I have been seeing a certain doctor for many many years now, I have constant middle and lower back pain. That radiates throughout my entire body. I have been diagnosed with Osteoarthritis and bulging disc, degenerative disc disease and bone spurs on my spine. Also Lumbago has been thrown at me. My mother says I have complained about aches and pains ever since she can rememeber, I was diagnosed with scoliosis when I was 5 but it was caught and corrected. I have trouble with my joints, knees popping out of place when all I do is simply try to turn around. My shoulders and neck hurt when i turn just right, so I try not to turn to quickly anymore. I am only 42 years old but I feel more like 90 years old. Basically I feel like I have had the crap beat out of me all the time, I'm always fatigued, never get quality sleep time, due to waking up from hurting all over. Anyways, I try to relate this to my doctor and am told on one occasion I am to young to have this many aches and pains, on another I am told to sit up straight, i have been called a drug addict for asking for no narcotic meds to see if they would help out better. I tell him the dose he has me on isn't helping but he refuses to up me. I asked him to refer me to a rheumatologist ,they refuse to see me (reason unknown)
I have been to specialists after specialists with all the usual test, MRI, X-Ray, Nerve Conductor Test, Orthopedic specialists, and Neuro Specialist, Rhuematologist refuse to take my case. I have since done my own research online and came across a thing called EHLERS-DANLOS SYNDROME also called EDS, this was why I was refused to be seen by said rheumatologist. Anyways, what can i do to make him listen to me? I have gave him printouts of information on this possible cause for all my troubles and his response was, "Well since only 1 in 10,000 have this, odds are you don't have this but we'll refer you and have it checked." then I get refused by his refferel....... He calls me back and tells me I need to do more research ON MY OWN and find a doctor that he can refer me to. I'm at a loss on what to do from here on out. HELP?????View Thread
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