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I posted a request under your last adivice. It should have been posted under a seperatae title so here it is.
Is there any way of getting one or more of the large cancer centers/universities/research centers to volunteer to answer questions or direct people in the right direction. Sell the idea as free advertising, Access to large populatiion of possible subjects for clinical trials or a way to get their message accross. ie prevention of skin cancer, prevention of oral cancer. signs and symptoms of different cancers. Every oncologist I have worked with has pet project. The reason they went into their speciality was to make a difference.
The reason I bring this up is the type of question i have seen when surfing through the different cancer sites with no expert. Some should have seen a doctor immediatly--these questions were sometimes a couple of months old. I became aware of the cancer communities when my husband was diagnosed with oral cancer. I did post in the oral cancer community with no response.
Fortunatley I work in a laboratory so I have access to 3 pathologits for any technical questions I might have. And I understand the medical terminology. Unfortunatley most patients are afaid to ask or do not question the doctors for clarification and assume what they are told is gospel. Doctors are not perfect and do misdiagnose.
Please excuse the spelling--I have parkinson and one of the many things affected is my ability to spell
wView Thread
This is her current statement on her blog:
How do you even process this? I need to write it here because I can't even think straight right now to explain everything to everyone and I love everyone but I'm too emotional to want to talk about it at this very moment.
Well first off, I've been in the hospital for the last 7 days because it turns out that my oxygen was low causing blue lips, confusion, heart racing and shaking I couldn't stand for 2 mins without feeling like this- it turns out an antibiotic they put me on caused the oxygen I was getting to not be released to my body and caused my 'methemoglobin' levels to be high, still don't know what that is but they're going down and I finally feel a little better than I did the day I got here as far as that goes.
The part I can't or don't want to process right now is that after doing MRI's and a spinal tap they found out that one of my tumors in the cervical spine/brain stem area grew & there are melanoma cancer cells in my spinal fluid. As if this doesn't sound bad enough, my dr explained why it's a really bad thing. The area that the tumor is in controls your breathing and other important functions that essentially keep you alive and if that grows anymore it could basically be life threatening. Next, since spinal fluid also circulates to your brain and mine has cancer cells in it, these cells can potentially cause more tumors in my brain & up & down my spine or will make the tumors I do have get worse causing more symptoms and making them harder to treat down the line.
So the best treatment according to my dr and another team of specialists is whole brain radiation with targeted therapy to the tumor that grew. It's not 100% that it'll kill what's there because lovely melanoma resists radiation a lot of the time.. So now as for side effects, I'll lose my hair, be even more tired than I've been lately & possibly have mild 'cognitive issues' down the line for the hope that this may work.. but right now it's the only choice I have.
I really just need to get out of here (they say hopefully tomorrow after they do the set up for radiation) have a day or two to not think about any of this at all then maybe I'll be ready to process it.. Just maybe.View Thread
I'm sure there are some great hospitals that are better at one thing than the other but how do you find them?
Pediatric Ewing's SarcomaView Thread
I'm sure there are some great hospitals that are better at one thing than the other but how do you find them?
Pediatric Ewing's SarcomaView Thread
I've been a long time member of WebMD but it's been a long time since I've posted anything.
My brother was dxed with stage IV renal cancer which metasticized to his right lung, legs, spine, stomach, hips and I'm not sure where else but probably everywhere. His doc started him on a chemo pill but when he found the cancer had spread he was referred to another doc which started radiation therapy.
My question is, "Is radiation therapy only good for spot therapy or will it kill all the cancer cells? Will this prolong his life? Or will this therapy cure him? Is this treatment really a waste of time if it's true that once the renal cancer has spread to other organs and has metasticised?
He or his wife won't ask these questions and I hope maybe you can answer them for me.
thank you,
KarenView Thread
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Family friend had a cancerous mass removed from his kidney today. They say they "got it all" and he won't need chemo.
What does this mean? How do they know they got it all? Could it come back?
This an approximately 65 year old man who had a different mass removed from the same kidney 10 years ago- but it was just a cyst.
Thank you for any advice.View Thread
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I am new here and haven't been diagnosed, I actually haven't even been to the doctor yet. I'm waiting for my health insurance to kick in first, I have two more weeks left
I am having issues with my thyroid. I have for quite some time. In 2003 shortly after my first daughter was born my GP told me "Oh you have a goiter." she sent me to for bloodwork which showed a "low" but normal result. Because of insurance changes I had to switch doctors a few times but I made sure to carry the information over. In 2006 I switched doctors again and he felt my thyroid and sent me for an ultrasound, the results were that I had 2 small masses and 2 cyst like lumps but they appeared benign so follow up in 6 months. My current marriage fell apart and I lost my insurance so I never followed up. I never even made it a second thought, assuring myself "I'm young, I'll be fine." It wasn't until this past year that I really felt it bugging me. Like something in the back of my mind telling me something wasn't right. After my second child I lost a lot of my baby weight, getting down to my high school weight. But in the last year I've gained all of it back and then some. I thought it was due to poor exercise because I eat healthy. I've had a lot of coughs and sore throats, but put it off as "must be allergies". But in the past few months I've felt a lot of pain not just as a sore throat but sharp pains shooting through my neck, I get a weird taste at the back of my throat and my inner ears are always sore and I get a "popping" like when you're driving through the mountains, but I live at very low eleation in the desert. About three months ago I noticed that I feel like I have something in the back of my throat, it makes it hard to swallow sometimes and I sound "winded" when I breathe. A few days ago I noticed that my right collar bone sticks out more than my left, my right side of my neck is prominently more swollen and this morning saw this purpleish/blueish ring around my neck almost like I had a piece of rope around my neck or something. I get headaches and "brain fog" quite a lot too....A part of me is telling me that I am silly and I am fine. I will turn 28 in February and I am a single mother to two young girls. But a part of me sasy something is not right too.Has anyone had similar symptoms? I know I need to go see a dr about this and will ASAP but I guess just needing to say it all out loud since I don't want to worry my family & friends with all this.
Any advice is much appreciated!View Thread
other terms used in the report were
-obvious exophytic mass upper pole left kidney what does that mean?
-the mass is a little over and inch big
Please, any feedback would be appreciatedView Thread
So my question is can a cyst turn into cancer or become cancerous after not being cancerous? Thanks.View Thread
His thinking and personality changed toward the end. Is this common?View Thread
I had another ultrasound and biopsy and was fulll of nodules some as big as a golf ball and others bigger. The smaller of the two was suspicious so my thryoid was removed but the cancer had leaked out and was on my windpipe. I am currently going to chemo one day a week and radiation 5 days a week for 7 weeks. Ithank my gut for telling me something was wrong. I must have been being watched over by my mom. anyone out there with thyroid cancer?View Thread
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