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That all sounds good except my mother was angry I told the doctor about the fact that she doesn't get out of bed all week. She also is angry that I "take away all her choices." I don't feel like I do but she does and so she was very unhappy with me last night.View Thread
As most of you know, we experienced some problems this morning that caused your boards to be unavailable for a number of hours. We wanted to let you know that we appreciate your patience, and we are so glad to have you all back with us!
If you notice any further disruption of service or other technical issues on the boards today, please write to us at webmdcommunity@webmd.net and let us know.
Take care, WebMD Community ManagementView Thread
But, my birthday also means my mother wants to get and give me a gift. A couple of weeks ago it was that she wanted to get my daughter a gift for her birthday. My mom is on a super limited income. Most goes to pay her medical bills and my sister's bills. Neither my very overindulged child nor I really needs a gift. But my mom feels like she should give them. I know that this fall with all of its birthdays will bring more gift angst, followed by Christmas.
How do you work out teaching someone that we would rather she spend time with us and share herself, her memories, before she can't than have some disposable something we don't need? Or am I wrong to tell her no, don't go shopping and spending a lot of money on things we don't want or need?View Thread
This makes it hard to get her to walk which we want her to do more of in general. Then there are the falls. I am starting to be very concerned about her falling and fear of falling. Would assisted living be safer? Is there something else to consider for dizziness/falling?View Thread
She is in mostly excellent health and physical and mental condition. She exercises regularly, is learning advanced Spanish (having conquered French a few years ago), reads a lot, uses the computer a lot, plays word games, does crosswords, sews, etc. She is energetic and watches what she eats. She has had no chronic health problems, ever, and takes almost no medication.
She has always had problems with anxiety, sometimes severe. She has a history of panic attacks, but has not had any for a couple of years. She takes Xanax when she feels anxious, but not on a regular basis.
She is also a perfectionist and hyper-organized.
She has always had an extreme fear of death -- or maybe more accurately, an extreme desire to not die. She has also always been terrified that something will happen to her at home when there's nobody around. Because of that, she bought a house a few years ago with my sister and her husband and kids.
A couple of weeks ago, Mom had an episode where her heart was racing (200 bpm -- my sister is an RN and took her pulse), and she felt like she was going to faint. It lasted quite a while and she ended up spending the night in the hospital. She had never had any kind of heart problem before.
She has seen a cardiologist, has some tests scheduled, and will presumably be put on some sort of medication. In the meantime, the doctor has told her not to drive, so I'm taking her where she needs to go -- I'm perfectly happy to do that, and it's not a problem at all.
The problem is that the episode with her heart seems to have really exacerbated her anxiety and she's done some things that really aren't even logical. For instance, she called the gas company to replace the two water heaters in their house, even though there have been absolutely no problems with them, because she was afraid they would start leaking sometime when she was home alone. Fortunately, the men from the gas company convinced her it wasn't necessary.
When she and my sister moved into their house, which has a very long driveway, they had an electric gate installed so Mom would feel safer when she was home alone. Now, she won't keep it closed when she's home alone during the day, because she's afraid something will happen to her and she'll have to call 911. Even though she has Lifeline, who would give her gate code to the EMS, she won't close the gate. Also, if she's out with my sister or me, she won't let us close the gate while we're gone, either, because she's afraid that something will go wrong with the gate and they won't be able to get it open, even though that's never happened in five years. Even if it did happen, the worst thing would be that they have to walk around the gatepost and leave the car outside the gate until they could get it open. Now, the only time she'll allow the gate to be closed is at night, when someone else is in the house with her. There are other things, but you get the idea.
She seems to be trying to prepare for the worst possible contingency in every aspect of her life, and it appears to be getting out of hand. I can sort of understand the need to feel in control, because she can't control what happens with her heart, but she needs to stop obsessing over everything. Trying to talk to her about it is really difficult, because she gets defensive and thinks we're making light of her fears.
Sorry this is so long. Does anyone have experience with a situation like this, or have any ideas for how we might handle this without making it worse?View Thread
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If you’re between the ages of 18 and 65, live in the New York tri-state area, and think your depression story might be able to help others, please send us an e-mail at webmdcommunity@webmd.net. Include your contact information, your age and a brief summary of your depression history. A WebMD staff person will get back to you with further details.
Thank you in advance for your help with this important project. We look forward to hearing from you.
Yours in Health, The WebMD Community StaffView Thread
Any hints on remaining patient with her moods?View Thread
The lectures are in Hawaii but if you would like a transcript of the talk - let me know.
Gary A. PowellView Thread
Do you have any tips for how a caregiver can encourage exercise?View Thread
My mother had ovarian cancer 10 years ago. They discovered while doing some bowel surgery. She did chemo and has been cancer free since, so this is basically just a follow up sort of visit. She also has a port in her arm that needs periodic flushing.
Doctor asked her about the BRCA test which she hasn't done (that she remembers) and he seemed to encourage it quite a bit...as did other staff. She asked me if I knew about it. Uh yes, mom, I do. So, of course, she seems like she wants to get it. Just another blood test. No big deal.
But it is. Do I really want to know? My sisters have both had hysterectomies and their ovaries removed. They both are pretty obsessive about preventative medical care.
So, it is just me in this generation. Do I want to have to face the burden of talking this out with my girls or get tested if Mama tests positive? What about my sister's daughter? And finally, do I want her tested if her test comes back positive and those tests are used against me or the girls when it comes to medical insurance in the future?
Is the reasoning for preventative removal there? I am done having children. I don't REALLY need ovaries or breasts...but I also don't want unnecessary surgery. Or is it unnecessary? Will it be the better choice in the long run?View Thread
Now, 10 days later, same thing. The only added symptom is that his eye was bloodshot, but also the very high blood pressure, droopy face, headache, can't swallow. Took him to ER and once again, they can't find anything that is causing this.
I am extremely frustrated. He is seeing his neurologist today at the hospital. I m just wondering if this has happened to anyone else's loved one. Is there any other type of test that can detect a stroke besides a regular ct scan? Or to find a blockage. Heart seems fine, i feel that it is some sort of blockage in the brain? ThanksView Thread
Some new finds: honey, moderate alcohol consumption, statins, calorie restriction, and more.
Do you do anything to slow dementia in the person/people you care for? What alternative treatments do you use? What about yourself? Has seeing your loved one lose their past make you more willing to try treatments to slow or prevent dementia?View Thread
So, share how you spent your weekend and your plans for the week ahead.
~~~~~
Super nice weekend for the most part for me. Mama still struggling with lows off and on. I am calling in to get her pumped tweaked. I was sure the infusion set recall was the issue, but it seems not to be the case.
Saturday she didn't feel up to the Botanic Gardens, so I left her with food and phone. We had a great time with my partner's mom...though we wore her out. (and only saw a small portion of the botanical gardens despite a good six hours there)
Yesterday we made a brief trip to the nursing home to see my sister who has had another set back. But then we went out to lunch and to the Art Museum. Fabulous. I hadn't been and we certainly didn't see it all but had a blast. I think Mama was glad to get out and spend a "normal" day out. She seemed far more alert and less troubled than usual, despite how bad my sister is doing.
I did catch her calf with the corner of the car door though and it bruised up fast and bad.
Blood thinners rot. (ok they are mostly good.)View Thread
And hopefully snagging her records which you would think was something super secret. Errr...I am a geek...I want something more than "Angiogram was surprisingly clear and no need for stents, little calcification for her age" and "No sign of TIA but we think it could have been multiple ones OR a Migraine".View Thread
Come Jan all hell broke loose my husband had a stroke while eating soup at dinner he suffered a brain clot in his corotted artery on the left side of his brain, my moms cancer came back this time in her back and I was admitted to the hosp for severe pink eye my eyes were actually bleeding.
My poor kids ages 19 and 22 went crazy especially my son they both stepped up to the plate but my daughter seemed to run away from it alot.
Since then my moms cancer spread to her lungs and liver leg and a spot on her skull.
My husband ended up inpatient since his personality changed for the worse. he became so nasty he threw my mom out of our house. My mom was so good too. She never did anything to him but try to help.
Since then Ive been running and my son too back and forth to my moms and trying to take care of my husband. He was inpatient for behavorial problems from the stroke. Noone told me about what to expect.
At first when he came home after the stroke he was actually funny and carefree then it all turned to rage even against me so bad If it werent for my kids and animals I would have left. It sounds cruel but I did tell him on a few occasions that I should have let him die. I am not like that but the emotional abuse was so bad hed even call me at work and tell me to get my mom out of there by that fri.
My son told him that he had to stop that he was getting out of here to. He didnt seem to care. Well he is now started outpatient therapy and the dr told him at the first visit that he either has to change or loose us.
I am worried about my son and daughter seems like she went into a downward spiral lost her job is very disrespectful and only comes home late at night and is drinking heavily. My son is a nervious wreck he is worried about his dad and my mom. He gos over to see her alot and was always very close to her since he was born.
My stomach is in knots all the time I cant sleep anymore without sleeping pills and I cant pay for my house anymore the doctor bills are adding up sent out payments on 15 the other day. My husband always protected me and took care of things and now Im not sure I can and do it rite. I am scared of loosing my mom and my husband since hes started smoking 2 packs a day again. What do you do when you could loose the most closest people in your life at the same time. I guess I feel like I already did, How do you handle it all.
my brothers started helping thank god with moms dr visits and her lawn at least I dont have to worry about that so much.
Seems like everything fell apart all at once when he had the stroke. Funny everyone I talk to says I am a strong person that god doesnt give you anymore than you can handle so god whats next>View Thread
I am not sure of our plans for entertaining them but I hope it will be a good weekend. We will also have all three of the younger kids bouncing around too...so you can't imagine the amount of love and happiness this weekend will bring
Jenn (and her new husband) have never met my mom. (Jenn is my partner's oldest child and was grown and out on her own before we got together.)
I am praying it will be a good weekend health wise for my mom too. My mom gets really embarrassed and uncomfortable about the help she needs in general, when the kids are here it is even harder for her. With adult children she has never met, I think it will be worse! Any hints?View Thread
I will let you know how it goes. I hope it is fairly accessible. She has been having a hard time managing just the step down out of the house and I know that when she made appointments one doctor--I think it was the pulmonologist--said the office had tricky accessibility.View Thread
It has been a crazy busy week for me just in general. My mom has been doing ok but she had a migraine for a few days and hasn't really been up and about this week. I am hoping that I can take her out tomorrow morning to breakfast and the farmer's market. Either that or breakfast and the nursing home.
Starting tomorrow afternoon, my younger three children will be here for two weeks straight-the first time in years. We are excited...but I am a bit nervous about balancing work, caregiving and kids full time.View Thread
What helped? Exercise (not a lot), high school education, ninth grade literacy, no smoking, and being socially active.
The exercise and socially active are two things we can work on with our loved ones. But how? When getting out of the house seems like an achievement and exercise is often getting them to get out of bed for a few hours.
What do you think? Any tips?View Thread
Do you just go locally? Order online? Is there much of a price difference between places?View Thread
Has anyone else read it? Is there another book that really touches your life as a caregiver that you recommend?View Thread
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