I hope that all is well. Your mother is amazing at what she did. I thank you for sharing what she has done with her personal things. I can only hope that I can become as motivated as shes was and get all of my things organized.
I hope that you are doing good and enjoying this new year.
Good luck with your CT Scan, I hope that all is well. I am doing my best to stay our of trouble. Cannot do to much outside as it is so dang cold. Next week I am off to Florida, problem is we are only staying a week. Guess beggars cannot be choosers right. Well I am working on a dream and no sure how it will pan out, but I came up with this bright idea to start a group for those with Met BC, a social worker at the Cancer Center I go too has helped me. The purpose of the group is to give back to the community and to those who need help and support. I am not sure of what the turn out will be, but I can only try.
Take care and I hope that all is well with you and that nasty ole cancer takes a hike!!!!!
HI Roberta and Michelle, Thank you for your responses, I am doing good, I think I may have written what I was trying to say wrong. I get frustrated with with the Dr's when they read them and write what they see then, when you have another one they are mention something that was seen on the previous scan but the radiologist who read the previous scan did not mention it and when I get to the oncologist, he basically says there is no change but the radiologist has mention this and that. When I ask if I can actually see the scan they have a small computer screen that show literally nothing because ones body is bigger than the computer screen. I think the TV Dr's have it down pat, they have those big screens hanging on the wall and that show all, truly would like to know how they get those xrays to look like you have a brain tumor when they are only actors..
Like I said it is the frustrations of how the results are presented, and yes I have copies of every report. My daughter is dating a Dr so I just send all the results to him and he when he can tells me what all those big words mean.
This is my question, what is the point of having all of these scans. Last year I had one PET/Scan,four MRI that included two lumbar spine, one of the hips and one of the pelvis, then a CT scan of my lungs last week. In 2011 I had two MRI and two PET scans and what is so funny is I could never figure out what they are telling me. With a PET scan if you do not light up like a light bulb, all is good. I mean they do not mention that there are per say lesions in all of your bones, or anywhere else. I mean after having what six MRI I did not know that the lesion where in my bone marrow, it seems everyone else did, because I did not understand the terminology of what they were seeing. I had a CT scan of my lungs last Saturday, they were looking for blood clots, I was at the emergency room and guess what the Dr was more concerned with where all the lesions in my thoracic vertebral levels consistent with metastatic disease that showed up on the scan of my lungs. In February I am off for another PET/Scan and it will be of great interest to me to see what they mention. I truly love it when they use the words, "in comparison too or compared with or what was seen on the previous scan" but it is not noted on the report. I am curious as to what your thoughts are about the results of your scans and are they worth it or should I proceed blindly and not worry about knowing if anything new has developed, my guess is the cancer will let me know if it is there, for me additional pain is the cancer letting me know that it is still moving around.
I hope all is well and that this year will be a good one for you.
I would be interesting in learning a little more about your treatment, and like Judy has mentioned, knowing more about your stage and type of BC would be very helpful, and how you were monitored. I wish you luck and pray that the cancer is truly gone for sure.
In 2001 I choose not to take Tamoxifin, mainly because of the side effects, I was told that it only gave me a 2% increase, and felt that it was not worth it. In 2009, a new primary BC occurred and as it was a new primary the Tamoxifin would not have stop it, may have prolonged the timing of the new primary. After 2009 I tired Aromazin and Femara but did not like the side effects and as the 2009 cancer metastatized Aug 2011 I have chosen to take Femara versus going through chemo again. It is keeping the cancer stable. If it had not returned I probably would not have taken it. My odds in 2001 of it coming back was 10% within the first five years. The odds in 2009 were about 75% that it would be back within 5 years. So again always take charge and do what is best for you....
Yes the sad at times is the cancer does travel to our bones. I have gone through BC twice (2001 & 2009), after all of the treatment of the second round, last year we discovered that the cancer had metasatized to my bones and bone marrow, oh I was in awful pain last year, this year has been a lot better. I have not had any radiation to my bones at this time or chemo since 2009. I am taking Femara... My Dr' did tell me that you can live quite a while with Bone mets. At this time, I have kept active, I walk at least six days a week, garden, ride a road bike. I can only hope that the radiation will help with the pain and she will be able to walk. As of today it has been a year and half since finding it. Where does your sister live? There are many people on this board who live all over and one of us could be close to her and maybe be of help to you and her.
I just want to wish you all a very joyful and happy Thanksgiving. We had our Family Thanksgiving, Sunday, I do this so my children have the day with their family. As the food was been blessed my mind went back to last at the same time when I wondered if I would be here for this one. Tears were rolling down my cheeks and of course my grandson pipes up saying "are you crying" "no," I lied. I did not know how to say to them that this time last year I did not think I would be here this year. So the game is to make sure I am here to cook that delicious meal that I cooked yesterday. I truly believe I out did myself on it this year.
Thank you all for sharing your thoughts, feelings and concerns, I do hope that you all are well and are enjoying life to the fullest.