There is one individual (Jessica...goodlook121) who is constantly responding to each and every post, and it appears that she is interested in using this community for a personal "hook-up"...Please remove her and her posts as it is totally inappropriate!
(Our Mods used to tend to these issues in a timely fashion and keep an eye out...Sadly, that is no longer the case. Hope you can take care of this!!)
Lisa, I am sorry to hear your report. Would that it had been better news. Over the years we have had several members who had to deal with the same beast (IBC) you now face. Due to the changes WebMD made along the way and life itself, I don't think any of those member still post here. I do recall, however, that one member seemed to find much information and help on http://www.ibcresearch.org/ If you have not as yet gone to that site, it might be a good cone to check.
Also, I am hoping that perhaps some of the other members I spoke of may peek in here from time to time and offer you some insight.
In the meantime, please know you will be in my thoughts.
You pleased me so by saying I had provided a bit of humor!! One of God's best medicines...That and the sound of a child's giggles!!!
Speaking of the Almighty, the first follow-up I want to offer is for heaven's sake (quite literally!!) don't be so hard on God or on you!!! You have every right to be discouraged and/or frustrated despite the fact your regiment seems to have been successful! You have faced so many challenges and have bravely dealt with one and all! Your frustration doesn't reflect lack of appreciation, but merely reflects your humanity! Even Mother Teresa once stated that, tho' she appreciated the fact that God would never give her more than she could handle, she dearly wished that He didn't trust her quite so much!!!
And the Almighty isn't nearly as thin-skinned as we often fear! He can take a lot that we toss in His direction...After all, is He not Love?! Give Him some credit and don't fear letting Him know you disagree with the path He has you walking or that you might question His decisions, etc. He's pretty strong you know...He is GOD!!
Incidentally, any of His representatives such as your priest will also be more than understanding...unless they are poops!! And those you don't have to even give a second thought to! As we say about medical conditions, seek a 2nd opinion!! Okay??!!
How wonderful that you work with sign language and the deaf, etc. Using that talent in church always made me think that one was praying twice...with words and with signs!!
(Although I am addressing you here with many religious references, please know that I don't always agree with organized religions and frequently have many doubts...I say that for our members who might read this and feel turned off because of that. I have come to appreciate that there is not a single path to living a good life, a full and loving life...If the path we choose reflects our humanity and our fellowship with all things on this sweet earth, I cannot but believe we are all going in the same direction!)
Please take care of yourself, continue to find others who offer you support when times are tough, and may your own efforts to ease the trials of others continue as well!
Aw, Christine, it appears you have had few opportunities to laugh since last you posted! Just when you get a handle on one thing, another rears its ugly head! I am so sorry that you have to face so many challenges! Sometimes life just isn't fair!! (You have heard the old joke ~more ironic than funny!...If you wish to hear God laugh, tell Him your plans!!)
Do you have folks around you that you could talk with or with whom you could do things (non-Medical for a change!!)? Are you involved with any activities which you do just for enjoyment?
Gal, you need and DESERVE a break!!
And you need support! Do you go to a church or synagogue? Is there a cancer support group? Or a depression support group? Please find a therapist or physician who really listens and whom you feel cares.
Check with patient advocates, etc. to see if you might be eligible for some financial support too.
And come back here often...It helps to share with others. In fact, go shopping for other online groups also who might offer a hand to hold when you need it!
Meanwhile, please know you are in my heart and thoughts.
Aw, Luke, as I often have said: Sometimes we are blessedand cursed because we have choices!!
Try and recall how ,when you were faced with your original diagnosis, you carefully researched all your options, weighing the benefits against the risks. I'm sure you have done the same this time...And I don't think a benevolent God would want to fill your heart with angst, but would, instead, be right beside you, holding and reassuring you!
I agree with Jenna that the pre-surgery nerves are difficult for all, but once you are beyond this, you will feel much better.
Know that we will all be aboard Pinkie for you on Wednesday...Fully prepared with nail polish in every shade of the rainbow! Please keep us posted on how you are doing.
So glad to know all went well, and that you are continuing to rest and let your body heal. 'Sides spending a day or two enjoying movies isn't such a bad idea...Make sure you have enough pop corn so when we drop in to join you, you can pass it around!!
You're right about my hating getting up early, but for a Friend...I never mind!!
Wow, Lady...What super fun-filled days you have on your agenda! And then top if off with a a wedding! Mind if we all pack on Pinkie to escort you on your adventures and to help celebrate your daughter's wedding?!