Most of us are becoming more aware of the difference certain facilities can make when we go for our mammograms. We learn (sometimes the hard way) which have personnel, techs, doctors and technology/machines which can provide both more accurate test results as well as more comfortable situations for us, the patients.
We now appreciate that for those who have dense breast tissue, the digital mammograms seem to be more accurate. And we are learning that timing can make a big difference in the discomfort we might experience...Our breasts are significantly more tender and sensitive the closer the time comes for our periods, so we should avoid scheduling at that time.
Now, I have just learned about something rather new (at least to me) which can make for softer, gentler, warmer mammograms. It is called a "MammoPad." It is a foam breast cushion which is placed between you and the machine. It is a thin pad, but apparently makes quite a difference.
Especially those of you who have had appreciable discomfort in the past, make sure you check to find the nearest facility which provides this new feature.
And sometimes you don't even have to do that! Pinkie is quite a Gal, and she'll just show up, invited or no! She comes to each members house, signals them to come aboard and then circles to the member in need and picks her up.
She always provides tons of good foods and drinks and entertainment.
Now if the member wishes to have a paricular guest along (we used to get many requests for George Clooney, but I fear he may be sliding in the polls! ), that too is provided!
So, let us know your scedule, any special requests, and we'll make sure we are all on hand to support you.
PS...Know that Pinkie doesn't just make trips to medical things...We often go to weddings and graduations, etc. We LOVE fun outings!! View Thread
Here are some places to check when money is tight and you need assistance:
To begin with, please check out the "Tip" for suggestions of places to assist with presciptions, etc.
Never hesitate to dicker with the doctors, etc. Health-care providers know that times can be very difficult money-wise, so do ask. The worst they can say is "no" and they might be able to help. If you don't want to speak directly with the physician, talk to someone in the billing department. Sometimes they will reduce the bill if you pay in cash and not wait to be billed.
Depending on the area of the country you live in, many places offer help to their citizens. For instance, Dallas has smallpearlsofhope.org and Hannibal, MO has a group called "Pinkie Pals" who offer financial assistance. Ask around.
Are you a veteran? If so, you can qualify for Veteran's Health Benefits and go to the Veteran's Hospital.
Check with Medicaid, Medicare, Social Security as well as Family and Medical Leave Act and see what options you may have with them.
Check with http://CancerCare.org (1-800-822-6507) or the American Cancer Society or the Susan G. Komen Foundation as they might be able to help or to direct you.
Web sites and phone numbers for various patient advocate organizations can be found at: The Center For Patient Advocacy, The Patient Advocate Foundation, The National Insurance Consumer Helpline (1-800-942-4242) and check with your local hospital Patient Advocate/Social Worker.
Type "breast care financial help" into your search engine.
When you are in a war with the beast, you certainly don't need to deal with one on another front such as finances!
Anyone who can add to this list, please do so!!View Thread
Here are a few suggestions if you are having trouble paying for prescription medications:
Samples! The drug manufacturers often supply the doctors with free samples. So, if there is a med which requires a rx, ask your doctor if he/she has any samples. (I've known folks who have had to seldom buy quite expensive meds because the doc appreciated the position they were in financially.)
Fill your rx via the internet. BUT...don't pick just any ole site!! Fraud abounds!! Check with the National Association of Boards of Pharmacy (www.nabp.net ) to see which they recommend on their internet pharmacies web site.
The Caregivers Marketplace can help lower your costs. This program is run by the Hamacher Resource Group and delivers rebates on some products. (Not everything is covered, but it is a good place to check... caregiversmarketplace.com)
Some pharmacies have drug-discount programs. walgreens.com has a savings club for people not enrolled in Medicare or Medicaid. (Check with your pharmacy.) I also seem to recall that Costco has such a program, and you don't have to be one its members to access it.
Also, I have heard that many of the drug manufacturers have programs for those who might need their meds but can't afford them. Contact them directly.
Talk to the social worker at your nearby hospital as there may be places specific to your area of the country which provide help.
(Please add any other suggestions. Too many people struggle with this issue.)View Thread
One of our great resources is our famous PINK BUS! Some of you are familiar with her. Others may need a little introduction so I went back to the WebMD magazine of Sept/Oct 2005 written by Jeanie Lerche Davis. (In the article, “Circle of Friends,” which you can access on WebMD, she is interviewing one of our members: Janice Haines [Janice_78> ) I have condensed the original:
Circle of Friends
It's early evening in Norfolk, Va., where "Janice_78" lives. Across cyberspace, the "Pink Bus" is ready to roll -- ready for breast cancer survivors like her to hop aboard.
Riders on this virtual bus are slogging their way through scans and surgeries, making the best of bald heads and insurance hassles. On the Pink Bus, they get hugs, tears, maybe a few (virtual) strawberry margaritas. As they have found, just typing a few words -- posting a lone message in the abyss -- can bring real friendship.
The Pink Bus is a joyride, you might say. It departs regularly, connecting the group of women and their loved ones who regularly support each other. They roll out the Pink Bus when someone is having an emergency, and everybody jumps on. Women and their families ...journey together on the powerful Pink Bus of hope and community.
"Pinkie" (so nick-named by one of members in France) has come to be an integral part of our journeys. Those who might initially dismiss her as so much imagination, find that there are moments when they are left alone and suddenly are very aware that we are beside them, caring and supporting. Pinkie is indeed real! Call on her anytime, and please board her weekly!
(One quick anecdote: Years ago one of our lovely members, Terri in California, told how she would print out the weekly Passenger List and bring it with her to her chemo treatments. There she would send caring vibes and prayers out to each one in need. That's the kind of special folks who are on our Pink Bus.) View Thread