Atti, though few of the "oldies" from F2F Breast Cancer Community remain with this site, you might be too new to recall when it was very active and supportive and unbelievable magical. If that is the case, may I invite you to read one of the older posts you have brought forward from the archives just recently? The title is "What Is The Pink Bus?" and has about twenty some responses.
(Please note that this post goes back five years and even before that we members were begging the "powers that be" to please stop messing with the site and what it meant to all of us. Sadly, it seemed no one heard the community or the Ambassadors and today what we have here --and on too many other communities--is the result of that refusal to listen!)
However, I still believe in miracles and in hope...May it one day have a rebirth and people who are in need discover the "safe and caring" spot it once was.
Is it to be only ads and spam and in between a few posts going back months and years and nothing current? Look!! If that is what is going to happen,you owe patients and those seeking advice during a very, very scary time of their lives much more than the "NOTHING" they are now receiving!! Simply get rid of this entirely and stop being totally dismissive of them...What you are doing is nothing short of cruel!!
They deserve much more than this crap you are permitting to be thought of as being supported by a reputable, caring organization! Shame on each of you!! Cut the cord...End it once and for all.
OR.....Turn it back into a functioning caring community as it was years ago before you opted to focus on everything except the patients!
When the physician looks in your eyes and says the word "cancer" I believe that shock takes over and our real souls go sailing off into some foreign territory because THIS cannot be reality!! Generally it takes us days or even weeks to begin to appreciate we have begun a new journey where there will be a new group of people around us and a whole new vocabulary to learn. Although we never agreed to attend medical school, it seems we and the internet and the library interact much more frequently because knowledge is power and at his most helpless point in our lives, we need to regain some sense of control!!
As the days pass and you learn more and more about this challenge, you will definitely begin to take it day by day. If questions arise or new sensations or fears, make sure you bring it up and discuss it with your medical team. Never forget, THEY work for YOU!! (Not the other away around!!)
One of the best exercises I can suggest is to "breathe"!!! Silly sounding, I know! However, it is readily available , totally free and it works!! When stress begins, simply slowly breathe in...and slowly breathe out...Again, slowly and deeply in ...and slowly out. Continue until your world begins to slow down to a more manageable pace.
Please know you will be in our thoughts. And do let us know how you are doing.
Just now I began reporting all the new spam since last you cleaned it up, but I reached the point where I felt "what the hecks?!" and stopped!! I will not be doing this from now on. It is up to you folks to find some way to stop this or to keep better tabs on it or something!! It isn't up to any of us!!
Be back when I see someone really cares enough to keep up this community!
IS ANYONE AWAKE??? ANYONE AT WORK THIS WEEK??? THE SPAM SPILLITH OVER!! Please not that some of the spam follows sincere and meaningful posts from the past. Do not remove the original posts, simply remove the spam. Thank you...Sure hope someone does something SOON!! RachaelView Thread
Just when the caterpillar thought her world was over, she became a butterfly! Don't give up five minutes before the miracle!!
You will note I have NOT reported several posts following this one as other than the ads on top, the rest of the posts are important, caring posts going back many years. Please try and remove only the ads!!
Have you sen what the spammers are doing now???? They go to post that we chose/see as very important ones and tag their crap onto them! So...if and when they are deleted, so too are all our previous important posts!! I am especially upset as they first one they chose was the one announcing my Mother's death many years ago. The responses were beautiful and very caring. Is there some way you can delete ONLY what the poop-heads stick on and keep the original posts??
I agree, Jenna. Very sad and we all saw it coming and tried so hard to make sure it didn't happen, but apparently no one in charge listened!
I hope you are doing well. Please don't give up totally on here as despite what the idiot leaders may or may not do, we continue to have folks come here seeking some direction and support...If you and I and a few others abandon them, where can they turn. Right? I try to check in every few days to see if I can offer any kind of hand-holding or information to a newbie.
Take care. And if you wish to reach me privately, check my profile as my email addy is there! Just put F2F in the subject. OK?
That's a tough situation for both of you. I would consult with any social workers affiliated with the prison/jail system you are in as well as with your Mom's medical team to see if there are any patient advocates she can call upon to make her life and treatment easier and to avail her of your assistance if and when the need arises. Hopefully her treatment will go well, and when you return home, you and she can share future of good times!!
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