Since surgery Thurs night, Melissa spent Friday and Sat .recovering from anesthesia. Overall, she only sleeps small amounts at a time with medical staff, etc coming and going and being so uncomfortable in a bed for sooo long. Sunday she started a new cancer treatment and even started walking a couple times down the hall of the oncology wing. With epidural in her back, NG tube, and numerous IV lines in her pick (PPN, narcotics and liquids, sometimes antibiotic, antinausea are added). As you can imagine it's quite a load on an IV pole going down the hall. She's also been sitting a bit in a chair. Today the Dr allowed her to try a few clear liquids while turning the NG tube vacuum off to test her intestinal track. One of the reasons Melissa was admitted was due to intestinal blockage backing up fluids into her stomach, esophagus, and mouth. The very small portions and short durations went off well. IV nutrition (PPN) has been a huge blessing giving her double to triple the calories she's been getting the last few months although she lost a couple pounds the last two days. It's small steps that should get bigger each day. In home, NG tube and PPN are one of many options that are being considered at this point, but there are many other treatment options being considered at this point, pretty much a daily basis. Friends and family have been spending 24 hours a day in the hospital with Melissa so we are getting to know the Memorial Central building and oncology staff pretty well. Also we've had great support from friends and family with visits and doing wonderful selfless things to lift us up. Please keep the prayers coming!View Thread
Last evening, I received an email from Melissa's husband, John. This is what he had to say:
This is John for Melissa. She was admitted to the hospital on Monday. Very long day today, but tomorrow will be longer. Melissa's pick line started leaking about 2 hours after IV nutrition (PPN) was started last night. She had a procedure this morning to temp fix until a jugular port can be put in tomorrow. Also, received results from yesterday's MRI and CAT scans: brain, lungs and heart are clear, but there are excessive mets in liver, mets in bones, and a partial obstruction in the small intestine. Plan now is to put an NG tube in tonight to see if that clears the blockage. If not, surgery is planned for tomorrow 1700L. The central port will also be placed at that time.
I'm so sorry that you're having to go through all this crap. It's good, though, that you've been able to find an onco that you can work with. It seems incomprehensible that you had to fill out all your history again (that's a pet peeve ~ especially when one's history starts getting long and complicated.
As far as the blood work goes ~ sometimes it isn't always accurate for all of us. My blood work for tracking my cancer is usually fairly accurate, but my markers for my thyroid cancer wasn't at all accurate. They'll get a base line for you which should help.
Good luck with all that you're going through. When dealing with cancer, it feels like it's a full time job.