Have a prayer request for you warriors out there..we have a sweet young lady who is going through yet more medical challenges She has had testing done by some specialists but they still aren't sure why she is having these symptoms. Please pray for healing AND answers! Anna is a wonderful, giving person and we really want her to have her health back! In His name we pray with faith...Thank you and thank you Rachael for reminding me of all the warriors right here on BC Community..God BlessView Thread
I pulled up my couch and brought a tall glass of water one day way back (really seems like yesterday some days) when I was told my breast cancer mutated it's hairy legs over to the other breast back in 2005, when I poked my head into this site for survivors like myself called Friend to Friend or F2F, and wow, the group there put a nice fluffy pillow up under my back, filled up my water again as I read and shared stories with this wonderful supportive group of people going down the same road or journey I was going down. I wish I had met them back in 2000 when I was first diagnosed! So I guess I'm one of those warrior's who has been there and done that, but my story is so different from others as their stories are so different from mine...that's why we are here...TO SHARE! You will meet and greet a lot of wonderful, funny, amazing, awesome, talented, loving, caring, compassionate and so much more special folks right here on this bus ride. And the seats do feel like your couch at home, and the stewards tend to your needs with all of the above qualities as well...your water glass is always full!
You know Rachael and if you don't you soon will. Hi there Rachael! What a woman ! And she can sure drive this bus any where, anytime.You just know you have a friend with her and she is and was my biggest support buddy along with many many other ladies and gents...and Jaydee? Such a ladies man. I do so enjoy coming back to visit from time to time, I know Rachael would love to see me sitting behind her on that pink bus more often. Well, life is just getting better for me these days and each day is better than the last one, growing and learning being strong and healthy, letting go instead of hanging on seems much more natural to me these days. I still have boot straps and I do pull on them from time to time, the beast is like a shadow sometimes and you get a glimpse of it from a peripheral view from time to time, it's life really for us survivor's and warriors. Stay focused on the day your in, be positive, read a novel or some sobby romance, take up letter writing, adopt a kitten! Stay busy a little bit at a time if your doing chemo, don't over tax yourself, tomorrow will take care of itself with you in it! and call for the Pink bus as often as you need to...I know the driver, she knows where you need to be and will help you get there! Love ya Rachael!
Anireh..join the ranks of Herceptins side effects! I too had to stop the treatment of Herceptin 3 months prior to my finish date due to heart abnormalities after a MUGA. I was told this might occur from the start and that my heart would be monitored periodically during treatment...I'm relieved. I echo PrettyWoman225...leave the worry on the backdoor step and go inside sit enjoy life be safe & warm, and definitely TRUST our Lord he is in control and he also keeps a key to the back door!View Thread
Howdy Breezy! Do we remember each other from 5 years ago on this site?! Your name sounds so familiar...I changed my name (oh please don't ask what my original was!)
When I went through chemo 5 years back I was placed on Arimidex and I did a good long stretch of approx. 8 months hoping side effects would delete themselves. All of my joints ached terrible and my (Onco at that time)suggested oxycodone 3X a day or as needed. Symptoms only seemed to increase especially if I backed off on dosage. When he suggested Oxycontin I got up and said no thank you...take me off the Arimidex and the pain meds. Within a month all my symptoms diminished.
Guess what I'm getting at is we all are faced with choices and decisions during our own personal journeys...none of which are easy & going against a doctors input is always possible. I took a chance and took myself off a drug I was told would help my chances of recurrence to be closer to nil. Hmmmm I think I made a smart decision. I was offered a different drug but declined because the side effects looked pretty much identical...why?
Oh and when my original Oncologist returned to our area (he thought he would like the Mayo clinic as opposed to private practice...heehee I just knew he couldn't stay away from all of his patients!) I made a bee line back to see him. One of the first questions he asked me was how is your memory? It was not good I forgot & I still forget alot of stuff I never had a problem with before. He told me to expect it cuz chemo brain is very real and mix a little menopause into the batch it doesn't go away. I was surprised I always thought after chemo it would just go away...forgetfulness and all! He even asked who did the fiances in our home & when I told him me! He said well you might consider changing over and I looked at him with one eyebrow up and he said well maybe not. Trust me this man has a sense of humor we adore so it wasn't a insult but we both knew where I was coming from.
I'm still fighting that DX but man I gotta tell you after 5 yrs it is not any better. But I have boot straps and I won't quit until my Lord tells me to rest! I'm so glad Arimidex is working for you I just wanted to share my experience and I got long winded...sorry.
We are a legacy to our strength...rejoice in your spirit daily!View Thread
I am so sorry Deb and BAnne64 for the misleading results you received from those professionals you and I place our trust in..especially concerning drug therapy. I do realize so much is in the experimental stages concerning cancer cures....but please do not place that burden on those of us who will reap what your products sow.
I strongly advocate that one do a lot of research on any drug therapy suggested before accepting it to be applied to your body! At one point I was taking Evista. I could not tolerate the side effects so I took it upon myself to discontinue it...funny...my Oncologist did not argue.View Thread
Pat...wow! If your having an itch that is as severe as you are describing tell your doctor asap! I did and I do have the under the skin itch in the arm pit area . I read that you have fybroidmyalgia and Rhumatoid and hypothyroidism...you know a medication your taking may be contributing to the present itch. I say this because I found whenever I took a pain med I itched more and more intense as well. Using cortizone was a big help for me but getting rid of the pain meds was my answer to the bigger picture. So I'am so sorry I have no quick fix answer to give you other than what you already are doing. Talk to your Oncologist and or your Rheumotologist cuz it really sounds like your nerves in the arm pit area have been compromised to me. God walk beside you and guide you.View Thread
Rukia44.. Hi there! here you are not alone. There are to many of us to keep you busy and informed and we care and we listen very very well. Your nerve damage comes with the surgery, it will forever be your reminder. Everyone is different...myself...it has been 5 years and I still have nerve damage in both sides, the first was in 2000 on my left side and it is pretty much back to normal, the surgery in 2005 is still keeping me informed on my right. And an itch will keep you buggered!
As for your bi-polar I can only walk from one's journey of dealing with someone dear who has it in the family. Please do not go off your drug therapy as tempting as it may be at times...if necessary find a new one that works...this isn't advice for us who live with it but for those who deal with it 24/7...YOU! LOL.
I was thinking at one point during and after my chemo treatments in 2005-06 I might have fibroid problems cuz every bone, muscle & joint in my body hurt...had tests done and they were negative...Thank God. I was responding to the lovely cocktails in the chemo treatments...they lasted for some time after wards...I continued to take pain meds for it and as soon as I stopped the meds wahlah! No more hurt! Go figure.
Be strong and be good to your self than the rest of the world will follow!
Rachael my GF....how do you do what you do? I just read your reply and caprice reply than yours than Olivia's then yours again....you know what? I'm sssooo confused but that's o.k cuz I'm still chuckling...your still here strong and bold...love it!View Thread
Hi Cancer47...I was sitting in on this sight approx 5 years ago and was asking myself after the fact was the journey I walked really the best approach or was I only allowing myself the satisfaction/comfort..of letting a doctor think for me and actually placing my life in what they deemed best for me and not what I felt was best.
PLEASE...I'm not being disrespectful or anti-doctor here...at the time I was scared,I was frightened and shocked of what was going on in my body (again) and not at all sure of what I should do ...I went with what the doctors thought best for me I pretty much just let them take my hand and I followed! Now this was my 2nd battle with BC and with #2 staring me in the face I began to understand that my first cancer had come back with a different agenda from 6 years prior and just maybe this time I needed to be more aggressive since it was determined to be aggressive as well...
My hubby wanted me to go through with the chemo treatment and we both agreed the doctors knew a hell of a lot more about this beast than we 2 did combined. So we did it and it was nothing like the first journey never is.But I got through it and I am tougher because of it, I have well oiled boot straps and I'm not afraid to use them!
My lasting question though is and has been was it the best approach for me? Do any of us really truly know if it ever is the best for us? What I believe is If we can be at peace with ourselves and trust in our creator and ourselves and have faith with all three of those and we can live with it without a regret than what more can we say or do or give to our well being?
I will however sit here this night and tell you if cancer were to make a curve and come back at me it would have to face a much different opponent because I would NOT do chemo again or radiation or any other drug therapy...I have since done a lot of research a lot of reading a lot of inward thinking/healing to know that a more natural approach would heal me spiritually, physically and mentally and in turn prepare me for the journey ahead because those very 3 things are what get you through the toughest moments.
So, if what God and His glorious natural kingdom have supplied us through the decades can bring me a peace and more health than all the toxins that have filled and flowed through my veins over the past 10 years...than I have gained...if they do not than I still have gained... in my heart I would be at peace.
Don't spend time trying to second guess your self not at this point just concentrate on getting better...listen to your doctors as you walk this journey, think positive goals and strengths. Closer to the end of your journey you will have learned more.
God will keep watch over your fears and tend to your tears.View Thread