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I agree with Roberta, things may not be the same as it was etc., but last night I went to a class at the local cancer center and thinking that the people already in the room where part of the meditation class I was taking, NO they where there learning about rotten ole chemo and its side effects, I go, It never ends and it never will, then in the class as everyone was introducing themselves the woman next to me said she had Multiple Myeloma, truly I have never wanted to cry let alone leave the class as much as I did last night, It just won't stop.
I have been hit an miss about posting, but I read a lot of the posts and answers the ones that I feel I can be of some help, well I think and yes we have gotten to know others from all over the country. Way back when I met a woman from New Zealand who was going through BC and as I am from NZ we were able to talk about how we were treated etc by Dr's. She is still cancer free, and it had been over ten years since we meet on the board.
I am on a couple of other boards or posts or whatever we call them as it is interesting to connect with others.
Have a good day and like me pop in now and then. Jan I maybe in Seattle this July so, I would love to look you up if time permits. Husband & Daughter are riding from Seattle to Portland in two days, I will be SAG Support - - - -
Enjoy the day
Cheers
to all
MaryView Thread

How is it going, glad all is well with you, I had a wondejoyrful time in Tampa, oh it was so warm, only the last day was cold, cold northwind blue into town. I enjoyed the beach three of the afternoons, then relaxed by the pool one of the day, got in a lot of reading and walking...
Hope all is well
Cheers
MaryView Thread

My story port is a little different than most, in 2009 I went through chemo, no port was put in, no one informed me about ports etc. When I got to about the second to last port the nurse goes you should have a port put in, I said I only have two more treatments, so I got by without. I managed to go close to two years before we found it again and I was going to the Dr literally every other week, having scans etc. I ended up mentioning to the Dr that I had decided that the nurse would get my chart then hide out of sight tossing a coin to see who was going to poke me and try and get blood out of me. I could only use my left arm, right arm back in 2001 had the lymph nodes removed. I was informed two weeks ago by the same nurse who suggested I get a port back in 2009 that he knew of a person who had it in for eight years. Just keep flushing it. I go in once a month for blood work and flushing. Chemo is awful on your veins, regardless if a port is used from the onset or not. Well that is what I was told.
Good luck.....View Thread

I am so sorry for your loss, I did not know that she had passed away. It is hard to lose one's mother. I hope that all is well and things go smoothly for you.
Cheers
MaryView Thread

You deserve to go out and party with the results that you received today/ Always good when no more cancer is found, Take care and I will think of you when I warm and toasty in Tampa next week.
Stay out of trouble, visit JoAnn's and find the best restaurant in town and have desert first.
Cheers
MaryView Thread

I hope that all is well. Your mother is amazing at what she did. I thank you for sharing what she has done with her personal things. I can only hope that I can become as motivated as shes was and get all of my things organized.
I hope that you are doing good and enjoying this new year.
Cheers
MaryView Thread

Good luck with your CT Scan, I hope that all is well. I am doing my best to stay our of trouble. Cannot do to much outside as it is so dang cold. Next week I am off to Florida, problem is we are only staying a week. Guess beggars cannot be choosers right. Well I am working on a dream and no sure how it will pan out, but I came up with this bright idea to start a group for those with Met BC, a social worker at the Cancer Center I go too has helped me. The purpose of the group is to give back to the community and to those who need help and support. I am not sure of what the turn out will be, but I can only try.
Take care and I hope that all is well with you and that nasty ole cancer takes a hike!!!!!
MaryView Thread

Thank you for your responses, I am doing good, I think I may have written what I was trying to say wrong. I get frustrated with with the Dr's when they read them and write what they see then, when you have another one they are mention something that was seen on the previous scan but the radiologist who read the previous scan did not mention it and when I get to the oncologist, he basically says there is no change but the radiologist has mention this and that. When I ask if I can actually see the scan they have a small computer screen that show literally nothing because ones body is bigger than the computer screen. I think the TV Dr's have it down pat, they have those big screens hanging on the wall and that show all, truly would like to know how they get those xrays to look like you have a brain tumor when they are only actors..
Like I said it is the frustrations of how the results are presented, and yes I have copies of every report. My daughter is dating a Dr so I just send all the results to him and he when he can tells me what all those big words mean.
I hope that things are going good for you all .
Love to all
MaryView Thread

This is my question, what is the point of having all of these scans. Last year I had one PET/Scan,four MRI that included two lumbar spine, one of the hips and one of the pelvis, then a CT scan of my lungs last week. In 2011 I had two MRI and two PET scans and what is so funny is I could never figure out what they are telling me. With a PET scan if you do not light up like a light bulb, all is good. I mean they do not mention that there are per say lesions in all of your bones, or anywhere else. I mean after having what six MRI I did not know that the lesion where in my bone marrow, it seems everyone else did, because I did not understand the terminology of what they were seeing. I had a CT scan of my lungs last Saturday, they were looking for blood clots, I was at the emergency room and guess what the Dr was more concerned with where all the lesions in my thoracic vertebral levels consistent with metastatic disease that showed up on the scan of my lungs. In February I am off for another PET/Scan and it will be of great interest to me to see what they mention.
I truly love it when they use the words, "in comparison too or compared with or what was seen on the previous scan" but it is not noted on the report.
I am curious as to what your thoughts are about the results of your scans and are they worth it or should I proceed blindly and not worry about knowing if anything new has developed, my guess is the cancer will let me know if it is there, for me additional pain is the cancer letting me know that it is still moving around.
I hope all is well and that this year will be a good one for you.
Love to all
MaryView Thread

I hope that things work out for the best for your Mum, take care. ''Cheers''MaryView Thread
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