Yeah, my doc doesn't say "pain relief" he just asks how I'm managing it. He knows it will never go away.
My goal is to be able to use the pump with no oral meds.
My old medical insurance ran out and I'm still making daily phone calls to medicaid and at least I had human contact today. It's progressing. As is my SSDI. Once that goes through I'll be off medicaid and on regular insurance that is heavily subsidized due to affordable healthcare. My income will be based on SSDI only so hopefully we can make it through the transition.
Sorry for being AWOL. I've been frantically working with insurance,our government, my doc and my wife
I feel pretty good measured in our world. The pump manages the pain about like the oral meds did when they worked well.
If I over do it, I can't control it with extra meds and just have to wait for things to mellow.
This is a good thing as I don't have the roller coaster effect of oral meds.
The bad thing is I can't get more relief when I've really over done it. I can administer small bolus doses, but they are very subtle and don't provide much relief. Overall I've gone from a constant 8-9 to a 2-5 so that's really good and I take no oral analgesics to help out. I don't want to use any oral pain meds I think we can the pump dialed and I don't expect to be 100% pain free.
The pump is not that small and my diaphragm area is already shortened by 3-1/2" of loss of height. This make real estate around my diaphragm at a premium for things like a bladder, lungs,liver colon etc. I can hardly bend or twist making things like tying my shoes difficult.
I'm always short of breath and I pass pass gas whenever I bend over. I have problems breathing in general and am a bit uncomfortable.
Overall pain is good, but I think I'm wearing out L4-L5
Thanks Joy. I hope you're doing deter after your pleasures !
Joy, I know you don't want to hear this, but my last lumbar surgery took 18 months to recoup !
At a year I told my doc it was a mistake as I was worse off than I had been and have been suffering worse for a year! He told me to be patient and give it more time. "You've had multiple back surgeries and you're getting older. It takes longer to heal when back has been through that much trauma!"
Six months later I started feeling better
Hang in there. It's ok to cry, our lives suck, but when you're done crying remember life is a blessing and enjoy the beautiful things around you.
I'm right in the apex of going on permanent disability or trying to go back to work. Everyone knows I'd fail at work, but if I could make it 90 days I'd get a year more medical insurance. Totally disingenuous to do, but allowing my family to lose their insurance is immoral! Talk about a rock and a hard place!
Everything should work out, but if it doesn't it will be too late to do anything. I would feel so much better if I just had some facts!
I paid just under $100 for dental (4) people and have no way to use it!
I'm supposed to get a letter (package) soon with lists of doctors etc.
I'll need a new family doc. I loved my old one, but my wife got in a major hassle ( her fault) and they made her leave. I'd talked to him prior and we were set... The new doctor we're seeing doesn't take medicaid patients.
I'm really upset my wife went off and got stupid and now I lost the best family doc I've ever had.
She keeps saying she's leaving me... Maybe I can go back to him later?
I was hoping to get her counseling from medicaid and try to get her help, but if I can't she's destroying me and our daughters...I'm stuck in the middle.View Thread