
Reply: Failed Back Sugery Syndrome
A lot of us in this community are in the same place as you. It is so stressful after...
Posted by painloopy
A lot of us in this community are in the same place as you. It is so stressful after going through so many "fixes" only to still be in pain. Have you considered a spinal stimulator implant? It will not get rid of pain entirely. According to my doctor majority of people get 50% more pain relief than with pain meds alone. I have one and it has made a significant difference. It isn't 50% more relief for me. I still take meds but if I didn't have the stimulator implant I would be taking much more. Doctors implant a trial one for a week to see how it works for you but in my case it was really hard to tell until it was fully implanted and the pain from getting it done subsided.
The other thing I found was to continue with physical therapy forever instead of just temporarily. I do pool physical therapy 2-3 times a week religiously and been doing it for 6 years now. If I don't do it - my pain level gets much worse. It helps to give me more core strength so my hips and lower back can support the problem areas in my spine better. Without it - there is more pressure on your musculoskeletal system to support the stress on your back. What is ESI?
I hope this gives you some ideas.View Thread
Posted bypainloopy
The other thing I found was to continue with physical therapy forever instead of just temporarily. I do pool physical therapy 2-3 times a week religiously and been doing it for 6 years now. If I don't do it - my pain level gets much worse. It helps to give me more core strength so my hips and lower back can support the problem areas in my spine better. Without it - there is more pressure on your musculoskeletal system to support the stress on your back. What is ESI?
I hope this gives you some ideas.View Thread
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Post SI joint RF ablation results
Hi all, I had radio frequency ablation done to my right SI joint area a few weeks ago and...
Posted by painloopy
Hi all,
I had radio frequency ablation done to my right SI joint area a few weeks ago and have not gone back to my doctor yet for follow-up. That is next week. I've been having mixed results as time has progressed so I wanted to know what others have experienced. At first my SI joint area was numb for a few days then I started having muscle spasms in that area and subsequently pinched pain. This week I've had pain radiating from the SI joint area to the hip area. So now I'm not sure if it worked at all but I read on some articles that it takes time to fully work but don't say how long or what to expect. I'm sure everyone is different to an extent. I just want to know if it worked for you - how did it progress from the time you had it done to it officially working? Was it immediate or was it progressive and how long did that take?View Thread
Posted bypainloopy
I had radio frequency ablation done to my right SI joint area a few weeks ago and have not gone back to my doctor yet for follow-up. That is next week. I've been having mixed results as time has progressed so I wanted to know what others have experienced. At first my SI joint area was numb for a few days then I started having muscle spasms in that area and subsequently pinched pain. This week I've had pain radiating from the SI joint area to the hip area. So now I'm not sure if it worked at all but I read on some articles that it takes time to fully work but don't say how long or what to expect. I'm sure everyone is different to an extent. I just want to know if it worked for you - how did it progress from the time you had it done to it officially working? Was it immediate or was it progressive and how long did that take?View Thread
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Reply: Pain still after surgery ?? Help
Hi Lovey21, I'm so sorry to hear that you are having these issues post surgery. I agree...
Posted by painloopy
Hi Lovey21,
I'm so sorry to hear that you are having these issues post surgery. I agree with Joy that you should not rush into too much physical activity too soon. I had the same surgery back in 2003 in November. I had to wait 6 weeks before starting PT. And even then it was not much. Before then the doctor just had me do short walks around the house every hour so that I would not get too stiff and keep my muscles from getting weak. After a month - I got cocky and was dying to get out so I had my husband take me to the mall for a longer walk. I seriously hurt myself by doing that so my doctor tried doing a steriod injection to calm down the inflammation I had caused. After another week - the disc squished out the rest of the way because I kept trying to push it too soon to get back to work so I had to get a second surgery to fix it! I look back on it now and kick myself for being so impatient. I know how it is stressful to be out of work for long but just remember - you only have one back but there are a million jobs. If you have worked at the same place for 26 years - I'm sure they have enough respect for you to allow you to heal without causing serious jepardy to your position.
When you do start PT - keep in mind that you are still healing and you will NOT get better in one week. Rarely do patients get back surgery and feel better quickly. PT takes time. You may have to do it for a long time to come in order to keep your back and core muscles strong so you don't have anymore issues. Talk to your physical therapist about what hurts and they will adjust the activities as needed. Also - talk to your doctor about what the physical therapist is doing so he can also make recommendations as to how much you should be doing at this point.View Thread
Posted bypainloopy
I'm so sorry to hear that you are having these issues post surgery. I agree with Joy that you should not rush into too much physical activity too soon. I had the same surgery back in 2003 in November. I had to wait 6 weeks before starting PT. And even then it was not much. Before then the doctor just had me do short walks around the house every hour so that I would not get too stiff and keep my muscles from getting weak. After a month - I got cocky and was dying to get out so I had my husband take me to the mall for a longer walk. I seriously hurt myself by doing that so my doctor tried doing a steriod injection to calm down the inflammation I had caused. After another week - the disc squished out the rest of the way because I kept trying to push it too soon to get back to work so I had to get a second surgery to fix it! I look back on it now and kick myself for being so impatient. I know how it is stressful to be out of work for long but just remember - you only have one back but there are a million jobs. If you have worked at the same place for 26 years - I'm sure they have enough respect for you to allow you to heal without causing serious jepardy to your position.
When you do start PT - keep in mind that you are still healing and you will NOT get better in one week. Rarely do patients get back surgery and feel better quickly. PT takes time. You may have to do it for a long time to come in order to keep your back and core muscles strong so you don't have anymore issues. Talk to your physical therapist about what hurts and they will adjust the activities as needed. Also - talk to your doctor about what the physical therapist is doing so he can also make recommendations as to how much you should be doing at this point.View Thread
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Reply: Alternatives to Spinal Cord Stimulation Therapy?
I forgot to add - I still have to take a lot of meds for pain and nerve issues but less...
Posted by painloopy
I forgot to add - I still have to take a lot of meds for pain and nerve issues but less than I would have if I didn't have the spinal stimulator implant. It isn't a cure to the problem - just a something to help make the problem bearable.View Thread
Posted bypainloopy
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Reply: Alternatives to Spinal Cord Stimulation Therapy?
Hi Ms_cupcake95, I had a spinal cord stimulator implant put in around 2007 and it has...
Posted by painloopy
Hi Ms_cupcake95, I had a spinal cord stimulator implant put in around 2007 and it has made a big difference in my pain level. I have a lot of lower back pain, muscle spasms, and nerve issues going on and not sure what all your family member is looking to help with it so each person's response can be different. My doctor said before mine not to expect it to relieve all your pain and most people who have it done get around 50% more pain relief than without it. Mine is around 35-40% more than without meds now but didn't start out that way. As Joy indicated - they do a trial run before the permanent implant is complete. With my trial, I honestly couldn't tell how good it was going to be because having the leads put in causes soreness and having the device strapped on you and walking around for a week like that is annoying in and of itself. You can't take a shower during that time. I'm glad I went for it and decided to go with the permanent implant because in the beginning, it seemed to only help me around 20% more but now I can't live without it.
If you ask someone who has chronic pain if they had something that would help even a little with their pain they would say "bring it on".
The procedure has it's risks and the doctor goes over it with them but it is no more risky than having spinal injections or surgery. Usually a doctor will not suggest this device unless they have tried all other methods of pain relief and/or surgery to relieve the patient so you may want to ask your family member if that is the case. Also - get second opinion from other doctors to make sure that is the only option left. I have not had any issues with mine mechanically - it's made by Boston Scientific and they send reps out to "tune you up" whenever it seems like it may need adjustments in pain relief. At some point they have to change the battery in the part that is implanted in my back but so far the reps say it still looks like it has plenty of charge to it after 6 years! I hope this helps.View Thread
Posted bypainloopy
If you ask someone who has chronic pain if they had something that would help even a little with their pain they would say "bring it on".
The procedure has it's risks and the doctor goes over it with them but it is no more risky than having spinal injections or surgery. Usually a doctor will not suggest this device unless they have tried all other methods of pain relief and/or surgery to relieve the patient so you may want to ask your family member if that is the case. Also - get second opinion from other doctors to make sure that is the only option left. I have not had any issues with mine mechanically - it's made by Boston Scientific and they send reps out to "tune you up" whenever it seems like it may need adjustments in pain relief. At some point they have to change the battery in the part that is implanted in my back but so far the reps say it still looks like it has plenty of charge to it after 6 years! I hope this helps.View Thread
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Cortisone Injection on SI joint - subsequent groin...
I had an SI joint injection to the right side SI joint last week in preparation for radio...
Posted by painloopy
I had an SI joint injection to the right side SI joint last week in preparation for radio frequency lesioning later this month. Unfortunately I think the doctor hit a nerve wrong and I immediately had terrible shooting pains down the back of my right leg and it continued for several days into the weekend. That has gotten better over time but I also have sharp nerve type pains in the front of my groin area on the right side also - I don't know if these are related or should I be worried about it being something else? It is not getting better as the back of the leg pain is. I've called my doctor but he hasn't returned my calls yet - putting ice on it but not helping. Any suggestions?View Thread
Posted bypainloopy
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Cortisone Injection on SI joint - subsequent groin...
I had an SI joint injection to the right side SI joint last week in preparation for radio...
Posted by painloopy
I had an SI joint injection to the right side SI joint last week in preparation for radio frequency lesioning later this month. Unfortunately I think the doctor hit a nerve wrong and I immediately had terrible shooting pains down the back of my right leg and it continued for several days into the weekend. That has gotten better over time but I also have sharp nerve type pains in the front of my groin area on the right side also - I don't know if these are related or should I be worried about it being something else? It is not getting better as the back of the leg pain is. I've called my doctor but he hasn't returned my calls yet - putting ice on it but not helping. Any suggestions?View Thread
Posted bypainloopy
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Reply: Spinal Fusion after disc replacement on same level...
Hi freewaybaby, This is most helpful to know. I do have nerve pain down both legs to my...
Posted by painloopy
Hi freewaybaby, This is most helpful to know. I do have nerve pain down both legs to my feet and have not heard of Nucynta. I will definately look into this one now though. I've tried neurontin (aka gabapentin), tramadol, Lyrica, and Cymbalta but they either did nothing or had bad side effects.
Right now I rely on ice, Lidoderm patches and also have a spinal cord stimulator and it does help more than any meds so far to a point. Once the nerve flares go past level 6-7 then forget about it - nothing will touch it.
I also have anxiety and depression issues and found that meditation (my therapist showed me a great one that involves breathing and loosening all the muscles systematically) and wellbutrin work best but still can't handle much in the way of over stimulation - like going out in crowded places without high anxiety.
Most of us on this board are addicted to our meds - I don't know how we wouldn't be considering the narcotics involved. Thanks so much for sharing this info - I will look into Nucynta.View Thread
Posted bypainloopy
Right now I rely on ice, Lidoderm patches and also have a spinal cord stimulator and it does help more than any meds so far to a point. Once the nerve flares go past level 6-7 then forget about it - nothing will touch it.
I also have anxiety and depression issues and found that meditation (my therapist showed me a great one that involves breathing and loosening all the muscles systematically) and wellbutrin work best but still can't handle much in the way of over stimulation - like going out in crowded places without high anxiety.
Most of us on this board are addicted to our meds - I don't know how we wouldn't be considering the narcotics involved. Thanks so much for sharing this info - I will look into Nucynta.View Thread
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Reply: Therapy In Water
This is good news! I try to tell folks all the time how pool PT really helps with chronic...
Posted by painloopy
This is good news! I try to tell folks all the time how pool PT really helps with chronic back pain issues. Of course, it really depends on what your pain is caused from as to how much benefit it may do. I've been doing it religiously at least 2 times a week for almost 6 years now. I started out at 15 minutes going very slow. Now I'm at 25 minutes but I have more PT movements and walk faster than I used to. My pain level has leveled off between 5-6 most of the time unless my back flares up from over-doing it. If I get sick or for some other reason can't make it to the pool my pain level gets dramatically worse in just a week and goes to around 7. That makes it hard to get back to the pool but I start back at 10-15 minutes and work back up to 25 min in a few weeks. Hot tubs with jets really help afterwards also to work out any muscle spasms the exercise causes. Good luck and keep it up!View Thread
Posted bypainloopy
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Reply: injections for facet pain...
I tried them 5 years ago and had absolutely no help from them but then recently my facets...
Posted by painloopy
I tried them 5 years ago and had absolutely no help from them but then recently my facets and MI joints were really inflammed after a back pain flare I had that lasted a month to the point I could barely walk so my doctor suggested I try them again. This time they did great! I don't know what, if anything, was different but my pain level definately was lessened back to what I had prior to the big flare (my normal) so I was very pleased. I do think everyone has individual results with these. I've had friends who consistently get relief with them and others who never get relief from them with very similar conditions.View Thread
Posted bypainloopy
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