Thank you so much for the welcome. I just had my second appointment with the new doctor and it went a lot better than the first appointment, thank God.
He spoke about my SCS and why it was not getting rid of my pain...I told him I felt the same way. The whole purpose of me getting the implant was to reduce my pain and hopefully my medication.
However, now, I have had NEW pain in between my shoulders where they did the lamenectomy to put the leeds in for the SCS. I never had problems with my upper back...until now. And, as far as the pain, it is controlled fine by my gabapentin. Which was not even tried on me until AFTER I had the implant! Ugh, I feel like I had a surgery given to me when I could have just opted for gabapentin. My scar tissue around the implant is atrocious. It is causing the leeds to move, and, the vibrating just...gets on my nerves now.
Thank you for saying to come often and feel free to vent - I feel like that is all I have done today, I really feel guilty for it...View Thread
I am new here as well, in fact, this is only my second post. I clicked on your post and upon reading it was really amazed at the similarities in our surgeries & your current symptoms.
I do need to say however, I do not share your spinal disease in all three sections of the back. I am only primarily affected at my thoracic and lumbar. My cervical issues are from a lack in curvature. I get horrid migraines from time to time, but, have not considered surgery. I went to a chiropractor from the age of 13 - 18 (so long ago!) to regain some of it. But, of course, it is a problem that will never be 'cured.' Gosh, I learned a long time ago, with my spine, nothing is ever 'cured' or 'fixed.'
My major problems arose from heredity and a car accident (my mother started having surgeries at the exact same age I was and after a car accident as well, even if her or I would have never had the car accident, we would have had to have had surgery anyway for spinal degeneration).
I have had four back surgeries - a laminectomy, two fusions, and a SCS as well. My SCS was put in almost two years to the day. The SCS was suggested to me, albeit, almost pushed upon me because of the severe nerve damage I have in my legs. My left leg, the worst one, is numb from the knee down and my right leg experiences - well, the feeling that it is being submerged into a vat of hot oil 24/7. I can hardly stand a stitch of clothing on my foot, even with Neurontin in conjunction with Gralise (although, it is definitely not as intense). When I say it like that, I guess I do not really know which one is worse? The SCS was 'pushed' upon me because of my age. Every doctor that I went to did not want to see someone who is close to forty on a lot of medications. But, as probably most people here know, sometimes it is unavoidable. No matter how much I do not want my life to be in four-hour increments...it is...
One thing that I was a bit upset about with the SCS was since I produce an unheard of amount of scar tissue - it is pretty much a failure. My surgeon knew my body produced a lot after the first surgery. He knew it after he had spent most of the second surgery clearing out scar tissue. This was repeated for surgery number three as well. When someone like me heals too quickly, and develops a lot of scar tissue...the SCS is hindered badly. And, so, I will probably have it taken out as soon as the battery dies.
To your passing out with pain. I have been experiencing this for the past 6 months! And, honestly, I thought I was the only one doing it. Fortunately, I have only had this happen twice. Since I have so much nerve damage in my legs, it is really easy to hurt my lower legs and feet without knowing it and I am always scared I will break something or God forbid hurt my back worse. I notice that the pain is worse where my nerves bunch up - hip, knee, and ankle - although, a little different than you, I also have it hurt near the front of my body (around where my ovaries are). I have searched on the web and haven't read anything about it. The only thing that I was told thus far - was that the body reacts strangely to pain sometimes. I had pretty much accepted that answer because I shake and sweat at times when my pain is really intense. My back has also gotten 'a fever' too. If you do find out any answers, I would be so happy to know as well!
I am new to this forum and wanted to introduce myself. I am a female, early forties, and live in Georgia. I have had four back surgeries - which have included a Laminectomy on L4-L5, Two fusions on L4-L5 and L5-S1, and finally an SCS implant. I have not had a surgery in two years, nor am I interested in having an other surgeries unless someone tells me I will no longer be able to walk.
I have been feeling pretty down lately because I had to switch my pain management doctor, who I really liked, who treated me like a person. And, he told me, I had to go somewhere else because I was outside of his radius from where he could treat patients. There was little warning of this happening - it was sprung on me. I, of course, asked if I had done anything wrong and was told no. But, it does little to help you feel better when you know you are up for the battle of...establishing yourself again at a pain management center, establishing yourself at a pharmacy who will a)take your prescriptions and b)take your prescriptions from that particular doctor, because many will not. You add that on top of failed back surgeries and chronic pain and you know you are in for a tough battle before it even begins.
It saddens and surprises me how many people I read about here with my problems. Chronic pain, failed back surgeries, neuropathy, etc. like I do. It saddens me further I do not read many stories of hope. Stories of patients who have found doctors who treat them like people with a real issue. Mostly, I read of people like me who are hurting and scared - feeling like there is no way out of this hell. And, always trying to accept the word, 'forever.'
I hate there are so many people out there who have made this harder to deal with - all of us with chronic pain. Those who have abused the system. I feel sorry/angry for them and wish they had a better glimpse into really how HARD it is to wake up in the morning, get through the day, and, hope you will have a better quality of life sooner rather than later. And how, through chronic pain - they have added emotional pain to it - to me, personally.
I hope all goes well with this new pain management doctor. I have of course - agreed to all the drug testing, using one pharmacy, etc. I have absolutely no problems with any of it. I did have him, however, laugh at me when I told him why my doctor could no longer see me and that it did not sound right. And, so, that has left me with a feeling of dread. I told him it was the only reason I was given and when I specifically asked if I did anything wrong, I was told no and also told he was losing me and a lot of other patients he did not want to lose.
I see this new doctor again next month, I hope everything goes well - because, I do not want to change doctors again just to go through the same rigamarole. Filling out paperwork, agreements, finding a pharmacy, etc. Has anyone else gone through this as of late? Had to change doctors? Could it be the beginning of the new year? I am trying to put my mind at ease and would appreciate any insight. So far I have just spent hours and hours reading on the internet. Which can sometimes help and hurt. Me being so upset makes my pain worse, I am sure a lot of you can appreciate how that is as well.
Until then, I will do what we all do - breath in and out, pray, hope getting through another day. I am glad I found this community so I can speak to others out there who have the same issues. So I can say, 'today it feels like hot oil was spilled on my foot' and people understand what I mean. Thanks.View Thread