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Charl1942

Joined: 02/05/2010

My Story:

I didn't know what real pain was until November 2005. It all began with a fall on a room size rug and broke my pelvis. The fracture healed in 6 months and I was fine until I began to fall and had several falls on my butt. As time progressed the falls began to take their toll.

After several pain clinics and orthopaedics and a nerosurgeon, I finally found out my tailbone was hypermobile. (It moved around like a clock in fast motion. I suffered for about four years with that and it never healed. So in 2011, I had the tailbone removed. Okay you don't really need the tailbone, it is sorta like the appe it removed. No problem with the surgery and I healed from that in a timely manner. Then my discs began to wear out and falls continued. I don't know why I fell. It was not watching where I was going and moving too fast. The last fall was in a shuttle bus headed for the airport May 2012.
Too much for a small frame body. At the time I was thin, but now NOT so much.

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removal of coccyx (tailbone)

I have suffered with pain when sitting and lying down for about 3 years now. I have had...

Posted by Charl1942

1 Reply | Reply | Watch This DiscussionReport This| Share this:removal of coccyx (tailbone) I have suffered with pain when sitting and lying down for about 3 years now. I have had...

Reply: Cervical Kyphosis?

I totally agree with Joy and for the same reasons she gives. I am surprised noone has...

Posted by Charl1942

10 Replies | Reply | Watch This DiscussionReport This| Share this:Cervical Kyphosis? I totally agree with Joy and for the same reasons she gives. I am surprised noone has...

Reply: To All Mother's and Father's too

Happy Mother's Day to you Joy, and all the other Moms and Mom substitutes.

Posted by Charl1942

1 Reply | Reply | Watch This DiscussionReport This| Share this:To All Mother's and Father's too Happy Mother's Day to you Joy, and all the other Moms and Mom substitutes.

Includes Expert Content

Reply: Coccydynia or tailbone pain !!

Thanks, please do update me.

Posted by Charl1942

17 Replies | Reply | Watch This DiscussionReport This| Share this:Coccydynia or tailbone pain !! Thanks, please do update me.

Reply: Just saying hello, and asking a question or two......

Joy I think Lyn was talking about the family doctor saying she was not a candidate for...

Posted by Charl1942

6 Replies | Reply | Watch This DiscussionReport This| Share this:Just saying hello, and asking a question or two..... Joy I think Lyn was talking about the family doctor saying she was not a candidate for...

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Reply: Coccydynia or tailbone pain !!

Hello Mictim, Dr. Levin seemed to answer your questions basically how I was trying to. I...

Posted by Charl1942

17 Replies | Reply | Watch This DiscussionReport This| Share this:Coccydynia or tailbone pain !! Hello Mictim, Dr. Levin seemed to answer your questions basically how I was trying to. I...

Includes Expert Content

Reply: Coccydynia or tailbone pain !!

I am sorry it has taken me so long to respond. Even to sit a little while without pain is...

Posted by Charl1942

17 Replies | Reply | Watch This DiscussionReport This| Share this:Coccydynia or tailbone pain !! I am sorry it has taken me so long to respond. Even to sit a little while without pain is...

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Reply: Coccydynia or tailbone pain !!

I will try to help you by giving you some information about the problems I have, and some...

Posted by Charl1942

I will try to help you by giving you some information about the problems I have, and some of my experiences. I have had several slip and falls and trip and falls landing a couple of times on my rear. My tailbone is completly severed now from the sacrum. In other words my tailbone now is in an "L" shape. I also have degenerative disc disease, and a condition called pudendal neuralgia. You can find something about that on spininfo.org. The reason I gave you the web address is that hopefully you and maybe others are made aware of this condition as it is rarely diagnosed and treated. On the surface some of the symptoms are similar.I researed about 18 months and read a post from another woman who had the condition. I went to the Mayo Clinic and was diagnosed with it after I thought that was another of my problems. I must say after I went to the Clinic I had another fall and finished breaking my tailbone. I have also had PT, aquatic therapy, steriod injections, a glanglion impar, and two pulsed radio frequency ablations (she burned the nerves). She said the second time that she zapped more nerves. This was done by a pain management physician. I am not sure whether it helped or not. With the additional problems I have,it is difficult to know for sure.

My sister in law is an R.N. She told me to leave the treatments alone and use the pool and take the aquatic therapy and exercise as much as possible and that the tailbone will eventually callus over and the pain will stop. I don't know whether that is true, but I have begun to have less pain than the last 3 years. Nothing the doctors have done does not seem to have helped the sitting problem. I can hardly sit for more than a few mnutes at the time. That really cramps your style!!

I do have pains so bad sometimes there is nothing I can do to feel relief. I take Oxycodone for pain, Neurontin for nerve damage pain, and I take Aleve between. All the meds together does not help the pain, I use heat and ice packs. and now I take Elavil at night, Without it I would hardly sleep at all.
I did talk to the doc about removal of the tailbone and she said if I choose to do it that I should be sure the doc has successfully done it many times. My advise is to be sure you have no other problems causing the pain, and research the success of people who have had the surgery before you decide to do it. Look up the way it is done and make your decision then.

I would really like to hear more from you. I truly hope I have helped you even a little.Please give me some more info about your situation. Do you have trouble sitting all the time? Do you sleep well? Do you feel you have exhausted all the treatment options prior to surgery? You should be able to google and find the group who posts about this surgery. It is not a simple uncomplicated thing. I wish only the best for you. I await your response.View Thread

Posted byCharl1942

17 Replies | Reply | Watch This DiscussionReport This| Share this:Coccydynia or tailbone pain !! I will try to help you by giving you some information about the problems I have, and some...

Reply: discoloration of spine

Your daughter sounds like she is of latin or dark colored skin. Maybe a mix of darker and...

Posted by Charl1942

2 Replies | Reply | Watch This DiscussionReport This| Share this:discoloration of spine Your daughter sounds like she is of latin or dark colored skin. Maybe a mix of darker and...

Reply: Radio frequency ablation

Is a pulsed radio freqency and a radio freqency ablation the same thing? I have had two...

Posted by Charl1942

69 Replies | Reply | Watch This DiscussionReport This| Share this:Radio frequency ablation Is a pulsed radio freqency and a radio freqency ablation the same thing? I have had two...

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