I'm home from my surgery - the guys took me into the OR and injected a margarita on the way...LOL! I didn't feel a thing! I woke up, they sprung me free and we went out for breakfast - I had banana stuffed french toast smothered with strawberries and whipped cream! That's a crazy, carby breakfast for me and I enjoyed every single bite!
So far no pain from the surgery site, and now I'm going to take a nap! Thanks everyone for the company, it's all good!
Thanks everyone! Yes, we can have a weekly party aboard Pinkie!!! Bring on the cabana boys!!!
Actos is a diabetic medicine (generic is pioglitazone) so unless you're diabetic, you're probably not familiar with it. There was a clinical trial at Dana Farber combining carboplatin with Actos. I think it's ended - they probably pulled it because of the black box warning for Actos (it can cause bladder cancer if used for more than a year). But it also has proven to increase the effectiveness of platinum chemos. So this is a matter of "picking your poison" - I will not use it for more than a year but right now I need all the extra help I can get to fight the beast and I'm willing to take the risk.View Thread
Michelle Read my blog at www.mch-breastcancer.blogspot.com Smile and the world smiles with you!
The bottom line - port placement next Monday, PET/CT scan on Friday, first chemo on Dec. 26th, staying on generic actos because Dana Farber had a clinical trial using that combo and the oncologist thought it was a good idea. It will be weekly for 3 weeks then a week off, rinse and repeat. PET/CT again in 3 months.
Misara - sorry you are having a hard time with Taxol. I remember some joint pain from that treatment and I was taking meloxicam for osteoarthritis and I still had a little pain. You might also try Claritin - it gets rid of the joint and bone pain from Neulasta and I've heard others say it helps with Taxol pain. You don't need the "D" version, just generic Claritin may work.
I think you're absolutely correct to find a doctor who's willing to monitor you on a regular basis. In the first place, any doctor who claims to have cured breast cancer is full of crap! Hopefully, you'll find one of your current docs willing to take on the follow-up testing. Don't quit until you are satisfied!
I changed my oncologist when we lived in MO because my first oone was an arrogant jerk. I only regret not doing it sooner. both my hubby and me agreed that he was not right for me.
Because you have a rare form of BC, a cancer and research center might be happy to have you as a patient. If you can do your follow-ups there, you may be contributing to research that will benefit future angiosarcoma patients.
I think Dr. McDreamy will probably be willing to do your follow-ups. At least you'll know in a few days!