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Reply: what if

My daughter has Down Syndrome, lot of medical problems. When she was 31/2 stated getting sooo sick. No...

Posted by ellencrandall62

9 Replies | Reply | Watch This Discussion Report This | Share this:what if My daughter has Down Syndrome, lot of medical problems. When she was 31/2 stated getting sooo sick. No...

Reply: CalGal37, Remember me??? =)

Any tie-in between dairy (casein) and your LC? Do you cross-react? I have a couple of people at the office who...

Posted by CalGal37

3 Replies | Reply | Watch This Discussion Report This | Share this:CalGal37, Remember me??? =) Any tie-in between dairy (casein) and your LC? Do you cross-react? I have a couple of people at the office who...

Reply: sorry

In health information outreach, one of the most common ways to connect with the public is through magic...

Posted by juanvickey

5 Replies | Reply | Watch This Discussion Report This | Share this:sorry In health information outreach, one of the most common ways to connect with the public is through magic...

Reply: Iron Supplements

Other people do have a problem with taking iron supplements. You may want to take a look at: ...

Posted by CalGal37

1 Reply | Reply | Watch This Discussion Report This | Share this:Iron Supplements Other people do have a problem with taking iron supplements. You may want to take a look at: ...

Reply: best test for CD?

The test resuls dont post an acutal number except for the TTG: The TTG antibody IGA is .5 and the range is...

Posted by gerdo

14 Replies | Reply | Watch This Discussion Report This | Share this:best test for CD? The test resuls dont post an acutal number except for the TTG: The TTG antibody IGA is .5 and the range is...

Reply: Panic Attacks

This is much more serious than Celiac disease. Doctors should do a MRI scan of the brain to check for...

Posted by An_244658

2 Replies | Reply | Watch This Discussion Report This | Share this:Panic Attacks This is much more serious than Celiac disease. Doctors should do a MRI scan of the brain to check for...

Celiac and hair loss, now weight loss issue.

My hair did stop falling out and I have kept on taking the same medications all along. We put my mother in...

Posted by persevere7

0 Replies | Reply | Watch This Discussion Report This | Share this:Celiac and hair loss, now weight loss issue. My hair did stop falling out and I have kept on taking the same medications all along. We put my mother in...

Genetic Link confirmed - my Husband and Daughter h...

For those of you think you may have Coeliac Disease, if it is confirmed, please get any blood relatives checked...

Posted by Zilluu

For those of you think you may have Coeliac Disease, if it is confirmed, please get any blood relatives checked as well eg. your children /siblings /parents.

I live in Australia - my daughter Alex who is now 21 was a stop/start growing child, mostly in the 98th percentile for height, but with long gaps of no growth. As soon as she could toddle she would squat down with tummy pain several times a day. Once she could talk we knew she got dreadful stomach aches. She had huge brown shadows under her eyes. Doctors investigated but we drew the line at invasive procedures.
When Alex was 14 we went to the GP for the 500th time but saw a locum doctor. He arranged a huge number of blood tests. One of these was the sensitivity for gluten test, and her results were off the scale.
In one week she was in the local hospital having an endoscopy to confirm coeliac disease. As she came back from theatre the nurse confirmed that Alex had the worst case of Coeliac Disease the Gastoenterologist had ever seen - her villi were completly attrophied (excuse the spelling lolz). There is a lot more I could say about her symptoms, but my point to you, the reader, is more about the genetic connection.

My husband of 35 years (we had Alex late

) had been stick thin all his life. He is 6ft2in and when I met him weighed less than 9st. He had suffered from several illnesses but had recently had a heart attack and later nearly died from undiagnosed anemia 2 years after Alex had her endoscopy. Once they had given him iron transfusions we suggested they tested him for Coeliac Disease. The off the planet blood test results were comfirmed by the endoscopy. It was explained to us that nearly all his illnesses, including the heart attack and anemia had been caused by the undiagnosed Coeliac Disease.

So when the medical people diagnose you or someone in your family with Coeliac Disease, remember the genetic link is not a myth. Get your family checked out too - you could save someone's life.

Poor Alex cried over never having wheat donuts again
(until they find a cure), but she agrees she would rather be alive than eat donuts.View Thread

Posted by Zilluu

0 Replies | Reply | Watch This Discussion Report This | Share this:Genetic Link confirmed - my Husband and Daughter have Coeliac Disease For those of you think you may have Coeliac Disease, if it is confirmed, please get any blood relatives checked...

Fat Malabsorption (Steatorrhea)

History — Hysterectomy in 2006 after which I developed severe diarrhea and it continued to some...

Posted by someonewhocares3

History — Hysterectomy in 2006 after which I developed severe diarrhea and it continued to some degree for 9 months or so. Frequency gradually abated and have just had loose bowels since. Fast forward to June 2010 when a one-time stool test (never had one before) showed abnormal fecal fat (steatorrhea) and serum vitamin A was 19 (range = 19 - 83). All standard serum tests were normal although potassium is at the bottom of the range.

I have NO other gastro symptoms (no pain, bloating, gas) although I've had hair loss and dry and aging skin since hyst. (Even though I'm on HRT these issues may be due more to hormonal issues than malabsorption.)

Due to the position of the pancreas and intestines and the anatomical effects of hysterectomy (settling of intestines), I thought this would more likely be an intestinal problem than a pancreas problem.

I've had the following tests:
- Celiac testing — Two blood tests (3 years apart) and endoscopy - negative
- Stool test for parasites (run by PCP) — negative
- Stool test for good and bad bacteria (run by integrative doctor) — normal results
- Ultrasound of pancreas, liver, bile ducts, kidneys, aorta. Images were very clear and all looked good.

GI doc now wants to schedule:
- EUS with another doctor to rule out pancreas problems — not sure I want to do this since U/S was clear and EUS doesn't always show pancreatitis early in disease.
- Small bowel follow through — what will this show? When I asked about adhesions or "blind loop" type abnormalities, he said I'd have much worse symptoms if I had these. So what would be the point of this test??

Are there any additional lab tests that would be useful before proceeding to all these imaging tests — non-invasive and invasive? And what imaging tests would be useful if all lab tests are normal or inconclusive?

I know I can do a gluten free diet to see if that helps. I did one in 2007 and don't think it made much difference but don't recall specifically. I've read that you have to go GF for 90 days and since I don't have many of the celiac symptoms, that's a lot of inconvenience (more so when eating out and traveling - not so much at home).

Thanks to anyone who can provide some input!!View Thread

Posted by someonewhocares3

0 Replies | Reply | Watch This Discussion Report This | Share this:Fat Malabsorption (Steatorrhea) History — Hysterectomy in 2006 after which I developed severe diarrhea and it continued to some...

Numbness and Tingling after Drinking

Does anyone else have problems the day after drinking alcohol with numbness and tingling in the fingers and...

Posted by An_243912

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Reply: No dx yet! Help if you can?

Lilymae, it's possible to have both an inflammatory bowel issue and celiac disease. They can be gene-linked....

Posted by CalGal37

1 Reply | Reply | Watch This Discussion Report This | Share this:No dx yet! Help if you can? Lilymae, it's possible to have both an inflammatory bowel issue and celiac disease. They can be gene-linked....

Reply: Symptoms of Celiac disease? Afraid I have it. Moth...

Hi guys, It turns out I was diagnosed with Giardia, and have two negative Celiac tests done since I last...

Posted by AussieHoosier

9 Replies | Reply | Watch This Discussion Report This | Share this:Symptoms of Celiac disease? Afraid I have it. Mother and Uncle both have severe Celiac disease. Hi guys, It turns out I was diagnosed with Giardia, and have two negative Celiac tests done since I last...

Reply: Crohns disease or Celiac?????????????

Rose, it may be hard for any of us to give you an answer. Many individuals with Crohn's also have celiac...

Posted by CalGal37

1 Reply | Reply | Watch This Discussion Report This | Share this:Crohns disease or Celiac????????????? Rose, it may be hard for any of us to give you an answer. Many individuals with Crohn's also have celiac...

Reply: Effexor causing hives or gluten sensitivity?

All I can say is , I tooked Effexor about 18 month A friend of my also had that kind of med for about 3years...

Posted by Ewenza

1 Reply | Reply | Watch This Discussion Report This | Share this:Effexor causing hives or gluten sensitivity? All I can say is , I tooked Effexor about 18 month A friend of my also had that kind of med for about 3years...

Reply: help does this sound like anything you know of?

Sounds like you son may have celiac, ask the doctor do a test for celiac but you need to be eating gluten...

Posted by Dhappylady

1 Reply | Reply | Watch This Discussion Report This | Share this:help does this sound like anything you know of? Sounds like you son may have celiac, ask the doctor do a test for celiac but you need to be eating gluten...

Reply: I know I have CD but I haven't been diagnosed yet

If you do have celiac disease, start a gluten-free diet and you'll be amazed at the changes that will take...

Posted by CalGal37

1 Reply | Reply | Watch This Discussion Report This | Share this:I know I have CD but I haven't been diagnosed yet If you do have celiac disease, start a gluten-free diet and you'll be amazed at the changes that will take...

Reply: Diet/Eating Out

Just a thought...but because I am the only one in my house who is gluten free, I try to take the first...

Posted by dawniey5

3 Replies | Reply | Watch This Discussion Report This | Share this:Diet/Eating Out Just a thought...but because I am the only one in my house who is gluten free, I try to take the first...

Reply: Can gluten transfer through sex?

I know this sounds very strange...but is your husband diabetic by chance? I know mine is, and everytime we...

Posted by dawniey5

1 Reply | Reply | Watch This Discussion Report This | Share this:Can gluten transfer through sex? I know this sounds very strange...but is your husband diabetic by chance? I know mine is, and everytime we...

In health-care ruling, precedent trumped politics

http://www.2daydietlingzhislim.com

"PRESIDENT RONALD REAGAN must be spinning in his grave," exclaimed Maureen Martin of the Heartland Institute. A...

Posted by Aimeili

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0 Replies | ReplyReport This| Share this:In health-care ruling, precedent trumped politics "PRESIDENT RONALD REAGAN must be spinning in his grave," exclaimed Maureen Martin of the Heartland Institute. A...

In health-care ruling, precedent trumped politics

"PRESIDENT RONALD REAGAN must be spinning in his grave," exclaimed Maureen Martin of the Heartland Institute. A...

Posted by Aimeili

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These reactions <a href="http://www.2daydietlingzhislim.com">2 day diet</a> were to a decision by the U.S. Court of Appeals for the D.C. Circuit that upheld the constitutionality of the individual mandate, a key <a href="http://www.2daydietlingzhislim.com">2 day diet pill</a> provision of President Obama's health-care plan that requires most individuals to purchase insurance coverage. For many conservatives, adding <a href="http://www.2daydietlingzhislim.com">two day diet</a> insult to the injury of the ruling, released Tuesday, was its author: Laurence H. Silberman, a senior judge on the federal appeals court.

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Posted by Aimeili

0 Replies | Reply | Watch This Discussion Report This | Share this:In health-care ruling, precedent trumped politics "PRESIDENT RONALD REAGAN must be spinning in his grave," exclaimed Maureen Martin of the Heartland Institute. A...

Reply: Positive but no symptoms....?

Anemia can cause tingling/numbness in extremities.

Posted by CalGal37

1 Reply | Reply | Watch This Discussion Report This | Share this:Positive but no symptoms....? Anemia can cause tingling/numbness in extremities.

Reply: help does this sound like anything you know of?

An_240967, the variations in bowel habits you're describing are not 'normal' for anyone. If the only testing...

Posted by CalGal37

1 Reply | Reply | Watch This Discussion Report This | Share this:help does this sound like anything you know of? An_240967, the variations in bowel habits you're describing are not 'normal' for anyone. If the only testing...

Reply: Bleeding after endoscopy

what do you mean when you state gluten free treatment?

Posted by greammac

1 Reply | Reply | Watch This Discussion Report This | Share this:Bleeding after endoscopy what do you mean when you state gluten free treatment?

Reply: Sick of being sick :)

Roo2009, I myself have been going through alot of the same symptoms for the last 4 to 5 years and my...

Posted by irishdiva1115

3 Replies | Reply | Watch This Discussion Report This | Share this:Sick of being sick :) Roo2009, I myself have been going through alot of the same symptoms for the last 4 to 5 years and my...

Reply: Possible celiac?

Hi BritKit, Seeing a GI Dr. & getting blood work will probably give you the answer however sometimes...

Posted by grandmotherx4

2 Replies | Reply | Watch This Discussion Report This | Share this:Possible celiac? Hi BritKit, Seeing a GI Dr. & getting blood work will probably give you the answer however sometimes...

Reply: persevere7

budie22: Yes, I believe stress can cause hair loss....probably only temporarily until you get control of...

Posted by persevere7

7 Replies | Reply | Watch This Discussion Report This | Share this:persevere7 budie22: Yes, I believe stress can cause hair loss....probably only temporarily until you get control of...

Reply: Hair loss due to Celiac?

Thank you so much for your reply. You seem to be a woman of wisdom! I am taking your advice on "If I cannot...

Posted by persevere7

2 Replies | Reply | Watch This Discussion Report This | Share this:Hair loss due to Celiac? Thank you so much for your reply. You seem to be a woman of wisdom! I am taking your advice on "If I cannot...

Reply: Celicac Disease & Food Allergies

I suggest that your children be definitely tested for Celiac Disease-Gluten Intolerance.Additional Symptoms:...

Posted by An_239738

8 Replies | Reply | Watch This Discussion Report This | Share this:Celicac Disease & Food Allergies I suggest that your children be definitely tested for Celiac Disease-Gluten Intolerance.Additional Symptoms:...

Please help

Okay I have been having silent air come out my rectum. My mouth and I this my ears. I am thinking it...

Posted by Collegestudent1992

0 Replies | Reply | Watch This Discussion Report This | Share this:Please help Okay I have been having silent air come out my rectum. My mouth and I this my ears. I am thinking it...

Reply: celiac needs advice

Okay, the good news is, you can rest easy on this issue. I have had Celiac Disease for quite a while now and...

Posted by Carlisle12

2 Replies | Reply | Watch This Discussion Report This | Share this:celiac needs advice Okay, the good news is, you can rest easy on this issue. I have had Celiac Disease for quite a while now and...

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gluten-free mixes

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