I am feeling a bit calmer now I have ranted about how inappropriate that Doctor was as he at the end of the day does not make the decisions it is done at a team meeting therefore he should have kept his thoughts for the team meeting.
Also I have gotten over the shock of the fact they even wanted to check a different area of the breast to the one that i was complaining about and now.....I am were I always am when I have a bad day.........for today I do not have cancer but I do have a life which may well be more challenging these days with the dystonia but a life I do have and for that I am grateful especially every time I look at my angel of a grand daughter she makes me so happy with her little ways (3 yrs old) she visited yesterday and i was mesmerised by her as was able to peddle my exercise bike and played on it for ages. She can not even reach the peddles sitting down so she peddles standing up at the age of 3!!!
Any way I will keep you posted and I am so sorry to hear about the bone problems those injections sound awful...dystonia as bad as it gets at least comes and goes but the best bit is when you go to the clinic and there are more dystonia patients we all sit in a row of seats waiting to be called men and women and we each have our own mode of twitching and twisting and grunting with the pain. Then in the middle of all this some one will pass a comment like are you one of us! and then you cant help but laugh I have never met a more social-able group of people in my life other than us of course!!!
Wee update!! I have just returned from the hospital I got a cancellation appointment and took it so the deed is done....mammogram and ultra sound.
The outcome was that some thing has shown up behind the original scar material and the Radiographer said it is not a definitive tumour but could not say without a biopsy if it is the cancer returned or if it is something else and I need to go to a pain clinic.
So I feel that I am no further forward and I also feel that it was and is almost a roll of the dice in his attitude and can cancer really be something dealt with on the roll of a dice....in short this has really unsettled me.
My clinic appointment is 29th May so feels like a long wait.
I think this is a bit scary but only because of the Radiographers attitude...first time around it was bump bump bump and the job was done and dusted...I felt guided and at times dragged along the road to recovery but at all times I never got the could be could be not attitude form an NHS member of staff.
OH THIS IS A NIGHTMARE SOME ONE WAKE ME UP AND TELL ME ITS TIME TO GO TO WORK PLEASE!!!!!
That choc was well needed today thank you!!! and the angels wings were absolutely there........
I was at the neurology clinic today getting the dystonia check up and they took some blood tests......will check it for genetic problems but also and quite intriguing they took a blood test to see if there is a connection to the breast cancer. I am not quite sure what they meant like are they talking about it being cancer or are they talking about it being related to the side effects of the cancer treatment. ...........
I would like to know if anyone else has had this experience of cancer giving you a neurological condition that you now have to live with.
Thank you so much for the support I am feeling so much better knowing that I am not alone and it is good to keep your eye on the light when things start to look a bit dark
thank you so much I am struggling just now I have dystonia....a movement disorder as well and I have come home from work to a phone call asking me to come into the hospital in 4 days time for a chat with the Consultant....I had given up on Neurology Doctors I have not had a good experience and I have been carted off in an ambulance to hospital 5 or 6 times now ( within last 2months) with breathing problems during a dystonic storm....hospital staff are amazing I get an IV dose of procyclydine and within minutes I am ready for a taxi home.
I now find myself with an emergency appointment initiated by my GP in 4 days time for the Neurology clinic and the breast clinic in 5 days time.. I have no faith in the dystonia Doctor he is trying to talk me into botox treatment which can actually cause death and was not too impressed when I turned the offer down.
OMG am I rambling or what!!!!!!!!!!!!! I also was examined by my GP who can see no sign of lymphodema and no sign of infection so she gave me stronger painkillers and wished me luck for wednesday at the breast clinic.
Thank you... thank you... thank you for the love and support that this site provides at the moment you are my sanity
A wee update i have an appointment to see the Consultant next Wednesday at 2.30 so I am quite happy. I have had discomfort since the surgery and radiotherapy 8 and a half years ago, but this pain is quite some thing else and my feeling is that the breast is actually swollen. My cleavage is moving to the right and that happened before with the painful breast becoming enlarged. It turned out to be a tumour inside a mammary gland so I am doing my best to not dwell on what happened in the past and hope it is something less sinister..having said that I am dreading the idea of a mammogram with this level of pain and the stress of this wont help the dystonia when it flares up it is quite something and does affect the chest wall.
Anyway the support is very much appreciated and I am so grateful for the hugs so I am sending them right back with love and blessings.
Thank you so much for your kind comments I phoned the hospital today and the breast care nurse said she would try and get me an appointment as soon as possible.
I will keep you posted, My left breast feels like it is on fire and the pain is in my arm pit and right down my left arm to my fingers, My whole ar feels very heavy and tingly, heres hoping the appointment comes through soon. I also now have dystonia a movement disorder so it will make my next mamagram an interesting experience.