So, this all started in 2008. My doctor wanted to teach me how to do a BSE, but stopped pretty quickly and said that he wanted to get some tests done. I was 30. Hubby was in Afghanistan. (Army wife, here! AAAAH!) Our son was 3. (AAAAH!)
Mammogram and Ultrasound done quickly. The Ultrasound lady asked what my due date was, and then zipped and giggled through a very fast breast ultrasound, because I was too young to have BC. Everything came back negative.
In 2009, the pain started. Then the discharge, in 2010. I was deep in denial. Too young to have BC. I mentioned the pain and discharge to my doctor in 2010 or 2011. He did another exam. His face fell, again. Dangit. Another Mammogram and Ultrasound. The Mammogram was dense, and the U/S showed fibroadenomas and cysts, some multi-chambered, and one tiny spot that "could be" bad. I got sent to a surgeon. He wanted to remove my nipples and ducts. I asked for a second opinion. The next surgeon cancelled my appointment, said just to watch it over time, he said he read my chart. Went back to the first surgeon. He said that the second surgeon was "really good" and he wanted a galactogram.
Very elderly man attempted the galactogram. It didn't work out. His hands shook too hard to get the tube threaded far enough into my ducts.
First surgeon says he's decided we should just wait and see. My pain is at a solid, all the time, seven by this point.
I only made it a few months. It was just too awful. I went to my family doctor and asked to be sent to the breast health center 3 hours away, which I had found out about online. Got a referral there, because my family doctor was certain there was something very, very wrong.
Waited the 6 months for my appointment. Got another Mammogram and Ultrasound. Ultrasound was cheerful and rushed again. New specialist said it was all clear, told me that it was just breast pain, I was too young for cancer, and to try eating pressed flax seed. Went back 3 months later, a flax-failure. She put me on Tamoxifen. It worked for about 6 months, it brought the pain down to a 5, which I could cope with.
Quit my job as a 911 dispatcher, to reduce stress.
My husband got word we were moving. I tried to get back to the Breast Center because the pain hit a 7 again, but they couldn't get me in before the move.
I just got here, to the new place, and went to the er's clinic. I got a referral to a surgeon, and some Oxycodone. Oh, and another Mammogram and Ultrasound in September. I asked the receptionist at the surgeon's for an MRI instead, but was denied.
I feel like I'm starting at square one again, for the fourth time. I don't want to take the stupid Oxycodone, but I'm just about in tears from the pain all the time. No one has ever even taken a sample of the discharge, my nipples are gross and itchy, and my breast is burning hot. I can sleep for 48 hours at a time. I feel that I might be passing away, and I'm almost releved because of the pain. I have to keep going for my family. I'm so frustrated.
Nothing much more I can say. I'm 36 now. My greatest fear is that I'm going to get the brush off again, and then die in my sleep in the near future. My son is 8 now.
And now, I've been given the brush-off again. Another mammogram and ultrasound. An appointment with a general surgeon. I got to the appointment, and only got to talk to her nurse. No doctor off any sort. Stupid mammogram of my stupid boobs was all dense tissue. Stupid ultrasound was full of cysts, but they didn't look at both, just lefty.
So now I'm still taking stupid tamoxifen and getting dumber by the minute. The pain sucks. I hope I'll get a family doctor soon, but I'm in Canada. Next appointment with that surgeon is in January, but I don't know if I'll meet her. Did I mention the pain?
Thanks for the soapbox on which to rant, again. I hate this.View Thread