
Reply: Pagets Disease progression
Hi It's been a hectic week and I saw the breast surgeon twice. He explained...
Posted by Memories123
Hi
It's been a hectic week and I saw the breast surgeon twice. He explained everything in detail and his suggestion would be to do a mastectomy. However, I do not feel comfortable with this. I think things are actually only now hitting me. It seems like nothings wrong and such a radical procedure! Did you feel the same way. I am trying to get approval from the medical aid for a MR scan, but the doctor said that it may also not pick it up. I was thinking it may make it easier to decide between a mastectomy and lumpectomy if at least I can see something and how far it is along before I go into surgery. He also said he can refer me to an Oncologist for a second opinion if I want to. I feel it may be good. I am just so confused. My other breast is also showing some of the same symptoms. Is this possible or do you think I am just sensitive at the moment. I am so mixed up. Feels like I want to just cry for nothing and so not like me.
My mom had her operation and she is doing fine. Will get her results back on Tuesday. Haven't had the heart to tell her yet. Please give me your thougts on the operation. I asked the doctor if there's no other way or chemo/radiation or anything else we can do. He said that is not the primary treatment but only I can decide what to do. I am so mixed up. Please help.
Blessings!
LizetteView Thread
Posted byMemories123
It's been a hectic week and I saw the breast surgeon twice. He explained everything in detail and his suggestion would be to do a mastectomy. However, I do not feel comfortable with this. I think things are actually only now hitting me. It seems like nothings wrong and such a radical procedure! Did you feel the same way. I am trying to get approval from the medical aid for a MR scan, but the doctor said that it may also not pick it up. I was thinking it may make it easier to decide between a mastectomy and lumpectomy if at least I can see something and how far it is along before I go into surgery. He also said he can refer me to an Oncologist for a second opinion if I want to. I feel it may be good. I am just so confused. My other breast is also showing some of the same symptoms. Is this possible or do you think I am just sensitive at the moment. I am so mixed up. Feels like I want to just cry for nothing and so not like me.
My mom had her operation and she is doing fine. Will get her results back on Tuesday. Haven't had the heart to tell her yet. Please give me your thougts on the operation. I asked the doctor if there's no other way or chemo/radiation or anything else we can do. He said that is not the primary treatment but only I can decide what to do. I am so mixed up. Please help.
Blessings!
LizetteView Thread
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Reply: Pagets Disease progression
Thanks Rachael! Really appreciate your response as well. You guys are the best and it's...
Posted by Memories123
Thanks Rachael! Really appreciate your response as well. You guys are the best and it's nice to have someone to talk to. I'll keep you posted on what happens. I'm sure I'll feel better soon once I know what I'm up against. This thing will not beat me. I think I will definitely have to make some lifestyle changes. I don't do any exercises, always busy with work, etc. I'm too tired for anything in the evenings and a lot of stress. I know this is a vicious cycle but somehow I will have to start doing something. With your support I'm sure I will be able to cope.
Blessings!
LizetteView Thread
Posted byMemories123
Blessings!
LizetteView Thread
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Reply: Pagets Disease progression
Thanks Judy. Seems I'm on the right track then. I've got an appointment to see a breast...
Posted by Memories123
Thanks Judy. Seems I'm on the right track then. I've got an appointment to see a breast specialist at a breast clinic tomorrow. Will definitely get a notebook and write down some questions before I see him. My head is spinning and it feels like I can't process everything at the moment. Thanks for your detailed answer regarding specialist/surgeon/ongologist....It makes things a lot clearer for me. Guess I need to do a lot more research at this point before I see the specialist tomorrow.
Take care!
LizetteView Thread
Posted byMemories123
Take care!
LizetteView Thread
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Reply: Pagets Disease progression
Hi everyone. I'm totally shocked. I had a disastrous few days. My mom went for mammo on...
Posted by Memories123
Hi everyone. I'm totally shocked. I had a disastrous few days. My mom went for mammo on Tuesday because of a lump. She saw a specialist the afternoon and they are going to operate next week Thursday. Doc says he doesn't think it is cancer so that's good news. She's 74 and already in a state at the thought of an operation. That's why I couldn't share with her regarding my situation and the biopsy, etc. In any case, the BAD NEWS. My GP phoned again yesterday afternoon (While I was shopping). Apparently the pathologists weren't totally happy and did some more tests. It is Pageats as I suspected all along. I actually started crying in the middle of the shop and needed to sit down. After the exitement of no cancer news I was totally relaxed and not ready for this. GP was so apologetic about this but thought I should know immediately. He said he never saw anyone with Pageats before so this was also his first case. Last night I drank something to calm me down. I think I went into some sort of shock with pains all over. Didn't sleep well and decided not to go to work today. I must go and get the report from the doctor and make arrangements to see a specialist. Now here's my question: Do I need to see a breast specialist, surgeon or oncologist? GP asked if I know a specialist or he'll refer me. I was so confused I just said I know of someone and will let him have the name. A colleague from work sister had breast cancer earlier in the year and saw an oncologist and she is now fine. So I was thinking of going to see him, but I don't know if that's the best option with Pageats. Please help and pray with me to see the best way. I don't want to rush into anything now I know. My husband is still sort of in denial. It's very difficult for him as he don't normally show any emotion and I don't think he knows how to handle this. I've decided not to tell my mother yet until after her operation. My eldest daughter live far from us and I thought I'll wait until I have more concrete news before telling her. Do you think this is good? I don't know, I don't want to upset her. Second daughter knows as she was with me when doctor phoned. She's exactly like dad, came in this morning and said she knows a lady who they said had cancer, and when she got to the specialist it wasn't afterall. Unfortunately biopsy's doesn't lie, but I understand where she's coming from. Youngest daughter is in Uni busy with tests. Thought I will rather tell her maybe the weekend when she's back from hostels. I'll first see how things are as I know they are busy with a test week. Sorry for the LONG post, I just needed to get this of my mind and hear some of your thoughts. Thanks!View Thread
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Reply: Pagets Disease progression
Hi. Good news! Just spoke to the doctor on the phone. Will see him later. No cancer...
Posted by Memories123
Hi. Good news! Just spoke to the doctor on the phone. Will see him later. No cancer detected. Need further treatment, but it's ok. Apparently some sort of infection. Will get something to use and monitor then for the next 2 weeks. I was just so relieved that I couldn't take anything in besides no cancer. Thanks for all your support and encouragement. I really appreciate it. I couldn't discuss it with anybody and you guys are the best. God bless!View Thread
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Reply: Pagets Disease progression
Thanks Haylen. Will go and look at the pages. Appreciate it!
Posted by Memories123
Thanks Haylen. Will go and look at the pages. Appreciate it!View Thread
Posted byMemories123
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Reply: Pagets Disease progression
Thanks Judy and Rachel. I really appreciate your support. It means a lot to me. Will...
Posted by Memories123
Thanks Judy and Rachel. I really appreciate your support. It means a lot to me. Will let you know when I get the results!View Thread
Posted byMemories123
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Reply: Pagets Disease progression
With your encouragement I made arrangements and went for a biopsy today. I already feel...
Posted by Memories123
With your encouragement I made arrangements and went for a biopsy today. I already feel better just doing something. Now I am a "Lady in Waiting" for the results which I should be getting on Wednesday. Thanks for your encougement. Have a super weekend!View Thread
Posted byMemories123
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Reply: Pagets Disease progression
Thanks Rachael. You gave me a good chuckle with the "Lady in Waiting". I agree, it...
Posted by Memories123
Thanks Rachael. You gave me a good chuckle with the "Lady in Waiting". I agree, it sucks big time! Thanks for the support. I appreciate it. God bless! LizetteView Thread
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Reply: Pagets Disease progression
Hi Judy Thanks so much for the support. Yes, it's like I'm on a rollercoaster ride...
Posted by Memories123
Hi Judy
Thanks so much for the support. Yes, it's like I'm on a rollercoaster ride and I can't get off. Some days I tell myself that I'm fine and there's nothing to worry about, the next I look down and can't seem to focus on anything else. I know I must just keep looking up and trust in God and everything will be ok, either way. And yes, with your support on this forum it will make things easier for me. I don't really have someone I can talk to as I don't want to upset them. So bottling things up was getting to me and I am so glad I came across this forum. Will certainly try and make work of this asap and make some kind of arrangement if needed. God bless.
LizetteView Thread
Posted byMemories123
Thanks so much for the support. Yes, it's like I'm on a rollercoaster ride and I can't get off. Some days I tell myself that I'm fine and there's nothing to worry about, the next I look down and can't seem to focus on anything else. I know I must just keep looking up and trust in God and everything will be ok, either way. And yes, with your support on this forum it will make things easier for me. I don't really have someone I can talk to as I don't want to upset them. So bottling things up was getting to me and I am so glad I came across this forum. Will certainly try and make work of this asap and make some kind of arrangement if needed. God bless.
LizetteView Thread
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