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Luckily, she has a new posting, Understanding How Your Deductible Works which can help clarify some of that. Please follow the link to learn more.
Have you ever been sorry about a health plan or deductible you chose?
ByroneyView Thread
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However, like so many of you, he has residual effects that are longstanding and progressive. I was horrified to recognize so many of the symptoms listed in these posts: loss of balance, cognitive dysfunction, weakness, back pain, joint pain, chronic fatigue, hearing loss, loss of mobility, numbness in feet, failed EMG, Vit. D deficiency, b-12 deficiency, stressed adrenals, weight gain, etc.
Under the care of neurologist who has diagnosed HSP, Vit. D deficiency. Also under care of pain management clinic and orthopedic surgeon. One thing none of you have mentioned so it might not be related is inability to get restorative sleep even when sleeping for long periods of time. Does anyone share that symptom?
Also, leg function has, up till recently, been impaired only on the right side but left side is progressively worsening. Currently working but is disabled and will be unable to work soon if something does not change.
We will be re-testing for a new occurrence of tick fever and testing for the first time for LD tomorrow. It appears from what I have read that chronic or residual RMSF does not usually test positive for IgG or IgM antibodies. Please let me know if I have misunderstood.
Thank you to all of you who have gone to the effort to post and please keep us "posted." We will be praying for all of us in our circle that a breakthrough will occur.View Thread
However, like so many of you, he has residual effects that are longstanding and progressive. I was horrified to recognize so many of the symptoms listed in these posts: loss of balance, cognitive dysfunction, weakness, back pain, joint pain, chronic fatigue, hearing loss, loss of mobility, numbness in feet, failed EMG, Vit. D deficiency, b-12 deficiency, stressed adrenals, weight gain, etc.
Under the care of neurologist who has diagnosed HSP, Vit. D deficiency. Also under care of pain management clinic and orthopedic surgeon. One thing none of you have mentioned so it might not be related is inability to get restorative sleep even when sleeping for long periods of time. Does anyone share that symptom?
Also, leg function has, up till recently, been impaired only on the right side but left side is progressively worsening. Currently working but is disabled and will be unable to work soon if something does not change.
We will be re-testing for a new occurrence of tick fever and testing for the first time for LD tomorrow. It appears from what I have read that chronic or residual RMSF does not usually test positive for IgG or IgM antibodies. Please let me know if I have misunderstood.
Thank you to all of you who have gone to the effort to post and please keep us "posted." We will be praying for all of us in our circle that a breakthrough will occur.View Thread
Thank you.
View Thread
I live in Canada and had a brain tumor removed in 1993 that left me with chronic pain, it's a severe form of Trigeminal neuralgia after my right CN V was severed at the brainstem during surgery due to the tumor's invasion. It's ironic that the right half of my face and much of the head is numb except I do feel one sensation, searing pain as if I'm being burned by chemicals accompanied by random sharp stabbing pain on sometimes one or all three branches of the nerve.
I'm not complaining about my lot in life or the care I received. My neurosurgeon saved my life which would have been over long before my 30th birthday. I am frustrated in my 20 year search for treatment. It's been a very long road with much expense and many different types of therapies from medications too many to recount here and to various natural approaches including chanting, acupuncture, meditation, nerve blocks and more. I now must rely on the government for financial aid, again frustrating. I miss the hard working, energetic person I was but thankfully I'm keen to reinvent myself when needed.
In 2005, a new unidentified lesion was discovered on my brain that we're watching now. My neurologist wanted me to endure another major craniotomy to remove the lesion to stop the complex partial seizures I have, 20 per month on average. I'm not ok with another surgery like this, incurring more damage and deficits and less resources to cope with the pain which it would not help.
The pain reached a new level again in 2010 and I am now being treated in the pain management and palliative care unit in a cancer hospital. The medications I take are strong but have been the most effective at slowing the pain down by as much as 50% much of the time but it comes at a cost, far less energy and extended bouts brain fog.
My pain condition has made me much less able to get around and do things I used to love. I still manage to keep active with one weekly show as a jazz singer and I paint a bit when I am able but aside from my show, not a lot of contact with the outside world. While it can feel lonely, I'm glad my friends can't relate because to really understand chronic pain, one must endure it themselves for a time.
Staying positive when living with chronic pain is a huge challenge for me. I'm grateful to have music and friends i made through that in my life. Little things now matter a lot for example, buying fresh cut daisies, taking luxurious candlelit baths and remembering to breath and relax. Things like these become part of my daily routine to keep my head in a better place. As my health condition declines, it has become increasingly challenging requiring me to adapt daily and be resolved not to fall into depression.
To those here who understand or those wishing to learn about the impact of chronic pain on a person's life, I wish you luck. I'd be curious to get to know anyone else who suffers a similar condition.
Not sure I said anything helpful here but thanks for letting me get this off my chest.
Wishing you all a painfree and Happy Easter! -jazmamaView Thread
I live in Canada and had a brain tumor removed in 1993 that left me with chronic pain, it's a severe form of Trigeminal neuralgia after my right CN V was severed at the brainstem during surgery due to the tumor's invasion. It's ironic that the right half of my face and much of the head is numb except I do feel one sensation, searing pain as if I'm being burned by chemicals accompanied by random sharp stabbing pain on sometimes one or all three branches of the nerve.
I'm not complaining about my lot in life or the care I received. My neurosurgeon saved my life which would have been over long before my 30th birthday. I am frustrated in my 20 year search for treatment. It's been a very long road with much expense and many different types of therapies from medications too many to recount here and to various natural approaches including chanting, acupuncture, meditation, nerve blocks and more. I now must rely on the government for financial aid, again frustrating. I miss the hard working, energetic person I was but thankfully I'm keen to reinvent myself when needed.
In 2005, a new unidentified lesion was discovered on my brain that we're watching now. My neurologist wanted me to endure another major craniotomy to remove the lesion to stop the complex partial seizures I have, 20 per month on average. I'm not ok with another surgery like this, incurring more damage and deficits and less resources to cope with the pain which it would not help.
The pain reached a new level again in 2010 and I am now being treated in the pain management and palliative care unit in a cancer hospital. The medications I take are strong but have been the most effective at slowing the pain down by as much as 50% much of the time but it comes at a cost, far less energy and extended bouts brain fog.
My pain condition has made me much less able to get around and do things I used to love. I still manage to keep active with one weekly show as a jazz singer and I paint a bit when I am able but aside from my show, not a lot of contact with the outside world. While it can feel lonely, I'm glad my friends can't relate because to really understand chronic pain, one must endure it themselves for a time.
Staying positive when living with chronic pain is a huge challenge for me. I'm grateful to have music and friends i made through that in my life. Little things now matter a lot for example, buying fresh cut daisies, taking luxurious candlelit baths and remembering to breath and relax. Things like these become part of my daily routine to keep my head in a better place. As my health condition declines, it has become increasingly challenging requiring me to adapt daily and be resolved not to fall into depression.
To those here who understand or those wishing to learn about the impact of chronic pain on a person's life, I wish you luck. I'd be curious to get to know anyone else who suffers a similar condition.
Not sure I said anything helpful here but thanks for letting me get this off my chest.
Wishing you all a painfree and Happy Easter! -jazmamaView Thread
Wendy Peek
Dallas, TexasView Thread
I went with Copaxone back then it was always refrigerated and less hive issues. Now it left out, is different but helpful to many. Others it can be non stop hiving for a while. If you have med or food allergies be-careful. My hives took 8 months to stop. I may be heading into second stage but for now I am taking Gilenya. Side affects not shown as of yet. I like that it not shots. Helps a little but not well. New meds coming out later this year, we shall see.
My issue on housing is too hard for those with MS to get. Need wide doorways, adaptive bathroom and good entry. State Housing looks at the disabled last, if your over 65 you may get it right away or less wait. Those under the wait over 5 years. There no excuse. The greed for real-estate is more important then having affordable disabled housing. Really sad.View Thread
I went with Copaxone back then it was always refrigerated and less hive issues. Now it left out, is different but helpful to many. Others it can be non stop hiving for a while. If you have med or food allergies be-careful. My hives took 8 months to stop. I may be heading into second stage but for now I am taking Gilenya. Side affects not shown as of yet. I like that it not shots. Helps a little but not well. New meds coming out later this year, we shall see.
My issue on housing is too hard for those with MS to get. Need wide doorways, adaptive bathroom and good entry. State Housing looks at the disabled last, if your over 65 you may get it right away or less wait. Those under the wait over 5 years. There no excuse. The greed for real-estate is more important then having affordable disabled housing. Really sad.View Thread
so I did take him to the dr. and they did a urine sample. negative for UTI and no sugar in his urine. they also did a finger ***** blood sample, and his blood sugar level was 106 (dr. said 105 is the top of range). but this was also a few hours after milk and eating hot dog and bagel. dr. said to just monitor him and did not feel it was diabetes related. no diabetes in either immediate family either.
I was just wondering if anyone here has had a similar situation with their kids? is it the drinks, overactive bladder, not finishing his urine stream, or what? any info. would be appreciated. thanks.View Thread
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I hope someone can help me.
When i was 14 i grazed off half my chin (on the right side of my face) in a bmx accident. The doctor my mum took me to ended up giving me stitches, even though he expressed concern he didnt want me to have any side effects. So at first he didn't want to do stitches but for some reason he did. So i must have lost about 6cm sqared of skin/flesh, as the doctor had to pull the graze together to stitch it. I have since learned you are not supposed to stitch a graze, especially as i wasn't losing much blood.
Now im 27 and have had this problem which has been driving me crazy. It feels like one side of my face is being pulled down, the same side as which i lost half my chin. It feels like the right side of my mouth is being distorted and is tense, and i used to get wierd twitches on the right side of my nose. I feel like I have not been able to relax for at least 7 years and have experienced bad eyesight and facial tension which began around the same time as I suffered the injury. My eyes do not relax and I always have strange tension in my right eye. I also suffer from dermatitis which mostly effects the right side of the face.
I discovered there could be a connection last year when i realised when i push up on my chin and that side of the face, my whole world relaxes and i feel like a weight has been taken off not just my face but it feels like my stomach relaxes too and i can breath better, as well as my eyestrain dissapearing. It also feels like my neck is too tight and if i pull the skin a bit i feel my adams apple relax a bit and it feels like i taste more oxygen.
I have seen at least 12 doctors and they tell me something different, but none see it as a problem.
So my question is, if you lose 6cm squared (approx) of skin and flesh on your chin, and your neck and chin are then stretched together to be sewn into place, and you are only 14 years old and have a lot more face/head/neck growing to do, is there ANY CHANCE AT ALL it could cause side effects in the future?
All the doctors and specialists here just say i need to go on antidepressants or get botox injections in my cheek or they say its all in my head (seriously when did every doctor become a new age hippy and bovine toxin pusher??)
Only one doctor out of 12 agreed that you are not supposed to stitch a graze, the others either confidently told me there was zero chance of side effects or just looked confused.
I got an MRI but it takes 9 months to see a neurologist here apparently so I'm worried it could get worse. No one takes me seriously and I'm scared because I do not like living with this feeling.
Any help or suggestions would be welcome... I'm competely on my own because my mum is sick and my family looking after her and no one really believes me because the doctors don't.
Also the skin around my neck seems pretty numb which i discovered last week. If i pinch it my hardest I will get a slight feeling... so im not sure if thats normal or not.View Thread
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I am now starting to experience the joint pain again. I am the type person to just push through the pain. I don't normally talk about my health issues because it doesn't do any good to dwell, that is my opinion. A few years ago I was on so much medication and strong doses that my system was trying to shut down. Therefore today and everyday I am just happy to be alive. That said it is getting old hurting all the time. I am having a hard time finding information on longterm Rmsf. I am contemplating going to a ID doc. I pray for those on here that are having such a hard time. Try to stay positive!!!! Wake up happy everyday regardless it is a choice we make...View Thread
Thank you.View Thread
We have looked at several in the area, and there is one that we really like, nice size, very clean and comfortable and good patient caretaker ratio.
My Dad has a very hard time talking, so he mostly communicates with me and her doctors by cell phone text messaging. The hospice care that we really like, said that while staying at their facility, he can text but he would have to use a special HIPAA compliant text messaging app called Tigertext.
Now I have signed a lot of these HIPAA confidential information forms, so I think it is that there are laws to protect a patients info, but how is text messaging a problem?
They would give us this Tigertext app, it's part of the care package, but do they have the right to force it on us? They said it works just like text messaging, but is that true?
View Thread
this is the most recent list of posts/threads/articles on problems with bard power port catheters. it supersedes my earlier lists and is accurate as of nov 25, 2012, to the best of my knowledge.
i hope these help. if you have the patience, you should read all the way thru each thread, because a lot of info is included. you may also want to check out my post on FDA complaints at http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/1010 .
-- susie margaret
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/1008 ,
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/979 ,
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/978 ,
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/976 ,
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/972 ,
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/971 ,
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/879 ,
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/875 ,
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/817 ,
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/594 ;
possibly
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/264/50?pg=4 (eighth post, michael66049, on medtronic product),
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/236/108?pg=8 (sixth post, michael66049),
-- a webMD article on the recall of some medtronic products, http://diabetes.webmd.com/news/20040519/insulin-infusion-kit-recall ;
possibly
-- http://forums.webmd.com/3/welcome-exchange/forum/1356 ,
-- http://forums.webmd.com/3/welcome-exchange/forum/372 ;
and possibly
-- http://forums.webmd.com/3/heart-disease-exchange/forum/3586/3 (fifth post, SMJ5353),
-- http://forums.webmd.com/3/heart-disease-exchange/forum/2915 (first post, AN_192994), -- http://forums.webmd.com/3/heart-disease-exchange/forum/1180 .View Thread
this is a summary of the webMD threads and articles on the FDA procedures for reporting complaints about regulated and non-regulated medications, medical devices, and other medically related products. it is accurate as of november 25, 2012, to the best of my knowledge, and supersedes any earlier posts i have made on this topic.
you can always find this list under "resources" on the righthand side of any page in this community (you might need to click on "see all" to get it to come up).
one caution -- i am not a medical person. i welcome, solicit, and indeed beg for amendments, corrections, and replacements for any inaccurate info in this post.
if you want to file a complaint with the FDA, take a look at the following resources --
-- the FDA website on the procedure for reporting complaints, http://www.fda.gov/Safety/MedWatch/default.htm ,
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/980 ,
-- http://forums.webmd.com/3/chronic-disease-and-disability-exchange/forum/879/1 (third post down, my reply to HS30540);
-- and five webMD articles (some are duplicative) on the procedures for reporting complaints to the FDA,
-- http://www.webmd.com/fda/abbott-recalls-some-similac-formulas ,
-- http://www.webmd.com/fda/fda-101-dietary-supplements ,
-- http://www.webmd.com/fda/how-to-use-fda-consumer-complaint-system-and-medwatch ,
-- http://www.webmd.com/fda/reporting-drug-quality-problems ,
-- http://www.webmd.com/fda/your-guide-reporting-problems-fda .
i hope these help.
-- susie margaretView Thread
I am in the worst predicament. My mother and I have a tight bond, I know her so well and know how to make her laugh. She is in great physical shape but, she is now completely incontinent - dependent on my wifte and I to change her and clean her. She is now getting violant and has swung and hit my wife.
The dilema, if I put my mother in a home, I feel I am not being a good son as she has so much life in her. If I do not put her in a home I am a bad husband for putting my wife in harms way. . . We are now starting to try putting my mother on Olanzapine ( ZyPREXA) with the hope it will calm her temper swings . . but the potential side effects concern me deeply.
It is a very sad situation. Tomorrow I must start seeking a full time care facility for my mom as there appears to be no other sulution.View Thread
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