I've been hearing for over 14 years..."in 2-5 years there will be a quantum advance in pain medication and chronic pain treatment. I've read about exotic DNA science and meds that will selectively tell the brain to ignore certain signals...or stop the gate itself from sending the signal.
Well those articles in Scientific American are getting pretty dusty and we're still taking white willow bark and opioids. Sure some of the opiads are synthetic and extended release, blah blah, but aspirin has still not a "quantum" change from white willow used thousands of years ago.
I'm not holding my breath for any big advances in my lifetime. I'm thankful I can live with what I have.
Yes, the Scottsdale Mayo Clinic is world renowned...I guess you can say good things about the Mayo Clinic without breaking the rules
I just went to the pain pump manufacturer's site and put in the zip for Saint Charles, Maryland. I got 16 doctors that are in the pump network.
What strikes me odd, is pain pumps are for uncurible chronic pain. Fentanyl is prescribed for end of life treatments. The pumps are expensive, require 6 - 12 months to get approved and implanted and then months to get calibrated. Most cancer patients suffering that bad would not likely be around after such a long process.
I completely disagree with what you've been told. I don't know if the MC implants pain pumps, if not you may want to go to the manufacturers site and search by zip code.
The caveat is, I don't know if the pump is right for you. There are many variables and you must undergo a psych evaluation before being approved. I spent almost five years talking to docs about the pump. I kept saying "no" until one day it finally made sense.
Ironic, to read about pain docs prescribing fentanyl for chronic pain even though the class action law suits brought the attention that it's an end of life drug to help cancer and other terminal patients. Long term use can be dangerous as there have been many suicides believed to have been triggered from it...I personally almost took my life while on fentanyl. I've never felt so sick in my life. I got a glimpse of psychosis!
The pump gives you no pharmacological side effects since the meds are delivered and metabolized in the spinal fluid. They never interact with the blood or renal systems. The dosing is also extremely small. My analgesic consumption is 1/100th of what I was taking orally. I would say that speaks to the efficacy of the delivery system.
It's not perfect, but it's the best thing that's happened to me.
I agree with Terrye completely, but that doesn't make it a simple answer. I started having negative side effects on all of the oxys after 6-12 months. Anything from anxiety to full blown psychosis and physical illness.
After 14 years I was able to do kind of what Terrye describes, that along with a pain pump turned my life around. With 12 vertebrae fused my chronic pain was unbearable. The Pain pump places enough analgesic in the spinal fluid to keep the pain manageable. I no longer take any oral opioids which leaves me feeling so much better.
It's a tough road for all of us and there is no one size fits all solution. Finding a good pain doc to help you find your solution is the only way to find a quality life.
I can't recommend it, it took me years to make my decision. There's a lot of variables and you really need to talk about it with your doctor. In my opinion the pump has worked better for ME than anything else.View Thread
We're not supposed to use proper names or identification of doctors, manufacturers, businesses etc.
That being said your story is compelling. I didn't lose my business...I guess I was lucky I got hurt before I opened my own company. I had it all set up. I had multiple contracting licenses in NV and the paper work started to take my credentials to Montana. After I got hurt I knew I couldn't start my business, it was all I could do to make it to my office and pretend I was OK. All my years of math and electrical/ electronics just faded away as pain consumed all.
Back to you, I can't believe a neurologist didn't look at the secondary impact of your brain hitting the inside of your skull from the impact! I can't imagine you didn't suffer some subdural hematomas!! Did they MRI your brain?
I'm sure there was much soft tissue damage too...its one of those cases were you likely would have been better off breaking some bones rather than destroying soft tissue.
If you read much of this forums you'll find most of us absolutely agree on the importance of neurologists as part of your team.
Good luck on your surgery, about 9 months ago I had a pain pump implanted and it's been a God sent. I had to give up working, but at least I feel somewhat normal again. My pain is so much less and I no longer take any oral pain meds.
Yes, most of us have used TENS and/or ultrasonic equipment. TENS is becoming widely used for a broader scope of treatments. Originally it was invented by Dr. Patrick Wall and Dr. Ronald Malzack PhD. They discovered in their work understanding the Gate Control Theory. The electric signal would distract the "gates" thus not allowing the pain signal to continue on to the brain.
Since that time it's been found to be quite effective preventing muscle atrophy after surgery.
That's great that the technology is giving you relief.
The hard part is it is knowing what problems will occur years later. Fusing two vertebrae to span one disc is very often successful as it has little impact on overall motion. Fusing three vertebrae across two discs will have twice the reduction in flexibility and put more force (in your case L4-S1) on the disc below.
Definitely more immediate trauma too, but you (or your Dr) can't predict the damage the extra fusion will cause 5-10 years down the road. By then the legal statutes for a law suite are long past and you're left holding the bag.
I would get a lawyer and a new doctor not related to the old one in anyway.
I'm not a lawyer problem, but in your case this has a 99% chance of causing expensive and painful problems and these may take a decade to come to fruition. You need to protect yourself.