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Debs_Bears

Joined: 07/20/2013
My Story:
Lupus anticoagulant w/antiphospholipid syndrome. Raynaud's phenomenon. Kidney dysfunction (stone maker). Type 2 diabetes (in remission controlled by diet alone). PFO (hole in my heart). PE (pulmonary emboli) Had 6 TIA's (mini strokes). Exercise induced PH (Pulmonary Hypertension). Bronchiectasis (lung disease). Had my entire thyroid removed but Hashimoto's Thyroiditis still remains, I have spinal and cervical stenosis, 2 total right knee replacements (17 yrs. apart). Esophageal dysmotility, LVDD, POTS (autonomic dysfunction). Sleep disorder w/ brain arousal's and periodic limb movement disorder (PLMD), Fibromyalgia. due to my autonomic dysfunction I have a neurogenic bladder, PFD and venous insufficiency in both lower legs.

I have recently been diagnosed with chronic iron deficiency anemia.

I also have RSD (Reflex Sympathetic Disorder). I am a 19 year breast cancer survivor. June 2011 had a 7 vertebrae neck fusion - 2 rods and 10 screws held my neck together. 4 surgeries later Sept. 2012 all hardware has been removed and my neck is completely fused together my neck does not move in any direction. I also have Ankylosing Spondylosis and Cervical spondylosis and recent was diagnosed with scoliosis of the entire spine.

According to hospital records in my 58 years of life I have had over 64 surgeries to put me back together.

I had to have an ileostomy put in just so I could go to the bathroom properly. An ileostomy is the same as a colostomy they just use our small intestines to make the stoma (ostomy). I have now been diagnosed with Gastroparesis - caused by my vagus nerve being damaged.

Latest Activity

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Joy how did your appt. go?
Hey Joy how did your new doctor appt. go on Wed. the 23rd? I had been praying the...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: Joy how did your appt. go?
Wow that was a lot to take in on your first visit. And to think the other yahoo didn't...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Update on my L4 fracture
Hi all I did go see my new Neurosurgeon very nice guy - will go back to him if I need...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: Update on my L4 fracture
They don't want to have this preventive med cuz it costs 1,500 a month. But it is the...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: Update on my L4 fracture
Hi Tim it is so amazing that Medicare thinks they know how to treat us. Turns out they...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: 5 hrs from now
Tim I am so sorry to hear your friend is in sad shape right now. When I had my 7...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: Update on my L4 fracture
I do hope and pray your appt. goes well and that you like her as well. The 23rd right?
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: Hip/Back injured during surgery. How to treat
I have to agree with Joy that a Ct-scan would most likely tell you what is going on and...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: Just an update ~~
Hi Joy doesn't sound like you got anywhere with the pain doc. As for Dilaudid that is a...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: 5 hrs from now
So glad to hear he is walking each day. That's a good sign.
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears

For more information, visit the Duke Health Spine Center