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Debs_Bears

Joined: 07/20/2013
My Story:
Lupus anticoagulant w/antiphospholipid syndrome. Raynaud's phenomenon. Kidney dysfunction (stone maker). Type 2 diabetes (in remission controlled by diet alone). PFO (hole in my heart). PE (pulmonary emboli) Had 6 TIA's (mini strokes). Exercise induced PH (Pulmonary Hypertension). Bronchiectasis (lung disease). Had my entire thyroid removed but Hashimoto's Thyroiditis still remains, I have spinal and cervical stenosis, 2 total right knee replacements (17 yrs. apart). Esophageal dysmotility, LVDD, POTS (autonomic dysfunction). Sleep disorder w/ brain arousal's and periodic limb movement disorder (PLMD), Fibromyalgia. due to my autonomic dysfunction I have a neurogenic bladder, PFD and venous insufficiency in both lower legs.

I have recently been diagnosed with chronic iron deficiency anemia.

I also have RSD (Reflex Sympathetic Disorder). I am a 19 year breast cancer survivor. June 2011 had a 7 vertebrae neck fusion - 2 rods and 10 screws held my neck together. 4 surgeries later Sept. 2012 all hardware has been removed and my neck is completely fused together my neck does not move in any direction. I also have Ankylosing Spondylosis and Cervical spondylosis and recent was diagnosed with scoliosis of the entire spine. As of 4/25/14 I now have osteoporosis and have a compression fracture on L-4 with a height loss of 25%. I will start Forteo for the osteoporosis.

According to hospital records in my 58 years of life I have had over 64 surgeries to put me back together.

I had to have an ileostomy put in just so I could go to the bathroom properly. An ileostomy is the same as a colostomy they just use our small intestines to make the stoma (ostomy). I have now been diagnosed with Generalized Intestinal Dysmotility - caused by my vagus nerve being damaged.

Latest Activity

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Reply: my chronic pain
Hi David the biopsies would be for the purpose of diagnosing an intestinal problem like...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: my chronic pain
David you are seeing a GI specialist right? Based on what is being said here is why they...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: my chronic pain
David do you know when you are going to have your test? I am not sure if I am allowed...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: Update On My Wonderful Wife's WC Case
Dave that is just crazy for makes someone go to work for 2 hrs a day with breaks every...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: Update On My Wonderful Wife's WC Case
How many job interviews does she have to have to prove no one will hire her? Or does...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: Update On My Wonderful Wife's WC Case
Yes that is good news the judge found her disabled. But why is the attorney pushing for...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: my chronic pain
David I am so sorry to say without those results it is hard to say what is next - could...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: my chronic pain
David do you have an ostomy? I have had the test you are talking about at 4 times it...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: my chronic pain
David I have read Joy's comment for you to post this question on the hernia board. I...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears
Reply: Hey Joy this is for you -
I would still give them a call and see what they can do for you or if they can recommend...More
It is my prayer that you have a Blessed Day in all that you do. ~~~Debbie~~~
Posted by debs_bears

For more information, visit the Duke Health Spine Center