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I am 57, I am three years out or is it four since I was diagnosed in 2009 with In Lobular, I went through chemo, then surgery then rad's, I do my best to enjoy each day at times it is not easy, I feel what is important is understanding what is important in your life, what you want out of it. It is understanding quality versus quantity. I have kept up my daily walking - I enjoyed road cycling and did a lot of that until this year when I go about once a week or when I can, I go a fair distance. As this is my second round with BC one of my biggest positives is I have survived a total of 11 years since my first diagnoses in 2001. I feel another positive is taking charge of what you want, I did what they wanted me to do both times until last year when we discovered it had metasatized to other areas when I said no more chemo, but I have had a very good year, things are stable. The journey is never easy but it is what you did along the way that is of utmost importance.
Cheers and good luck
MaryView Thread

Yes it is hard to believe that our summer is over, it is cold out there today and I need to get out before the day is out to get my impatiens out before it freezes tonight. This summer most of the garden did good and I started fertilizing everything with Miracle Grow, all was doing well, then all of a sudden, no idea why but all of my petunia's up and died on me, most of the ones in my pots turned all brown. It was funny as flowers next to them just kept blooming, so unless there was a bug in them I do not know. I have already started putting my flower beds to bed for the winter, now to decide if I want to plant more blubs,
I am glad that all of your testing is over with and everything is clear, I am still plodding along, I found out last month that there are cancer lesions in my bone marrow, have been there all along, I either did not hear the Dr last year or he just failed to mention it. As it has been there all along nothing has changed in what I am taking. Still stable. Just seem more tired. With the Holidays coming I need to get busy and decide what I am going to sew. My sister was here for three weeks and I got new covering for my outdoor furniture. It was worth the cost to buy material and more cushions, I'd still be at it if she did not show up to do it.
Take care and hope that all is well with you all
Cheers
MaryView Thread

I never did like wearing/using the fake boobs, I remember one night taking the bra and boobs off and throwing the bra and contents across the room, man did they fly. I just had an awful thought, if you are ever in a situation where you cannot get out of, just say, got to go to the toilet, take off the bra and contents and when you come out you have a pretty heavy weapon, through as hard as you can.
Like you said Roberta, as bad as it all is and as much as we hate what cancer is doing to us, we always need to look for the funny. Mind you even with my new boobs, I cannot find a cup that fits. I went from a good "C" to a funny looking "A". I am keeping them -
Have a great day......
Cheers
MaryView Thread

I did share a few years ago what I did before I actually went in for the surgery. My friend and I got clear labels, wrote things like so long farewell, thank you for the last forty years. Bye girls, I cannot remember all that we wrote and I stuck them to my boobs before I was wheeled into the operating room, the nurses tired to scrub the ink off until I said they were clear labels. The surgeon got a laugh out of it. .
I hope that all goes well with your surgery, take care of yourself.
Cheers
MaryView Thread

I had bilateral mastectomy back in 2009, I did not have reconstruction at that time, my recovery was good. If I understand correctly you are living on your own. I do believe that going to the bathroom would not be a problem. They want you up and walking as soon as possible. My reconstruction took place a year later that was a different story, you would need help. Actually with both procedures you should have someone staying with you. Good Luck
Cheers
MaryView Thread

I had my experience with Invasive Lobular BC back in 2009. Due to having had BC in my right breast before and had had radiation before they were not sure what they were dealing with. Both mammogram & Ultra sound showed no tumors, I did have this growth on my right breast. The biopsy came back with - BC in the skin. My breast had strung and it looked like little red spots all over the breast. I did have chemo first, then bilateral mast.. the biopsy of the breast tissue showed the cells as lobular, they were not sure if they were viable or not, so off to radiation again. The sad of it all is we found 2011 that it had Metastasized to the lining of thePeritoneal and I have lesions in my bone marrow. I did have seven rounds of chemo back in 2009 then radiation I did try Fermara and Aromizon without much luck, today I am taking Femara and the tumour markers are stable. (I chose not to do any chemo) I wish you luck on your journey with this dreaded disease. I hope and pray that things work out well for both of you.
Cheers
Mary
View Thread

Glad to see that you are both well and enjoying the summer that is slowly fading into fall. Trying to keep busy and out of trouble, glad that all of your reports are coming back good. I truly feel that the more active we are the more healthy cells we grow. Both take care and will catch you all again soon.
Not to much going on, in two weeks some of my family arrives from New Zealand so will be busy with them,
Take care'
Love to all
MaryView Thread

I sure hope that your daughter is doing okay, oh how I remember the days that one of my children would come home crying that something hurt, so off to the emergency room we would go. It got to the point that I would say hang on, where are my glasses, book and something to drink, then off we would go. One time I made my son wait until I had my dinner, I had cooked this great dinner and he was outside riding his bike, crash, another broken arm. Such a mean mother I was, had my dinner, grab what I needed and off we went.
The broken arms and legs is all part of growing up, mind you, I have never had any broken bones.
Also, summer has been fun for me this year, I hope that cancer allows me to enjoy a few more.
Love to all
MAryView Thread

Well the garden isn't looking to shabby, I have gotten a lot of unfinished sewing projects completed, with a few more new ones to start. I have truly taken this summer to enjoy life, I have to, afraid if I stop, you know what will get the better of me.
Anyway, after a slow start of getting my bike out, getting over my frustration of not knowing what was going on, I have finally found enjoyment again riding. Due to the side effect of cancer and drugs, my legs do not want to do what I want them too. After nearly three years out from Chemo, some of the nerves in my feet and legs have decided that they want a rest thus causing me lots of pain and wanting to give up one of my favourite pastimes. Well guess what, even though I have the pain, I also have endurance, I head out about once a week and ride as far as I can regardless of the time and pain, two weeks ago I got in 25 miles.
Then mid July I climbed about a mile and a half on a nice path to one of the local caves here in SLC. Steady climb topping out at about 7,000 ft above sea level. Then two weeks ago, a friend and I went on another hike up the side of a mountain. This one was four miles starting at 8,000 ft ending at 10,100 feet, (wish I had a oxygen tank with me) I truly do not know what I was thinking even though it took me a while I made it to the top and we took the tram down. Truly I need my head examined. For all that I have done and for what I am going to do tomorrow. Another friend talked me into participating in a sprint triatholon. She is doing it all, the swimming, bike ride and running. I got two other friends, one will swim, I will ride my bike 12 miles, and the other will run the 5k.
Truly I am not bragging about that I am doing there is a point to all of this. A friend said that when you exercise your body builds healthy cells, well my tumor markers dropped this month. They had been gradually going up and they drop five points.
I am enjoying it all, it is just like when you go on vacation, you go and go and go then when you get home you are worn out. I may be doing all of these things, but I do pay the price, the body says, your are done and I am.
Life is short and I want to get all I can out of it, I know that we are all struggling with cancer, in some way or another at this present time, but isn't life great, beautiful sunrises & sunsets, oceans to swim in, (none where I am at) mountains to climb and rivers to cross. Now if I can just find the courage to go on a road trip - just point the car in the direction it wants to go and go. Maybe next summer.
Have a great summer and hope that this falls brings just as much beauty to you as the summer has.
Take care
Love to all
MaryView Thread

I am coming up on close to two years since the DIEP Flap Procedure, the scar in the abdomen area in some spots is read, not sure what they call it and others is looks great. Yes at times it does itch, my PS suggested that if I could not stand the itching they inject something into the scar and it helps with the itching, I am not sure about getting rid of the red. I use Vitamin E cream and also hydrocortizone cream or the generic.
It took awhile for be to be able to sit up without pain. An example is getting my hair washed when getting my hair done, I would say it took about eight months before I could sit up unassisted. At time now and then when at Dr's office and they want me to lay on that table I need help up and other times I do not.
If you are unsure of your symptoms check with your PS. Also sorry about my spelling errors.
Love to all
MaryView Thread
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