thank you so much I am struggling just now I have dystonia....a movement disorder as well and I have come home from work to a phone call asking me to come into the hospital in 4 days time for a chat with the Consultant....I had given up on Neurology Doctors I have not had a good experience and I have been carted off in an ambulance to hospital 5 or 6 times now ( within last 2months) with breathing problems during a dystonic storm....hospital staff are amazing I get an IV dose of procyclydine and within minutes I am ready for a taxi home.
I now find myself with an emergency appointment initiated by my GP in 4 days time for the Neurology clinic and the breast clinic in 5 days time.. I have no faith in the dystonia Doctor he is trying to talk me into botox treatment which can actually cause death and was not too impressed when I turned the offer down.
OMG am I rambling or what!!!!!!!!!!!!! I also was examined by my GP who can see no sign of lymphodema and no sign of infection so she gave me stronger painkillers and wished me luck for wednesday at the breast clinic.
Thank you... thank you... thank you for the love and support that this site provides at the moment you are my sanity
A wee update i have an appointment to see the Consultant next Wednesday at 2.30 so I am quite happy. I have had discomfort since the surgery and radiotherapy 8 and a half years ago, but this pain is quite some thing else and my feeling is that the breast is actually swollen. My cleavage is moving to the right and that happened before with the painful breast becoming enlarged. It turned out to be a tumour inside a mammary gland so I am doing my best to not dwell on what happened in the past and hope it is something less sinister..having said that I am dreading the idea of a mammogram with this level of pain and the stress of this wont help the dystonia when it flares up it is quite something and does affect the chest wall.
Anyway the support is very much appreciated and I am so grateful for the hugs so I am sending them right back with love and blessings.
Thank you so much for your kind comments I phoned the hospital today and the breast care nurse said she would try and get me an appointment as soon as possible.
I will keep you posted, My left breast feels like it is on fire and the pain is in my arm pit and right down my left arm to my fingers, My whole ar feels very heavy and tingly, heres hoping the appointment comes through soon. I also now have dystonia a movement disorder so it will make my next mamagram an interesting experience.
Hi I am 8 yrs in remission from BC and have vivid memories of the problems this drug caused me. My Oncologist gave me a break of a couple of years and then I started on this drug again and after a rest from the drugs my body had endured i found that I coped fine with the drug. Although I was not happy at the time having done my time so to speak I am glad that I gave myself the best chance but you do have to make your own choice.
I felt pressure from my family to do my best to survive for them which did help with my decision. I am sending you hugs and best wishes that the decision you make will be the one that makes you happy. please be reassured that having given my body a rest from chemicals the side effects were nothing like the first attempt.
I am 7 years in remission from breast cancer and three years ago I had an MRI scan because of a severe headache that went on for around 6 weeks. This scan showed 2 lesions in my brain and following a discussion with the breast consultant a 'wait and see' approach was decided as the best way to go. This meant regular scans and a number of different tests to rule out the possible cause.
This situation has been monitored for three years and the most up to date review (three weeks ago) was that the previously stated lesions are now being called cavernomas and there are two. Both are leaking blood into my brain and causing symptoms - headaches, nausea, change in taste sensation and occasionally sight problems. And so I was referred to a neurosurgeon who very helpfully allowed me to see the scans and compare them. In 2 years these things appear to have quadrupled in size and are inoperable as one is beside the brain stem.
As well as the picture I was allowed to read the report which states that they are presenting as cavernomas but it is not and they can not be 100% certain that this is not secondary cancer from the breast 7 years ago.
Has this happened to anyone else? and how long does it take to be 100% sure that it is not cancer? I read the postings about tumour markers and am not sure what this is and if I can ask for this test to be done here in Scotland to get some peace of mind.
This site has been a god send to me through recent problems with my ribs and side effects from the MRI scan. Being 7 years away from the original problem it is not always easy to find an understanding and sympathetic ear.
I am taking one day at a time and repeating to myself every day the mantra by which I have lived my life for the last 7 years. Today is my life, yesterday is my history, tomorrow is a blessing I have yet to receive and you should never take your blessings for granted.
I thank everyone for the love and support and send hugs to us all!