It is now day 7since the bone scan and the reaction I took to it and I am feeling much better I still don't have my own voice back and sound like I have a sore throat. Its not sore just doesn't sound right.
I am now breathing with more comfort - not so wheezy and the nausea is much more under control. I think I am well on the mend.
Last time I had this I was too ill to go to the doctor and he came to me. He treated the symptoms and said it will go when it goes but the treatment did offer some comfort.
He gave me pain killers which helped with my breathing as it felt like inflammation around the outside of my lungs and the tubes going into my lungs were on fire. The ice cream definitely didn't reach that space!
He also gave me anti sickness drugs to help with the nausea. All of this was fine but by morning I was like a drug addict looking to score! where are my drugs can't move till they start working and some times I didn't make it to the morning before I started to feel really ill.
I really don't cope well with throwing up and am now fitting into my clothes very comfortably as a result of my week! There is always a silver lining if you look for it.
I am mainly just very tired now and glad it is all over I just have to wait for the results (a week tomorrow) and hope this miserable week ends in the right way.
I hope I never need to go into that machine again and I don't think it helped having the mammogram less than 24 hours later.
Sending happy thoughts out to all and it is good to know there is sympathy out there when you need it.
It is now 3am Sun morning and I am up taking more anti sickness meds............... O M G! pregnancy was easier than this!
Would love to know if anyone else has ever had an allergic reaction to a scan and how did you cope........... am feeling so lonely with no company to moan with I can't possibly be the only person in the world to be allergic to bone scans!
Think its the doc for me tomorrow at least to get stronger longer lasting anti sickness.
I had this dream years ago I want to share with you to cheer myself up. I dream in cartoon I swear that's the truth!
Anyway I have had a number of surgeries in my life and in this dream, which was in cartoon........... I had died and approached the golden gates of heaven and St Peter took my name and said Oh you must go there before you can enter and he directed me to what looked like a shed from the outside of the building.
When I entered the door it became like something out of a film called monsters inc where they collect screams from children's bad dreams and to enter the child's bedroom these doors all swing along on some kind of conveyor belt.
Back to my dream, same idea only its not doors swinging its shelves and whoosh whoosh whoosh there stops in front of me a shelf with my name on it and there on the shelf is my gall bladder and uterus which in true cartoon style held its little hands out to me and said 'mama mama'
Needless to say I woke up laughing and at the same time wondering if all your bits are returned to you some day.
You see life is not all bad when you can dream in cartoon. I am going back to bed now to try and get some sleep I do sign language for the deaf and am supposed to be signing mass tomorrow if I make it.
I sign once a month for the deaf at our cancer support group and that was today I had to go as I am alone for this mass but tomorrow is not so bad because there are two signers on this team I think Jackie may be getting a text if I don't feel any better by morning.
I have decided to wait for 4 or 5 days to see if things settle as this happened to me before and I had to get the Doc out to my house. He told me I had radiation sickness and it looks like its happening again.
First there is a burning sensation in the soft tissue of my gullet and I took plenty of ice cream and ice drinks which has helped the burning a little (I think). Then what follows around the 24 hour marker is wheezing/breathing problems then a little while after that comes the overwhelming nausea which makes morning sickness feel like a walk in the park!
I am and have been lying down for the last 2 days as I feel unwell but I do expect this to pass hopefully by Monday. I wont tell a lie I am feeling sorry for myself and contemplating refusing another scan if I ever need one.
The mammogram was horrendous as they jammed my sore ribs against the machine then squished my very painful breasts into hamburgers shapes one at a time and I am some what embarrassed at swearing ( I used the'f' word and cant believe I swore in a hospital!). That was after the Radiologist had to stop the test because I felt faint with the pain! The mammogram seriously it must have originated as a tool of torture.
At this point in my life it is safe to say my breasts and I are not getting along very well and if offered a divorce from them I would happily take it and absolutely no reconstruction! I have had enough and have already picked out my new string vest to replace them!
I am sure that I will feel different in a few days what does not help is a very dear friend died on weds of cancer in his brain, spine and lungs. I am happy he is out of pain but it has left me feeling a bit wobbly for my own situation. I only found out about his situation at the same time as I went to the doc about myself. They gave him 5 weeks and he lasted 8, the funeral is this weds.
For now it is a bit at a time not even a day at a time! 2 hours ago I thought about giving up and phoning the Doc because when I get up and try to do anything I am now feeling really dizzy but having laid back down I feel better so I will see how tonight goes and reassess in the morning.
Will keep in touch you have no idea how good it is to turn on the computer and rant rant rant............. I do not want to worry my family although they are supportive I don't think they really understand.
It was St Perigrin's Novena today and it works wonders to see so many cancer survivors in one room.
I went yesterday to get a bone scan. This will be my third in over 7yrs since I was first dx with breast cancer. It is 6am here in sunny Scotland and I am sitting up drinking ice cold juice because of a burning sensation in the soft tissue of my gullet and slightly wheezing from my lungs, in short feeling a bit sorry for myself but not too surprised as I have never had a bone scan that didn't have some kind of nasty side effects, I have also consumed half a tub of Carte D'or rum n raisin ice cream in an attempt to ward of this burning in my gullet since yesterday, (a task you will understand of no hardship what so ever!) and it has not worked.
But here is the thing! the lady who did the scan took three attempts to get a vein that would take the radioactive gunk they use for this. At this point I am trying hard not to imagine the liquid missing my vein completely and forming a huge blister and making my arm drop off!
Before this I notice the signs up in the waiting room saying that it is to be patients only to avoid/reduce the risk of contamination. There is also a sign in the bathroom saying please sit down to use the toilet as this will avoid contamination and if contamination should occur please inform a member of staff!
And here is the punch line! I asked the lady is there any side effects and is there any do's/dont's I should know about. Her response was 'no this is absolutely harmless with no side effects what so ever' CLASS! AN ABSOLUTE CLASS ACT! I was very good in fact I am so proud of myself as I managed just to smile and think to myself 'go and fix your lipstick honey'
And now as they say in Scotland 'back to old clothes and porridge!' otherwise known as reality! I have burning in what feels like the length of my gullet, I am wheezing and I feel sick. I did some research on the computer and it says this is an allergic reaction to the radioactive liquid so I don't think I will run to the Doc yet, I plan to wait and see how my day pans out.
I have a mammogram this afternoon and then two weeks to wait to see if the cancer has come back although at this point the money is on radiotherapy damage to my ribs and breast.
Thinking of you all and sending happy thoughts and hugs
I also had and still have itching which became some kind of skin problem giving me small itchy lumps which have been checked out. The advice given is under no circumstances scratch! wear only natural non sweating fabrics and air the area before you dress to make sure that it is dry when you wash etc.
I found this advice does help and when it is really bad take anti histamine
You are so right! I kept a journal for the story of my cancer and it is something that I can and do read back at times. It shows a time line of finding the lump, not even thinking about cancer ( I only showed it to the Doctor because it was sore and wasn't going away, I thought it was a time of the month lump that was inflamed), first surgery - lumpectomy, DX and second surgery, chemo, radiotherapy and then hormone treatment. Then it finishes.
I recognise the strength it took to get through this but at the time it felt like denial and I started the journal because I couldn't believe it was happening. I am glad I did and it helped enormously to come to terms with what was happening as everything went at a speed where I didn't have time to process anything.
We are all authors of our own life in our own way what ever road life takes us and this means we all have our own stories to tell to our grand children and pass on.