Hi Sissy and everyone. The 4th for us is not so celebratory. Some have fireworks and party, but for us we will probably just have a small group or celebrate alone with a good movie and see how much trouble we can get into. My husband will have something in mind to do or somewhere to go, we will see. We have a small garden which is growing like weeds. The cucumbers are already gone and the tomatoes are ripening every day. They are so full of tomatoes. I can hardly believe we have grown such a bunch of them. I have frozen a few packs, and we have eaten them in sandwiches, and given some away. I would try and can some, but that is so much trouble for anyone having daily pains. I haven't taken a picture of them, but it is already too hot to be outside during the day. Anyone thinking about moving to Florida, remember the heat and humidity. It is nice at the beach, but inland it is HOT, HOT! I still have daily pains, but I have been able to keep them under control somewhat. The SI fusion a few months ago seems to have helped. I am still hurting most of the time when I sit a period of time. I wish each of you a very happy 4th. Take special care of yourselves.View Thread
Hi Painloopy, I am sure you are having effects of a recent surgery. Maybe most of the nerve pain and other aches and pains will be better when you recover from the surgery. I understand your sleeping pattern, it is just like mine. When I roll over onto my back sometimes during the night, I wake up in terrible pain. I still hurt a great deal. I sometimes wonder if I should have had surgery, but at least I have one of the problems taken care of. I have so many things wrong with me it is difficult to know what to attack next. I saw a GYN last week. He did a pelvic sonogram and said there was nothing wrong in the rectal area. He used the sonogram devise and rolled it around internally and said my low back is causing my problem. Man, if that is right, I will have that lovely thought to look forward to. I only hope whatever it is can be done with a discectomy and that I don't have to have a fusion. Please let me know how you are doing as you heal. I will pray for your continued success.
Hi painloopy. My doctor who did my SI fusion gave me the exact statistics as yours did. He also said he had done a hundred or more of them. He just happened to be a neurosurgeon whose expertise had preceded him. I had known of several people who had used him for spinal fusions and other treatments. This doc practices in a town with a Physicians Teaching Hospital and practices in a mid size town about an hour south of me. Your doc has explained it right, the surgery only helps (but little) with the upper butt which is where the SI joint is. I am better since the surgery but I do suffer when I sit much of the time. Some times and days are worse than others. I guess the barometric pressure does have something to do with pain. Did your doc explain what happens when you are having the surgery with regards to rods, etc.? I have had two steroid injections just to the right of center of the SI joint itself, since surgery; hoping for a miracle I guess. They helped after a while (almost 2 weeks) about 60% after the first, and more than that after the second injection. I did start out using a walker, but I didn't use it after about the 3rd to 5th day. I had nurses come in, (and physical therapists for about 6 weeks). I had the nurses cancelled because they only took my vitals and the therapist did that anyway. I do have a good pressure gauge and I try and be proactive with my health anyway. I didn't see the need for charges to my insurance when it was absolutely unnecessary. I don't think I drove until about the third or fourth week, but I am sure you might be younger and will heal faster. I really can't remember, but I do remember thinking whether I felt right behind the wheel before I drove. Of course I had to sit even uncomfortable, for a while. I sometimes feel uncomfortable with any type of sitting, and sometimes even walking now. All and all, I am glad I had the surgery. I hope this post is helpful to you. I know we are all different and what works for one of us might not for the other.View Thread
aprilrose9, I am sorry that you are having so much trouble trying to find a PM who will listen to you and understand your condition. Your doctor certainly should be willing to work with you and give you the advice and treatment that he is licensed to uphold. It sounds as if he could come closer to keeping the first of a physician's Hippocratic Oaths...(first do no harm). It sounds as if it has come the time when you should seek out another who is willing to treat you with the respect and needs with which we are all entitled. I have heard many even on this board who have said they were worse after a spinal fusion than before. I am sure there are many, fortunately, who have had great success with a fusion. I hope you will not feel alone and isolated by having your problems, as many of us feel the same as you. We all, from time to time, if not most of the time, feel alone with our suffering and do not know the answers. I guess if we had the answers we wouldn't be suffering, would we? I don't know how it feels to have a spinal fusion, but I do know about SI joint pain and surgery. The pain is just terrible. I think whatever we suffer with at any given time, is worse than the time before. We are blessed with the ability to forget the former pains which were so bad and debilitating. I think it would drive us insane to remember the extent of former aches and pains. It has been a long day for me today, and I am beginning to really feel it on my backside. I trust you will be encouraged and find someone who is able and willing to help you with your pain.View Thread
I apologize if someone mentioned this and I missed it, but I have had the trial SCS. It did not work for me, however many people have great success. I think Joy and others have given you some good advise, and especially about researching the information on SCS. This research will provide you a wealth of information.
I have recently been told by my current PM doctor that he wanted to look at the operative report done for the first trial implant. During my last office visit a week or so ago; he had the report. He said the leads were put too high in my spine, resulting in so much discomfort in my legs while I was trying to bring the low vibration to my hips and low back. I don't know whether we will give it another try yet.
If you don't understand my rambling, please feel free to ask what the heck I meant!View Thread
Hello P Yes you are right about the physicians having trouble identifying nerves because there are masses of nerves at the base of ones spine. They are like very,very fine spaghetti.
Yes it is a real surgery, so you would be completely "out" for the surgery. The recovery time for me was about two months until I felt pretty well. I do believe it has helped, however, I still have the problems I explained earlier plus..........
The last injection kicked in at about the 13th or 14th day. I think overall I am 60% better. I had read it could take that long, but once I past the 6-7 day period I had given up hope. I continue to have problems with pain in my outer thighs and hips. I have an appointment next Tuesday to see the pain mgmt. doc again. I should know more about the direction of further treatment after my appointment next week.
I wish you a low pain day, and lots of hope for your future. I do not post hear much, but I will try and check in soon.View Thread
I had tailbone and SI joint problems. (sacroiliac) I finally had the SI joint fused. Three rods were put between the hip bone and the sacrum. That helped a little, but with healing I did not know for a while whether the surgery helped or not. Later I had a steroid injection as close to the bottom of the sacrum as possible. It took about 14 days before I was helped with the injection. It is far better than it was. I have an unidentified nerve in my rectum, consequently, the need for that injection. Doctor has been in pain management for years and this injection was a trial, but he said it was worth a try. I feel he did spray the steroids over the bunch of nerves at the point of the injection. I hope you can follow my ramblings, but I don't feel like fixing it..View Thread
Dear Painloopy, I did have the SI joint fuse. Yes it is FDA approved. It is just a newer surgery type which is better due to the small incision and other things. Not all physicians want to do it and haven't learned. It has been available for a few years now. Many people do have this surgery after a lumbar fuse. My reason for not being able to sit is/was muscle spasms in the butt. The pain was terrible. Now I have an unidentified nerve in my rectum. That is causing a serious pain when sitting. I had a steroid recently which did not help the nerve at all. The doctor did not know whether it would help to try and spread the medicine over the nerves just above the painful area. It has been four days and I haven't had relief. It cannot be determined which nerve is in my rectum therefore no one wants to smash, burn or cut it. I could have terrible problems if it is done. Now what do I do? A research hospital has diagnosed me with pudendal nerve problems, so I will mention that to my pain mngt doc me next visit. I have tried the SCS, but it didn't work for me. My doc said "I am a hard ass when it comes to giving narcotics", I am new to his office. I like his candid answers. He thought for at least 5-10 minutes trying to decide what might be the best way to try and treat me for the most success. I trust you will find success.View Thread
Has anyone here had an I-fuse? That is where the illum is fused to the sacrum with three titanium rods because of damage to the joint. How successful were you? I am scheduled to have this done in August. This doctors success rate is 80%. He says sometimes people have had the pain so long they have this mindset and he has no idea how many this is. After 7 years of pain I am ready to give this a try. I did have success with a steroid injection for a few days and now we know we have our place.View Thread