Hello everyone. It has been a long time sense I posted here. I apologize for that. I guess I got caught up trying to just be normal. I am thinking that some of you will remember me tho.
I do have some questions that I need some serious help on. I am now at my 3 1/2 yr mark of taking Arimidex. There is no way that I can say that I am 100% sure my problems are from Arimidex but I am quite confident that they mostly are.
I have gained 40 lbs sense I started this journey. My feet and legs swell and feel heavy. Every joint.,bone and muscle I have ache all the time.I do mean all the time. Due to lack of hormones I now have pelvic muscles prolapse. What fun! Not! I am so fatigued I can barely walk from room to room. I get very short winded and my heart will pound sometime. Can be frightening at times. I kid you not that the only thing I do is buy my grocerie witht he help of my husband. That takes all the energy and strength I have and it last for days afterwards. I stay at home and have hired a housekeeper. can't even clean my own house. The past few months I get nauseated when I move around much. I am just flat miserable.And yes I have told my doctors. All of them and they kind of blow it off and say to stay with the pill.I know I can quit it on my own at any given time but I have been afraid to. But at the same time this is getting to be to much to bare.
Has anyone encountered any of this? Can anyone post me sone encouraging words. I am afraid that depression is setting in and no one seems to hear me. Can anyone help?
Hello Ladies! Sorry it took me so long to return here, 'again'. I don't understand why Hayden would have been taken off! I have missed so much. Where did everyone go? Have they moved to another site? Gees, we must have an active site. To many of us depended on this. We never know when we may NEED a meeting place like this again. Has anyone considered a Facebook site? Does anyone know how to find the other members? Even if all members just 'blogged' among themselves it would be better than nothing. This is very upsetting to me.
Thank you for your replies. Yes Shell your post did help and so did Rachael and Jenna's. Tatertot is doing great! She is healthy other than allergies.And is quite smart. She is making a nice house pet.
Shell how did the check up go? What info did they give you and what is your plan now? I go back a week from Friday, On Oct 4. I am getting mammos once a year now and one is due on that day along with the bone density test. But I still do go for lab and check ups every six months. I so dread it all tho. I always do. I am always so afraid they will find something new. It almost makes me sick to think about it. Dread Dread Dread,
On my last labs with my primary physician my thyroid pill have to be increased because my thyroid is wayyyyyy to low.I assume the Arimidex is blocking the Synthroid from working. He increased the dosage and I go back in 2 weeks to see how the increase is doing. I don't know what they will do if the Arimidex prevents the Synthroid from working at all because we all know we HAVE to have the thyroid function.
I sure hope to hear from you all very soon on here at least until we can decide on a future place to have our discussions. In the mean time email me.......email@example.com . Mark it WebMD in the subject line. Good to hear from you all and thanks so much! PatView Thread
I know that cry. Goodness knows I do. I also understand the fear you feel for your son. I had cancer in my right breast and it had spread to lymph nodes. I had a lumpectomy and 2 more surgeries for more tissue to get to clear margins because the cancer tumor was invasive. It had spread to two lymph nodes. They removed eight. I did not have to have chemo but I did have 35 radiation treatments. I take a pill daily to help keep it from returning as it was hormone positive. I am 3 years out from diagnosis now.
I was diagnosed and had the lumpectomy within a couple of weeks via my choice. I am sure they will act as quickly as you allow them to. Try to relax if possible. And know all of us here are riding pinkie with you Tuesday. Breathe deep and stay strong. I will keep you in my prayers for good news and powerful strength. Please keep us informed. God Bless! ~ PatView Thread
I can SO relate to this! I went thru my ordeal of tests,surgeries,treatments 2 1/2 to 3 years ago and I can barely put one foot in front of the other to this day. I do not understand the fatique and all my doctor's say is....'it will take awhile'. I have tried blaming it on everything I could think of but the truth is I have about decided that no one knows! I just keep on keepin on. I do what I can and rest when I need to. I also hope that as more time passes I will regain the energy I once had. If not then I guess I will just accept this part as well. What else can we do. I have changed my lifestyle,my routine and am trying to change my attitude. I keep expecting the old me to come back but truth is the old me had cancer. So, if this is the new me I will adjust hopefully. What does help me tho is to rest two days and be as active as I can on the third day. Eat healthy and think about things that I enjoy thinking about. My check ups are good also but fatique does not show up there for me. Now that being said, I must add that I have RA and CFS.....Chronic Fatique Syndrome. I have dealt with these for years and the flares usually subside after a couple of weeks but sense my surgeries they have stayed constantly. I do know that radiation treatments cause a fatique problem that can last a few months or a few years. I do hope you get some answers and some well derserved relief. But I can assure you that You are not alone with this one. Best of luck. Blessings......PatView Thread
Did they have to go in more than once to get clear margins on you as well? Due to the tumor being so superficial my clips are near the outside of the breast as well. From your description, I assume this is probably more comfortable than where yours are located come mammo time. The underneath of my right breast is pretty much gone. Actually I guess I would really be classified as partial mastectomy rather than just lumpectomy.Didn't start out that way but ended up that way.By viewing teh mammo films it looks as if teh clips are just underneath the skin in a row climbing upward. Stacked like leaning blocks. However, I do understand now why it is still so tender in that area.Makes me wonder also what these clips are clipped to! Tissue I assume. OUCH! In all honesty you would think they would have explained this all to me from the get go. Instead of me learning about it 3 years later. Questions????? Yes, I have them too.
I have 4 clips! They show up very clear. I did have to have 3 surgeries to reach clear margins, could that be why there are 4 clips? They are all seperate from each other, as in stair steps. AND...........do you or anyone else on here know what they are made out of? You would think they would inform us on all of this in case we had to ever have an xray for an unrelated reason for another doctor.
Just to let you know that Tater Tot is doing great!! She is spoilt and at the same time very smart! She is making a great companion. She is healthy except for some allergies plus she has panic attacks! Yes, my expensive Shi tzuh has panic attacks very easily and at times has to have meds.Wouldn't you know it........Other than that, she is great! She loves to dance on her back legs and crosses her front paws and waves them at you while sitting on her back legs. An awesome thing to watch! Thanks for asking about her! Blessings.....PatView Thread
Thank you Judy and Rachael for your replies.I sure appreciate them.
Rachael the clips were very defined and very easy to see. My tumor was so very superficial that the clips look like tiny stair steps on the bottom of the remaining breast. I was kind of surprised at seeing these sense I had no idea I ahd any clips in there at all. No one ever explained that part to me. Are they metal, stainless, plastic or what? I am curious about that also.
Judy I knew that the affected breast could reduce in size and harden somewhat, which mine did from the get go after rads but for the other one to reduce also and both reduce even more at the same time was confusing to me. But I honestly think there has been weight loss. I do not weigh at home.The scales are never the same as the doctor's office so I just quit. I personally think I kept gaining and then started losing, which I really started working hard at doing the last 2 months. But I am going to enjoy the good news and celebrate the relief. The doctor's were not concerned at all or they would not have took me from 6 month mammos to a yearly mammo now. I was just curious to learn about this.
Jenna, Thanks so much for replying! I do enjoy hearing from all of you. I have not had to have MRI's sense before my surgeries. I am approx. 7 years post menopause and my breast were never very dense. I see my mammos each time they are done and I will say they look very very clear to me as well. The 'clips' show up better all the time. Actually I nver knew they were in there. ????? Could this be to 'mark' how far into the breast they went for more tissue on each surgery? They had to take tissue 3 times to get to clear margins.And in the process I lost about 1/3 of the affected breast. So many questions we can come up with. Thanks again a very nice day to you aw well. Blessings....PatView Thread