Yesterday I had my annual exam and mammogram. (All seems to have gone well, but I await the mammo results to actually relax! We all know how that is!)
Anyway, while being examined I noted that my doctor who is also a breast cancer survivor was wearing a new type sleeve. Apparently she deals with lymphodema and instead of the normal beige sleeve, she sported this really neat designed item. When I asked her about it she told me of the site lymphediva.com There they have all sorts of uniquely designed sleeves. She particularly liked the one she was wearing as folks often thought she had become Abby on NCIS and was all tatooed!!
We also discussed exercise for lymphodema and airline flights. She felt that the sleeve offered her more help than did the massage. But when on a plane, she wrapped rather than merely wore the sleeve as that also proved more beneficial for her.
Wanted to pass along the ideas for you to consider and evaluate for your particular condition. And to offer a bit of "lymphe-fashion" ideas.
I just came across another possibility for those who are without insurance...(I don't think it has been brought-up before in Tips?)...Go to http://findahealthcenter.hrsa.gov and type in your address to find a federally funded clinic near you.
(A recent post reminded me of how so many of us and those who love us have floundered when it comes to what we can do to help a patient. Therefore, assembling a list in our "Tips" seemed a good idea. I have tried to select items for both men and women patients. Pleaseâ€¦.feel free to add to this!)
A Journal (to record the "journey") Inspirational and Humor Books One Large, Very Soft Teddy Bear Chocolate! Assorted Herbal Teas Cute Nightie/PJs Bags Of Assorted Hard Candies A Beautiful Box ~ Inside Place A Special Poem From You A Soft Blanket Or Throw Funny DVDs A Notebook With Pockets And Several Pens/Pencils A Calendar Organizer Gift Certificates For Pizza (And Other Delivered Foods) Gift Cards For Book Stores Bath Items Tape Recorder For Appointments ~ To Help With Recall A Small Photo Album Filled With Special Photos of Friends and Family Magazine Subscription Thick Socks For Winter Body Lotions (Might Want Fragrance Free) A Silk Scarf Crossword Puzzles Hats And Head Scarves Jigsaw Puzzles Something Fresh-Baked Any Equipment That Might Ease Recovery (cane, couch-side table, etc.) ã€€ ã€€ GIVING OF YOURSELFâ€¦â€¦â€¦â€¦â€¦
FIRST AND FOREMOST: KEEP IN TOUCH! SECONDLY: LISTEN! THIRDLY: REASSURE! ALL Emotions Are Normal; The Patient IS NOT The Illness!
A Booklet of "Promissory Notes" To Do As Needed Arrange A Schedule With Friends/Family/Co-workers To Bring A Meal When Going Shopping Call To See If You Can Pick-Up Anything Surprise With A Favorite Food Pick Up Books From The Library Visit Change Bed Linens/Freshen Bedroom Send Little Notes Via Snail Mail For Encouragement (In today's world of email, something that is delivered by a real mailman can be quite special!) Baby Sit During Treatments/Appointments Taxi Children Places Take Kids Out To Give The Patient Some Down-time Offer To Clean The House, Do Laundry Mow The Lawn Shovel The Sidewalk Weed The Garden Wash The Car Walk The Dog A Box Of "Mental RX" (This might be filled with donations by friends and family â€¦jokes, notes, thoughts, quotes, cartoons, etc. Have the sender sign it so that the patient realizes how many folks care. An Emotional "One-A-Day Vitamin"~ Refill as needed!) When The Season Is Right ~ Plant a Little Tree, A Reminder of Life! Accompany Your Friend To Appointments, Etc. Happily "Surprise" With Visits At Chemo If Patient Is Up To It, Offer A Drive, Lunch, A Movie
(One Caveat: Be very selective in books, movies, CDs, etcâ€¦Some can be very emotionally draining and that is not what the patient needs!
A Second Caveat: While being thrust into the world of cancer, it always nice to be reminded that there really is a "normal" world surrounding you, and that soon you will rejoin the ranks. "Escaping" with good friends and happy discussions can be a real shot in the armâ€¦and that one doesn't require a needle!!) ã€€ There is no "Right" thingâ€¦..JUST BE A FRIEND! Blessings all. Rachaelã€€ ã€€ ã€€ ã€€
Judy, Roberta and all members....!!!!! This is the reason WebMD has the "Report This" box at the bottom of posts!!!
I had seen this post, but had not had the time to look at it as yet. Glad you did Judy! So often these types are scams or ads, etc. Folks who come to WebMD are often in a desperate state and emotionally vulnerable ...They make great targets for snake-oil salesmen, etc. We can help protect each other by reading any posts very critically!!If you ever sense that something just isn't right, click on the "Report" and it will be looked into quite quickly!
Don't ever be afraid that you might be jumping to conclusions as the mods will examine things, and will let the post remain if there is not a problem. They haven't enough mods to watch every post so, as we say about our medical advocacy, we must take charge!! We alert them, and they can get to it more quickly. (What's the old adage...If it sounds too good to be true, it probably is!!!)
Again, thanks Judy and Roberta for being suspicious! In case neither of you have reported it as yet, I will do so right now!
I must admit that at times all forms of the site can be challenging, but we strugggle though because there is such a super group of folks waiting here!! We have a community of very caring, supportive members. You may well have found a similar group on the Depression board! I always find it amazing that folks who have never met, never seen each other face to face, could give so much of themselves! Despite my misgivings about our whole "techno" world, I have to admit that is quite a nice part of it!!
Now, as to the "age" issue (a term I find a little troubling with each passing year! )....When WebMD had it's most recent reincarnation (the new format), happily they gave us access to our last incarnation as the Breast Cancer Friend To Friend board. This allows us to reference issues as well as people from many, many years ago! It has proven most valuable, and I am glad that we have this option. So, you may sometimes see a note at the bottom of a post which reads "From BC F2F" --or some such -- which means that someone has made a general search and these "older" posts have popped up.
It is common for those going through certain chemo meds (particularly A/C, Taxol and the like) to be plagued by very painful and bothersome mouth sores. Here are some of the methods others have found in dealing with the problem:
During your treatments, liberal intake of ice chips and water helps keep the chemo from accumulating in the mouth. Also, very cold water on you hands and feet are equally effective. Carry a bottle of cold water with you and hold it. (Some chemo centers provide "cold mitts" for hands and cold packs for feet to aid with this problem. Ask about it.)
Biotene toothpaste and mouthwash Magic Mouthwash Yogurt Gargling with warm salt water Avoid spicy foods and citric acid Prednisone Decadron Carafate (mixture of Diphen, Maalox and Nystatin; cheery flavor Maalox most palatable) Sucking on popsicles (during trxs and otherwise) Rinse with baking soda and water Tom's mouthwash Smoothies Avoid alcohol (found in some mouthwashes) Use plastic utensils rather than metal Bemylid (mixture of Benadryl, Lidocaine and Mylanta) Viadent Prevention mouthwash (specifically marketed for oncology patients; found at Walgreens) Zel …something (seems to cover and numb though it is uncomfortable initially) L-Glutamine (an enzyme which is depleted by chemo; said to also be effective with chemo brain) Lavoris mouthwash
Check with your dentist as well as your cancer doctors.
Use the mouthwashes (both those you swallow and/or "swish and spit") near the time you plan on eating. Though they might work only briefly, you want them most effective so that you can eat!
Some of these remedies that you are instructed to swallow may cause nausea. In that case, consider if simply "swishing" will be the better course.
As chemo can deplete necessary vitamins and nutrients, consult with the dietician at your hospital for suggested diets to supplement these. If eating is a problem, try supplements such as Ensure and Boost as well as soups and broths.
Speak with a dietician connected with your hospital for recommendations of food that are most often depleted by the chemo. Protein particularly.
Seek out recipe books aimed at cancer patients.
As with everything, make sure you check with your medical team!! 　 Blessings. Rachael 　 　 View Thread
Just when the caterpillar thought her world was over, she became a butterfly! Don't give up five minutes before the miracle!!
I got this information in a recent email...It may just help save a life. ..........................................................
Paget's Disease: This is a rare form of breast cancer, and is on the outside of the breast, on the nipple and aureole It appeared as a rash, which later became a lesion with a crusty outer edge. I would not have ever suspected it to be breast cancer but it was. My nipple never seemed any different to me, but the rash bothered me, so I went to the doctor for that. Sometimes, it itched and was sore, but other than that it didn't bother me. It was just ugly and a nuisance, and could not be cleared up with all the creams prescribed by my doctor and dermatologist for the dermatitis on my eyes just prior to this outbreak. They seemed a little concerned but did not warn me it could be cancerous.
Now, I suspect not many women out there know a lesion or rash on the nipple or aureole can be breast cancer. (Mine started out as a single red pimple on the aureole. One of the biggest problems with Paget's disease of the nipple is that the symptoms appear to be harmless. It is frequently thought to be a skin inflammation or infection, leading to unfortunate delays in detection and care.)
What are the symptoms? 1. A persistent redness, oozing, and crusting of your nipple causing it to itch and burn (As I stated, mine did not itch or burn much, and had no oozing I was aware of, but it did have a crust along the outer edge on one side.)
2. A sore on your nipple that will not heal. (Mine was on the aureole area with a whitish thick looking area in center of nipple).
3 Usually only one nipple is affected. How is it diagnosed? Your doctor will do a physical exam and should suggest having a mammogram of both breasts, done immediately.. Even though the redness, oozing and crusting closely resemble dermatitis (inflammation of the skin), your doctor should suspect cancer if the sore is only on one breast. Your doctor should order a biopsy of your sore to confirm what is going on.