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If you are interested in the research results feel free to contact me Cantor.injuryresearch@gmail.com
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Just want to write to say hi to all and sorry that you are all going through the ill effects of this damn cancer, but lets look outside and enjoy all of the newness that this time of year brings. The pansies, daffodils and tulips are all showing their true colours, some of the my trees and shrubs are budding and even beginning their journey of leafing out. I know that we all live in different parts of the country and world but it is Spring were I am at, the snow has gone for now, yeah and it is somewhat warmer that what it was in Jan & Feb of this year. A little worried about the lack of snow we got this year though, as I need all the water I can get to keep my petunia's and other plants growing and looking great all summer long.
I hope that we can share a favourite spring story that will cheers us all up. My story is that Spring brings with it new beginnings, new life and a newness to one that we can endure all and carry on....
I hope that where ever you are the sun is shining and the bulbs are blooming...
Cheers to all
Mary View Thread
"Tips" have been compiled over some time by those who have been there/done that...Make use of what they have gathered just for those who find themselves in similar situations. Is it guaranteed to help YOU personally? No. However...IT JUST MIGHT!!
Blessings.
RachaelView Thread
This last weekend I attended a Retreat with the Image Reborn Foundation. Once a month this Foundation sponsors a weekend at either a resort location or a home in the mountains of Northern Utah. This weekends retreat was for those with Stage IV BC, they have retreats for all stages as well as survivors and young survivors, my only cost was getting myself there. Two of the women had flown in from Pennsylvania.
They have discussions, fine food & wine, discussion groups, coping, stress reduction and treatment options. It depends on what your needs are. Oh, we also laughed and cried a lot and shared experiences about our journey.
Here is the link to there website
www.imagerebornfoundation.org or call 1-435-640-5119
You all DESERVE a weekend like I just had.
Love to all
Mary
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She survived the chemo without a problem, got through the radiation, we made it through the holidays, put winter behind us (I HOPE) and had her first visit with a plastic surgeon. At the end of the month she has a PTScan and, oh ya, she had her first mammo since this all started almost 18 months ago.
It has been a wild ride for her and I truely feel for anyone, and thier families, who has/have to go through this. My wife had a great support system besides me and it has taken everything we had to help her battle this. I don't know how my wife or I would have done it with all the help we got and I feel bad for those that don't have the support. I pray for you all and think about how lucky I am to have her here with me and for all the thoughts and prayers from everyone, here and everywhere.
Sorry for the little tangent, "BW" still has not decided if she wants to have any reconstruction but she does have another appointment with the plastic surgeon in November. I told her whatever she wants is what I want for her. She still has bad days where she says she doesn't feel whole but I try to tell her she seems to me all there to me. LOL
Again I just want to thank everyone hear and know that I/we think of the beautiful community often and I/we will be looking in often.View Thread
I've just become cancer free thru a needle biopsy..was 6mm
and a biopsy on my lymphs were all clear. Within the next week I'm to go for a radiation consultation. That does not worry me to much. I also will be seeing someone on the Hormone therapy treatment. The one I will be on is called arimidex. I don't know if I'm going to take this with all the side effects I read. I'd like to just do the radiation. I don't want to deal with all the side effects at age 62.. I'm enjoying life as is. Then if I go on this for five years with all the side effects I'll be 67 . Were you on this? How was it for you.............View Thread
I am still feeling pain off and on in those same areas, and still feeling masses there. I am wondering if I should continue to press my doctor on the subject, or if the negative test results ruled out anything serious from the painful areas.View Thread
Read my blog at www.mch-breastcancer.blogspot.com
Smile and the world smiles with you!
Those of you who have my email address can keep in touch that way. Plus I have my blog - www.mch-breastcancer.blogspot.com
And I post regularly on www.breastcancer.org where there are thousands of participants and awesome moderators. My ID there is LuvRVing if you try to find me.
I am struggling with an aggressive chemo treatment but maybe it's finally one that works. It has knocked my blood counts very low so I am very anemic. But I continue the battle and try to live my life as best I can.
Luv and hugs to you all,
MichelleView Thread
Read my blog at www.mch-breastcancer.blogspot.com
Smile and the world smiles with you!
I asked the doctor about the lump in my arm. I also asked about the fact that I had pre-cancer cells of my cervix in 1998. At that time I had a leep procedure and my next pap came back ok.
I asked a nurse about my cervix in 2010 and the pre-cancer cells. That nurse said that cancer is cancer she said they just call it pre- cancer.
In 2002 I had to have a TAH (total abdominal hysterectomy) because after the birth of my daughter I had POP (pelvic organ prolapse)(and a posterior repair) the doctor left my ovaries, I don't know why he left my ovaries (I am told it was because I was 36 yr old) but I have had endometriosis and fibroids removed two times (2000 and 2002). I have had a pear size cyst removed (2000) and endo removed in 2000 and 2002 (I think it was a long time ago.)
Is any of this related to Breast cancer?
I know I still have endometriosis, and scar tissue, I have CPP (chronic pelvic pain.)
I also have Interstitial Cystitis, my bladder has shrunk to 400ml ( a normal bladder holds about 1,200ml) I have scaring and pinpoint bleeding all over my bladder. My Rx s to help me get through the day with IC (I take 10 to 11 pills a day) my Rx run a month about 630.00 per month. I have been on SSDI disability since 2009.
Thank You, ChrisView Thread
As a participant, you will be asked to communicate within the Facebook group, Chemo Chat. By reading the communication on the wall within this group, I can establish to what extent the group might affect patient-to-patient interactions. You are encouraged to log on and communicate with other group members at least once per week and are not limited to any particular subject while communicating.
Using Chemo Chat as a Facebook community is the least costly method of research within the chemotherapy community, and allows me to quickly assess conversations and retrieve data. It also provides me the opportunity to add a level of confidentiality by keeping the group closed, or private. This means that the only users who can view any of the group content are the Chemo Chat members.
When reviewing the posts of other group members, you may not feel comfortable discussing personal health information. To minimize this risk and ensure confidentiality, Chemo Chat has been designed as an invitation-only, or closed group, which means that only the administrator, Emily Garber, and all other invited group members can view the posts. All other Chemo Chat group members are current chemotherapy patients. After the Chemo Chat research project is completed on April 1, 2013, the administrator, Emily Garber, will keep the group on Facebook but will no longer be collecting data from the posts. The data gathered for this capstone project will be used for a final project presentation to the graduate faculty and graduate students of the University of West Florida's Department of Communication Arts in April.
In order to participate, please log on to your Facebook profile and request to become a member of Chemo Chat, at http://www.facebook.com/groups/chemochat/
You must also sign the Informed Consent to Participate in Research Study form, which can be accessed at https://docs.google.com/document/d/1YC0XtvUtFKKD6AmzOWh0IK9UJzPwNs3-hmDLrykG1Ig/edit and e-mail the signed document to the administrator, at eag20@students.uwf.edu
You will be added shortly thereafter by the administrator, Emily Garber.
Thank you for your participation!
If you have questions later, please contact my advisor, Dr. Brendan Kelly, at bkelly@uwf.edu or 850-474-2332View Thread
I hate to see a newbie come as it is so very overwhelming when this journey begins. Of course, the rest of the travel plan is not necessarily an easy road either. But being with one another virtually or in person makes things considerably better.
I just felt that I needed to tell the whole gang: Janie, Billie, Roberta, Shell, Jenna, Chris, Judy, Karen and everyone that I do continue to think of each of you, have not abandoned you but do keep a watchful eye on this site. Please know this.
Blessings always.
RachaelView Thread
I went in on 2/14/13 and had a mammogram. 3 hours after my mammogram I was called by the imaging dept in the city nearest me. They said I had a lesion next the pec-muscle and it is 9mm that I have to come in to get another Mammogram and maybe a ultrasound.
On 2/12/13 I went to an orthopedic doctor who took a x-ray of my hip that has been causing me problems. I have been told for years that it is bursitis. This doctor told me I have maybe bone spurs that are rubbing on the muscle on the outside of my right hip. He took x-rays and saw something he didn't know what it was. He said hip fracture, tumor, or maybe a bone defect. He ordered a bone scan.
I went in to the hospital for the bone scan and the breast mammogram on Wednesday.
The Mammogram showed a 11mm by 6mm lesion in my right breast. Then I went for my bone scan, I had to have an injection of some type of safe radiation into my vein and had to drink a lot of water. The scan showed a very bright white spot in the hip area where I am having the pain. A radiologist is to read this and then get the report to my doctor by the 25th. I was informed that my doctor is on some type of administrative leave and nobody knows when he will be back.
I then was told I have to go back up stairs for an ultrasound. The teck-persons doing the ultra sound could not find the lesion. They called the doctor in to do the scan and she couldn't find the lesion either. They said I have dense breasts and the lesion is close to my peck-muscle. They then got a mammogram from 2009 and said that there was no lesion on that mammogram so now I have to go back to the hospital on the 28th and have a ultrasound guided biopsy of the breast lesion. I don't know how they are going to do that because they couldn't find the lesion when they used the ultrasound.
I am really worried here.
My sister died of breast cancer in 1985 she was 32 and I was 19. It was offal. When my sister was 29 they removed a breast and part of her armpit and did not get all of the cancer. The cancer spread to her bones, brain, it went all over and was a terrible way to die.
I don't know if I have cancer. The hip scan and the mammogram have me worried.
Does anyone have any information they can offer.
I don't even know what the 11mm by 6mm means, is that the length and the width of the lesion? Is it the diameter and depth of the lesion in my breast? When I looked at the mammogram it looked like a cluster. There was no pea-shaped image on the mammogram. It looked like an ink splatter with no defined shape. They said it was a tough lesion because it is so close to the muscle tissue. It could not be felt by the doctor on exam.
I had a breast exam twice last year by an OBGYN and a PA and neither of them felt anything. The doctor who did the ultrasound couldn't feel anything either.
Any information would be greatly appreciated. I know I have 7 days to hopefully find out something after the biopsy but any information would be great.
If this is cancer and it has gone into my bones...what are my chances?
Thank You, ChrisView Thread
I went in on 2/14/13 and had a mammogram. 3 hours after my mammogram I was called by the imaging dept in the city nearest me. They said I had a lesion next the pec-muscle and it is 9mm that I have to come in to get another Mammogram and maybe a ultrasound.
On 2/12/13 I went to an orthopedic doctor who took a x-ray of my hip that has been causing me problems. I have been told for years that it is bursitis. This doctor told me I have maybe bone spurs that are rubbing on the muscle on the outside of my right hip. He took x-rays and saw something he didn't know what it was. He said hip fracture, tumor, or maybe a bone defect. He ordered a bone scan.
I went in to the hospital for the bone scan and the breast mammogram on Wednesday.
The Mammogram showed a 11mm by 6mm lesion in my right breast. Then I went for my bone scan, I had to have an injection of some type of safe radiation into my vein and had to drink a lot of water. The scan showed a very bright white spot in the hip area where I am having the pain. A radiologist is to read this and then get the report to my doctor by the 25th. I was informed that my doctor is on some type of administrative leave and nobody knows when he will be back.
I then was told I have to go back up stairs for an ultrasound. The teck-persons doing the ultra sound could not find the lesion. They called the doctor in to do the scan and she couldn't find the lesion either. They said I have dense breasts and the lesion is close to my peck-muscle. They then got a mammogram from 2009 and said that there was no lesion on that mammogram so now I have to go back to the hospital on the 28th and have a ultrasound guided biopsy of the breast lesion. I don't know how they are going to do that because they couldn't find the lesion when they used the ultrasound.
I am really worried here.
My sister died of breast cancer in 1985 she was 32 and I was 19. It was offal. When my sister was 29 they removed a breast and part of her armpit and did not get all of the cancer. The cancer spread to her bones, brain, it went all over and was a terrible way to die.
I don't know if I have cancer. The hip scan and the mammogram have me worried.
Does anyone have any information they can offer.
I don't even know what the 11mm by 6mm means, is that the length and the width of the lesion? Is it the diameter and depth of the lesion in my breast? When I looked at the mammogram it looked like a cluster. There was no pea-shaped image on the mammogram. It looked like an ink splatter with no defined shape. They said it was a tough lesion because it is so close to the muscle tissue. It could not be felt by the doctor on exam.
I had a breast exam twice last year by an OBGYN and a PA and neither of them felt anything. The doctor who did the ultrasound couldn't feel anything either.
Any information would be greatly appreciated. I know I have 7 days to hopefully find out something after the biopsy but any information would be great.
If this is cancer and it has gone into my bones...what are my chances?
Thank You, ChrisView Thread
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