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I need input from others..View Thread
My Mom is 58 she has always worked, and had a very active social lifestyle. Two years ago she suffered her first stroke and has been living in her own personal hell since. Every six months she will see the neurologist he finds more leasions on her brain, and as of recent her spine. My mother is in constant pain so the Doctor prescribed her Oxycodone, Lyrica, and Ambien at first we thought it was starting to help but then her personality started to change she wants to die, she is VERY paranoid, her face is very limp on one side and we can't hold a conversation without her thinking the devil is trying to get her. Everytime we take her to the ER because we think she may have had another stroke they want to admit her to the pysch ward because of her behavior. We don't know what else to do!! Anyone going through the same thing?View Thread
assisted living home .
We are having troulbe caring for his teeth.
Do you have any hints on care.
We cannot get the mouth to open . Are there special products that taste good ?
I did floss his teeth yesterday and he said that he felt better.
m1d2j3View Thread
While she's never fully recovered....she's pretty much happy if you buy her a Starbuck's and let her watch the Gem-Channel.
While my father's life is deteriorating.
In the beginning we all pitched in to help....Mom requested things and we got them for her. Tried to read to her...care for her. But she says no one will read to her adn then you show up with the book she's requested to spend the day with her and she doesn't want to she says she wants to paint....you buy hundreds of dollars of art supplies she says she needs and wants and thinks it would be good therapy for her condition. And they sit untouched.....she complains you didn't get the right ones...you buy the "right" ones and the also are never touched because now she wants to buy a hourse and take up horseback riding and gets upset no one will support her. Despite being 270 and can barely walk from the handicapped parking spot to the door of a store. Her whims change like the wind.....and I get that some of that is the stroke, though she was like that before....but she gets angry and takes it on her husband on us that we don't care and don't love her and won't help her.....because we won't buy the horse. It's crazy.
Sadly, prior to the stroke she pretty much only slept, watched TV and kept no schedule. And that continues know only magnified.
She was always strongwill and hardheaded and after the stroke that's gotten worse. She won't be told what to do and wants what she wants when she wants it.
In order to make life bearable you give in so her temper tantrums stop.
I see my father worn out, stressed and slipper futher into depression.
He's racked by guilt about what to do.
People suggest all sorts of things, but she doesn't want to do them....you set things up and then she refuses to get out of bed....
we're at our wits end. She was in an assisted care facility for awhile and she still had my father running ragged because she wanted this or that. But I think that was the best of a bad situation. Aty least Dad got a bit of a break and we new shge was getting consistent meds at consistent times because she will do what a stranger more readily.
But even there......she was only there 8 months and when we moved her out most of the new furniture and household items we bought her had to be taken to the dump despite having housecleaning service. She just is very very sloppy and doesn't like people cleaning around her.
How do we love and care for her in a respectful way and yet give my father some sort of quality of like......they're only in their 60's and he's active.View Thread
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I have just found this group and am grateful to have a place to come to. I moved home to live with my elderly parents last year after health issues. They both have had their share of problems, but I have noticed a decline in memory and functioning. I worked for many years in nursing homes/alzheimer's communities/assisted living communities, so the aging process is not new to me. However, it is different when it is your own parents. I feel totally alone in this journey and am at a loss as how to keep my own sanity and take care of myself.
Thanks for reading.View Thread
Does anyone know of equipment that might work? This is kind of an obesity issue as much as Alzheimers since she's only having this trouble thanks to the alzheimers and the eventual degradation of her muscle memory.
Thanks for any suggestions.View Thread
Now, with all the other issues, her legs are blown up with fluid (edema) as well as her feet. She cannot even wear a sock. She is also "weeping" fluid from her legs and feet.
She was no Namenda but was taken off as they felt it would not do her any good to continue. Two weeks ago Hospice put her on oxycodone for back pain.
I live in NY and fly down to see her two times a month and I am scared. She is now under the care of Hospice which is wonderful. Has anyone every gone through a similar type of issue with a loved one? She does know who I am but says nothing and will only answer with a nod of her head, yes or no.
Please, any words of encouragement or even if they are not so encouraging will be appreciated.
Thanks,
Karen in New York
View Thread
The worst came two years ago when I was working F/T, going to school at night, caring for my husband (when his condition turned to oxygen 24/7 and disability at home with a couple long trips to hospital per year), 18 year old daughter (after 4 years with my ex) back in my life for college in Tucson, I had a MAJOR breakdown. I was then diagnosed with Bipolar with Depression (which I knew I had since my teen years - had all the symptoms), been hospitalized 5 times for attempted suicide and still have very very difficult time wanting to stay alive, but don't want to because I love my husband and my daughter very much (relationships good with both, even though tension on the husband side.) I am very lost, pretend all the time, sometimes don't get out of bed for days, misuse my medications and lie to my husband about it. I have a wonderful psychiatrist and psychologist and have adjusted the meds to a place we think are good (although I guess not or I would'nt feel this way.) I know I'm RAMBLING, but I'm beside myself with what to do/not do, strength is just not there to keep me on a regular or any kind of routine of food, exercise, sleep, etc. SO WHAAT DO I DO??????View Thread
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i don't regret one minute of the time i spend with her. she's always been the best mother anyone has a right to expect!
i've heard that even though i'm on ssi that i could get paid for being her caregiver. can anyone tell me if this is true? if so, how do i get it started?View Thread
I live in a rural area that has very few supports for a caregiver, caring for someone with a severe mental illness. It is very different living in a rural area as when I lived in the city.
I am moving back to the city as soon as I can so I can get better supports for my son. Thanks to my computer I obtain much info and discussion boards.Still it is better to be near a place that has many physical programs in place and meet people who are active in support groups, hear their experiences, what works.Although I have hooked up with one mental health org. NAMI when there are very 2 people involved who are functioning well, what benifit is it to someone as myself with big problems.If you know of other mental health supports for a caregiver who cares for a severe mentally ill adult please share.
appreciate it greatly need to keep my sanityView Thread
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