Making the decision to take the drugs offered or not is always hard for me. My biggest problem is I look more to what the side effects will do versus how the drug will help slow down my cancer. I was on Femara for a good year (manufactured by Mylan, little pink pill) then the pharmacy changed manufactures and was given a tan/gold pill - not sure who manufactured it. Well those little tumour markers started to climb. Earlier this month the Oncologist want me to try Aromasin & Afinitor - In the back of my head I felt like I needed to find the little pink pill again and give that another try - so will see next week if it is working. The biggest reason I did not want to take Afinitor is because of the long list of side effects. Presently I am conducting my own clinical trial. If the markers drop, then I am off to the pharmacy to let them know that what they were giving me did not work. No worries, the fingers and toes are crossed that they markers will drop.
Back in 2001 I felt that taking Tamoxifin was for me. I went eight years before cancer came back, wasn't the same type but I am still checking out everything they suggest I take.
Even though it is 20 degrees outside, sun is shining, the ground is covered with plenty of white stuff, I have, well kinda have, started things for my garden beds. First off I kept a lot of geraniums from last year and they need looking after and last week I began starting my seeds. If there was sun in my little garden work shop I would be in heaven, but alas, hubby does not want to cut into the side of the house. One flat with impatiens has already emerged, started more yesterday and will get more started today... So we can do all sorts to begin our gardening... Have a nice day and sorry for those who got lots of snow, as I am in the desert I love it as it means I can water my plants all summer long......View Thread
You have every right to be scared, I also feel good that they are wanting to do the test again, it is good they are going back now than later. As they say when we catch this beast early our chances are better.
I wish you all the best and please post your results.
I agree with Roberta, things may not be the same as it was etc., but last night I went to a class at the local cancer center and thinking that the people already in the room where part of the meditation class I was taking, NO they where there learning about rotten ole chemo and its side effects, I go, It never ends and it never will, then in the class as everyone was introducing themselves the woman next to me said she had Multiple Myeloma, truly I have never wanted to cry let alone leave the class as much as I did last night, It just won't stop. I have been hit an miss about posting, but I read a lot of the posts and answers the ones that I feel I can be of some help, well I think and yes we have gotten to know others from all over the country. Way back when I met a woman from New Zealand who was going through BC and as I am from NZ we were able to talk about how we were treated etc by Dr's. She is still cancer free, and it had been over ten years since we meet on the board. I am on a couple of other boards or posts or whatever we call them as it is interesting to connect with others. Have a good day and like me pop in now and then. Jan I maybe in Seattle this July so, I would love to look you up if time permits. Husband & Daughter are riding from Seattle to Portland in two days, I will be SAG Support - - - - Enjoy the day
How is it going, glad all is well with you, I had a wondejoyrful time in Tampa, oh it was so warm, only the last day was cold, cold northwind blue into town. I enjoyed the beach three of the afternoons, then relaxed by the pool one of the day, got in a lot of reading and walking...
My story port is a little different than most, in 2009 I went through chemo, no port was put in, no one informed me about ports etc. When I got to about the second to last port the nurse goes you should have a port put in, I said I only have two more treatments, so I got by without. I managed to go close to two years before we found it again and I was going to the Dr literally every other week, having scans etc. I ended up mentioning to the Dr that I had decided that the nurse would get my chart then hide out of sight tossing a coin to see who was going to poke me and try and get blood out of me. I could only use my left arm, right arm back in 2001 had the lymph nodes removed. I was informed two weeks ago by the same nurse who suggested I get a port back in 2009 that he knew of a person who had it in for eight years. Just keep flushing it. I go in once a month for blood work and flushing. Chemo is awful on your veins, regardless if a port is used from the onset or not. Well that is what I was told. Good luck.....View Thread