know they went through the front to put in a cage. Learn something new everyday. Do you still have the cage in? One of my in laws had one put in his back. The hardware was too painful. All I know is he had the hardware removed and it relieved his pain, anyway that was the last I heard. Scary stuff. I read one of your posts about the scs. That is where im at right now. I just had a ct scan thursday, so my new back surgeon can compare it to my last xray. He said everything looked ok on my mri. Now he wants to compare to r/o if anything has moved. ( I hurt my back in water aerobics in April 2014) I have alot of pain in my legs, lower back, abdomon, hips etc.. my doctor said if everything looks ok, on the ct. The only option I have is the spinal cord stimulator. so im curious if that helped you at all? Dr told me they do a week trial to see if I am a canidate. Is the recovery long? How did you do? I am on high doses of pain meds and my last surgery in 2011, I dont remember a thing after the surgery. I dont know how long it took to recover or who was here to help me. I do not like that. My husband said I was in pain and had to wait for my heart rate to go up b4 I could get more meds. I dont want to go through that again. No way, im sure you have experienced this as well. So I was curious. And did you have super high pain meds to wean off of after the scs was placed? Thanks for the input and sharing your experience. It is very helpful to me. god bless DaneilleView Thread
Hi Joy, To remove the charite disc (ADR is artificial disc replacement) they have to cut out part of your spine. To get the adr placed they go through your front. A vascular surgeon has to assist to move your main artery. They take your disc out. The actually use a jack, to get your disc out. I gained an inch in height, when they put my adr in, in 2005. There is alot of information on the internet. I dont think to many people survive, having an adr removed. Very risky mine is a charite artificial disc. The charite disc is titanium. I was my doctors first patient he fused an adr on. Thank god he made the decision not to remove mine. I just thought I would let you know. I noticed your reply above. I hope catpardue is doing ok and didnt have hers removed. Very scary surgery. God bless DaneilleView Thread
Hi Strum, sounds like you have done your research about getting an ADR. Before I had mine place I did research for appx 6 months and could not find much so I hope this helps. I suggest you have a disc o gram. This is where they give you more pain to find out which disc is giving you pain. I have about 4 levels that are bad, by doing this procedure they could tell which disc was giving me pain. I was 35 yrs old when I had my artificial dics placed. Therefore my surgeon did not think I needed a dexascan. When he was doing the surgery, he said my bone was soft like a marshmellow. At that time the plate with prongs was not stable. He said he was ready to flip me over to fuse it. But, chose not too. He believes my back injury and cronic pain for 12 yrs is what caused the bone to soften. About 3 weeks after my surgery the plate slipped. The scar tissue held it in place until 2011 when it slipped out about half inch. The dr was going to remove the ADR. Which is very risky. To remove it they have to cut out part of your spine. He and team of drs chose to fuse it in place. I have the charite disc, which was approved in US in 2004. My adr was done in 2005. I will never regret the choice I made to do this surgery. I was very ready, did tons of research. I know technology has improved and there are many wonderful drs. I got 4 or 5 opinions. Hope this helps.. God blessView Thread
Hi Blu4me, I read your post, I am curious you stated your ard is broke, what is that (artificial disc replacement)? If so, I have been searching for people who have had this done. What type of adr and how it has helped or worsened your condition. I had the Charite adr placed at level l5-s1 back in 2005. It slipped a few weeks after my surgery due to soft bones. I had it fused in place in 2011 after it moved about 1/2 in out of place. From then on it has been, a roller coaster to say the least. My name is Daneille I am 44yr old female. LView Thread
I understand how difficult it is to find information on ADR. At the time I couldnt find any information, regarding patients success nor about any problems with the surgery. I had ADR (artificial disc replacement) Sept 2005 l5-s1. It was a failed surgery, the disc became displaced about 6 weeks after my surgery. Dr said the bone above and below was soft, therefore I was told not to lift more than paper, and do not bend for 10 weeks, well I lifted my 1 yr. That is how it slipped. The scar tissue held it in place until march 2011. It pertruded out about 1/2 inch on the x-ray. The dr talked about removing the artificial disc. I scheduled emergency surgery. The day before my surgery at the post op appt, my surgeon spoke to a group of doctors and decided it would be possible to fuse it in place. I found out recently that if they remove the ADR they have to cut out part of your spine and it is very risky. So I am glad they didnt. Today, I am disabled I have spent the last 2 yrs, dealing with cronic pain, as well as ltd insurance, ssi, cobra premiums. Numbness from my bellybutton to my feet, especially if I am sitting up right for longer than 10 min. I am 44 yrs old and I have found i need to find positive in every situation. No matter how stressful, painful, or miserable things can be. I wish you well, and am happy to find others who have had ADR.View Thread
Hi painloopy, Have you done accupuncture? I have a lot of the same symptoms as you when I go into flare ups nd I swear by accupuncture. I had my aDr placed in 2005 then fused in 2011. I was just looking to se if you had responded and read this old post and decided to reply.